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MS-UK supports the next generation of occupational therapy students

Posted on: April 05 2018

MS-UK’s Head of Services Diana Crowe and Centre Manager Dean Jeffreys inspire The University of Essex occupational therapy students

MS-UK’s Wellness Centre, Josephs Court works closely with the University of Essex to support occupational therapy students (OTS) by providing role-emerging placements while they train. 

Each year the Josephs Court team is invited to speak at a symposium with the new OT recruits about role-emerging placements at its Wellness Centre in Colchester, Essex and increase their knowledge of multiple sclerosis (MS). 

Diana Crowe, Head of Services, said: ‘We took the opportunity to promote all of our services, but focused on what we deliver at Josephs Court, such as the exercise equipment and the benefits this brings to clients.’

‘There was good interaction and we were asked about the social activities we provide, so we discussed the MS-UK Social Group in Colchester, which has regular coffee mornings and other events such as bingo!’

‘Due to recent headline news regarding HSTC there was an interest in how this treatment could impact on us as a charity and our clients. Just like everyone else we will have to wait and see how the treatment develops, but we will continue to support people with MS for as long as they need us.’

‘We split into groups, which gave us a chance to speak in more detail with some of the students,’ explains Dean Jeffreys, Centre Manager. ‘The students were interested to know about APS Therapy, how we link up with other services and how politics impacts on our strategy.’

Speakers from St Helena’s Hospice spoke about its gardening project for those at the end of life and Craig, from Pots the Soldier, spoke about his post-traumatic stress diagnosis after leaving the army and how he found a love of pottery thanks to the support of OTs – very inspirational!

‘It was great to see the students so interested in the work MS-UK does and we hope to continue to work with Essex University over the coming years. Who knows one day we may have our own MS-UK Occupational Therapist,’ adds Diana.

 

Disability Rights Handbook out now

Posted on: March 14 2018

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Ryan Jones

Hi everyone,

We just wanted to let you know about this important source of information that our MS-UK Helpline team regularly uses to support the multiple sclerosis (MS) community.

The Disability Rights Handbook is a guide to benefits and services for anyone with a disability, their families, carers and advisers. It contains a wealth of information relating to the benefits system, as well as social care services and help for carers.  This guide will be relevant to many people living with MS.

Clients who use the MS-UK Helpline have let us know how valuable the information provided by our advisors is and, since a lot of that information can be found in the Disability Rights Handbook, we wanted to share it with you. If you would like to buy your own copy, you can do so on the Disability Rights UK website store.

We wanted to let you know this was available to pre-order as last year’s handbook sold out in quite quickly!

As always, though, our MS advisors are available to listen to you, talk things through with you and keep giving you as much helpful information and support as possible.

Best wishes,

Ryan

Ryan Jones

MS Advisor

Take our annual survey today!

Posted on: March 01 2018

Hello,

vlm-e-news-image1-11.jpgEvery year we run our annual survey, asking you to tell us a bit about yourself. Last year hundreds of you took part – thank you!

We run this survey every year so that we can make sure we are always providing services that really meet the needs of people affected by multiple sclerosis, and so that we ensure we are reaching as many different people as possible that want information or support.

In the survey we’ll be asking questions all about you – from how old you are to what MS-UK services you may have used in the past. Everything is completely anonymous, and we won’t be asking you for any contact details at all.

 

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Thank you so much for taking part!

Best wishes,

Laura

Laura May, Marketing Manager

Heat and multiple sclerosis, what can you do?

Posted on: June 23 2017

blog2.pngMany people with MS are experiencing a temporary worsening of symptoms during this current heatwave. You might feel fatigued, or experience an increase in pain, or feel cognitive symptoms are worse. A change in body temperature can also give rise to Uhthoff’s Sign – causing blurred vision. See Visual Symptoms Choices leaflet.

Although uncomfortable, such symptoms are temporary and will resolve when the body is cooled down.

Air conditioning can be very nice but if that isn’t available then a fan in every room is a second best. Items such as Kool-Ties and Cooling Vests can be helpful. The Kool-Ties work for up to three days by cooling the whole body and particularly the blood flowing to the carotid arteries. Cooling Vests have special cooling crystals incorporated into the material and are soaked in cold water, holding the temperature for a substantial period of time.

Other strategies to help keep cool in hot weather include taking regular cold drinks, wrapping a damp towel around your neck, using ice in a tray of water in front of fan to create an air-conditioning effect.

For more detailed information, see our Choices leaflets on Fatigue and MS symptoms.

You can also contact our MS advisors on the MS-UK Helpline, either by phone in the UK 0800 783 0518, or worldwide using our Live Web Chat service. or emailing info@ms-uk.org

 

Check out our new look New Pathways!

Posted on: April 07 2017

np-102a-1.jpgHi everyone,

Well, issue 102 of New Pathways is out now!

As you flick through the pages you will notice we have given the magazine a fresh new look and I hope you like it.

What’s in this issue? Well, we have MS nurse Miranda Olding exploring symptoms and how to determine if it’s MS or something else. Ian Cook catches up with The Disabled Chef, James Coke and discusses how he manages to pursue his passion for cooking while dealing with MS.

And if you’ve recently been diagnosed or are struggling to come to terms with a diagnosis, Dr Amanda Bertram, reveals how Chimp Management could help you learn to cope.

You can subscribe online today or simply search for the My MS-UK app in your app store and download the digital version and get reading straight away.

Please do let me know your feedback too – just email me at newpathways@ms-uk.org with your comments.

Enjoy reading!

Sarah-Jane

Editor, New Pathways

Would you like to chat online to a member of our Helpline team?

Posted on: March 21 2017

the-ms-uk-helpline-team-kim-ryan-and-laura.jpgWe have been using an online live chat system for some time now and it has shown to be popular. Certainly for those who may not feel in a position to pick up the telephone for whatever reason, and for those who would like a more instant response than email. It also means we have been able to chat to people abroad too, when they may have found it difficult to find support.

Our Digital Officer, John, has now developed a nice little function whereby a pop up appears on every page of our website to show people that the live chat facility is available. This has certainly increased the amount of web chats we have received which is great as it has meant we have reached out to more people affected by MS.

If we are engaged - either chatting to someone already, or perhaps on the telephone - then a message can be left via email and we will get back to you as soon as we can.

We look forward to hearing from you,

Laura, Kim and Ryan

The MS-UK Helpline team

Counselling survey - have your say!

Posted on: January 09 2017

diana.jpgHi everyone,

As you may know, MS-UK is planning to launch a new counselling service in 2017.

But we need your help!

With your feedback, we hope to make it as relevant as possible for people affected by multiple sclerosis. So, we’re asking you to take a short service to help us shape this service for the future.

Take the survey now online

It’s important that we learn about what has and hasn’t worked for people in the past and what it is that people with MS really need.

Thank you for your help!

Best wishes,

Diana

Diana Baxter

Head of Service

Your voice counts...

Posted on: June 21 2016

the-ms-uk-helpline-team-kim-ryan-and-laura.jpgHi everyone,

We are refreshing our Choices leaflets for people affected by multiple sclerosis (MS) and we need your real life experience to help us shape them!

If you have been diagnosed with MS, then you can help us by taking a quick survey online today.

Thank you so much!

The MS-UK Helpline team

P.S. The survey closes on Monday 27 June at 4pm.

We are refreshing our Choices leaflets for people affected by multiple sclerosis (MS) and we need your real life experience to help us shape them! If you have been diagnosed with MS, then you can help us by taking a quick survey online today.

Thank you so much!

The MS-UK Helpline team

P.S. The survey closes on Monday 27 June at 4pm.

 

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