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Research shout out: MS patient and carer views needed to inform NHS Wales

The All Wales Medicines Strategy Group (AWMSG) are seeking the views of multiple sclerosis (MS) patients and carers about new medicines it will consider recommending for use in NHS Wales, such as fingolimod (Gilenya), to treat MS in paediatric patients.

They would like you to share with them what it is like to live with MS or to care for someone who has it, and by contributing you will provide invaluable information about patient and carer needs. 

In addition, they will be asking clinical experts to give their views and the medical facts. All of this information combined will give a really good insight into the real effects MS has on patients and carers and help inform the drug approval process. You are not expected to have all the answers, but anything you can share will be incredibly helpful.

If you would like to share your experience download the questionnaire to complete and send it to the address below by the 18 March 2019:

All Wales Therapeutics & Toxicology Centre

Academic Centre

University Hospital Llandough

Penlan Road, Llandough

Vale of Glamorgan

CF64 2XX

Alternatively you can fill out the questionnaire here. All information shared with AWMSG will be kept confidential. 

AWMSG is meeting on 15 May 2019. At the meeting the group’s lay member will summarise all comments from patients and carers, and patient organisations. Only AWTTC and committee members will read the completed questionnaires.

If you would like more information, or help with completing the questionnaire, please call 02920 716900 or email AWTTC@wales.nhs.uk.