MSer and Feature Writer Ian Cook catches up with two HSCT patients one year on from the launch of new MS charity AIMS
Just over one year ago, I attended a black tie fundraising ball at Villa Park, Birmingham, launching a new charity promoting haematopoietic stem cell therapy (HSCT) for MS.
The new charity, Auto Immune & Multiple Sclerosis (AIMS), was set up to help people with auto-immune illnesses, particularly MS, to access HSCT treatment. HSCT is where an MS patient’s immune system is replaced or ‘re-booted’, and as a result the myelin coating of nerves in the brain and spinal cord no longer suffer the auto-immune attacks that characterise MS.
HSCT uses high-dose chemotherapy which wipes out the body’s existing immune system. The immune system is then rebuilt using stem cells which have been ‘harvested’ from the patient’s blood before chemotherapy and are then re-introduced afterwards. The newly rebooted immune system suffers no further auto-immune attacks, preventing further damage.
At the AIMS launch I met a number of MS patients who had received HSCT. So how are they doing one year on? One of the people I met was Damien Scott, who was diagnosed with relapsing remitting MS in 2004. Damien travelled to Moscow in 2017 for treatment at the A.A. Maximov Haematology and Cell Therapy Department of the National Pirogov Medical Surgical Centre. At the Villa Park event Damien gave me some background information about his trip to Moscow.
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