Georgi Gill is looking for people to take part - no experience needed!
Since my diagnosis of relapse remitting multiple sclerosis (MS) in 2003, I have found it difficult to describe my illness experiences to family, friends and colleagues. I learned the medical terminology for my symptoms. Yet dysesthesia, optic neuritis and cognitive dysfunction don’t communicate the feelings of living with numbness, blurred vision or fatigue. I am not alone in this – it is acknowledged within the MS community that many people have difficulty explaining our illness to those around us.
As a poet, words are my stock-in-trade so I am very keen to find ways of improving this communication shortfall. Accordingly, I have developed the Poetry and Multiple Sclerosis (P.a.M.S.) Study, at the University of Edinburgh, in which I am inviting people with MS to try writing poems about their illness so we can explore whether poetry may give us new ways to communicate our MS to those around us.
People living with MS in the UK may be eligible to take part in the P.a.M.S. study which is happening online. Participation involves up to two interviews with me, and attending relaxed poetry workshops where there will be opportunities to try writing poems. No previous poetry experience is required, although if people have written poems before, they are also welcome.
To find out more about the P.a.M.S. Study, take a look at our website. If you have any questions or would like to discuss taking part, all the contact details are on the site.