Hi everyone, I’m Kylie, I’m 40 years old and I’ve recently applied to become an MS-UK Community Champion. My awesome friend (that I’ve only met because we both have MS and ours paths crossed) told me all about MS-UK and the great work that they do for people with multiple sclerosis (MS) and what it meant to be a Community Champion.
It’s going to be great to help raise funds and awareness. I also love meeting and talking to new people and it’s a role that has no pressure and stress attached to it, so it is perfect!! I’m very excited to be a part of #TeamPurple!
So, just a little bit about me. I was diagnosed with MS eight years ago. I had no idea that I had anything wrong with me until in the space of a few weeks I developed many symptoms of MS. It started with tingling in my fingertips, then my toes and just spread like wildfire from there. I consider myself to be very lucky as a few visits to the doctors, I was admitted to hospital where I remained for a week while I had intravenous steroids, an MRI, and a lumbar puncture. By the time I went to hospital, I could barely walk, bounced off of walls and couldn’t even hold a knife and fork anymore.
I came out with my diagnosis of MS at the end of that week and started a disease modifying drug just a few months later once funding came through. I know that other people’s diagnosis journeys to getting a diagnosis have been a lot longer, so I am grateful that it happened in the way that it did. I’m very much 'a glass half full' kind of girl, with a decent amount of stubbornness, so I worked hard on a long recovery when I got home. I have an amazing fiancé that helped me to get quite literally get back on my feet. I have permanent symptoms that remain and symptoms that constantly come and go but I’ve just learned to live in a different way. There are always ways around things. I wouldn’t change having MS because I’ve met the most fantastic people and it’s changed me in a very positive way. It made me realise that I had to cut stress out of my life as much as possible as it is absolutely my number one trigger for a relapse. It’s taught me that actually it’s okay to say no (still working on that!), and it’s also given me back my love of arts and crafts. Although MS can be hard and challenging at times, it can also bring great gifts with it.
If you'd like to find out more about becoming one of our Community Champions, click here or contact our Fundraising team on firstname.lastname@example.org