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Guest Blog - The luck of the draw

Posted on: May 10 2016

Today we publish one of our ‘Guest Blog’ articles from Liz. If you would like to write an article for our blog please contact

You can view the guidelines for writing for us online now at

As I am sure you aware, World MS Day is less than 17 days away.

Is this a good thing?…

Well, one of the ‘kind of’ less good ASPECTS of our condition is that it seems to be pretty much non ‘picky’ re: ‘target’/ sufferer, that is to say that membership of our MS ‘club’ is limited to /by neither:

• Sexuality;
• Nationality;
• Political preference;
• Sexual persuasion:
• Academic qualification level; or any other ‘entry’ requirement .

That I have MS, while nobody else in my (growing) immediate family [sisters (3), Aunt[s] (2), sons (2) cousins (5), nephew(1) ] has shown any identifiable indicator of the same, I see that, you may or may not?: (it’s not my business, and anyway, how could I ?) as little more than ‘the luck of the draw’!

My own MS journey began a very long time 41, out of my 48years ago and I’m pretty sure you have your own. It may have been when I was in London, following graduation, I experienced the unusual ‘symptom’ of total blindness, in one eye only…not painful, not totally debilitating, but that’s what happened…I crossed several tube lines and ventured to work, as usual.

Quick trip to local doctor (GP) who to my surprise booked me a clinic appointment with an ophthalmologist at St Thomas’ Hospital.

After several minutes, musing quietly, my opthalmologist offered, somewhat apologetically…’well Miss M, I think I may have a diagnosis for you…may I ask? Do you know anything of Multiple Sclerosis?’

Yes, I knew a little, that is to say that I knew my fantastically devoted mother took my 3 sisters and I to see her Aunt, 3 or 4 times a year. (Great) Auntie J was afflicted by the condition.

Beyond my own, probably boring, recollections of my first experiences our condition, there are still, after 4+ years, only a few things I’m pretty certain of: facts…

• It (MS) is a chronic condition affecting the brain and central nervous system (CNS);
• The process of confirming a diagnosis of MS is neither quick, nor easy;
• No 2 MS-ers share identical ‘symptoms’ at the same time.

As time passes by, and visits to my neurologist(s) come around, the international and 24/7 communication facilitated by my, and probably your, interaction(s) with, possibly you, and still all MS-ers globally of the fund-raising projects taking place, and supported by :
• The MS Association of America;
• Associanciazione Italiana Scleriosi Multipla (Italy);
• Esclerosis Multiple Espana (Spain);
• The MS Society (UK);
• Multiple Sclerosis Society of Canada;
• National Multiple Sclerosis Society (USA); and
• Sclerose foreningen (Denmark);

To answer my initial question, as I type there are still 17 days until we celebrate WORLD MS DAY 2016!!

My guess is, no, make that I know with absolute certainty that, by the time you have finished enjoying this edition of the MS-UK blog, we are at least 2 hours closer to celebrating the recognised and prescribe-able cure, not therapy to help management of, but cure for Multiple Sclerosis!!!

If you would like to be kept abreast of the first updates, of what’s going on around the world to mark the day, we are all encouraged to contact Sophie Paterson: ….it’s up to us.

Look forward, together positively, together….that way we are all stronger!

Keep going forward friends.


It's the year of the bear!

Posted on: February 01 2016

Hi everyone,

My name is Myles, and I am the MS-UK mascot!

I’m really pleased to let you know that MS-UK is celebrating the year of the bear, and it’s all about little old me!

Throughout the year I will here, there and everywhere as I snap some selfies to raise awareness of multiple sclerosis and spread the word about the work of MS-UK.

You can keep an eye on my travels and adventures by following me on Instagram at and don’t forget to use the hashtag #SmileswithMyles whenever you post a picture of me so I can check it out!

Thanks everyone, and I hope to meet many of you soon!

Visit my web page for more ideas to get involved at

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