It feels a little that people with multiple sclerosis (MS) are stuck between a rock and hard place when it comes to the weather. After the extremely hot summer we’ve just experienced, many people had issues with the heat, and now winter is just around the corner bringing problems and anxieties of its own.
MS symptoms can be exacerbated as the temperature drops. It is not known exactly why the cold has a negative effect on people with MS symptoms. Some of the symptoms that can be exacerbated by the cold weather are:
One additional issue may be the shorter days and not being exposed to as much direct sunlight, therefore not getting as much natural vitamin D as in summer months. The lack of sunlight, the shortening of the days and the difficulties getting out and about can also be contributing factors towards negative mental health with potentially worsening anxiety and depression.
Like many other aspects of living with MS, a little planning and forethought can go a long way when coping with activities in the winter.
If you want to chat about any aspects of living with multiple sclerosis, the MS-UK Helpline team are here to help. Just call us on 0800 783 0518, email us or use our live web chat service to get in touch.
Dean, Wellness Centre Manager at Josephs Court in Essex, tells us all about his recent visit to the Rotary Club of Centurion Colchester...
On 17 October, I was delighted to deliver a presentation to the Rotary Club of Colchester Centurion, who do a fantastic amount of voluntary work and fundraising for charities and good causes in Essex.
We were very well received! The club members were keen to know more about MS-UK and what we do both locally and across the UK.
We were privileged to be joined by Judy Sexton, one of our long standing Josephs Court clients. Judy shared a moving personal story of her time at Josephs Court, the heartfelt account of her experiences living with multiple sclerosis (MS) and attending the centre really touching a chord with those in the room.
We were also joined by the Chairman of our Board of Trustees, Martin Hopkins, who outlined the charity's vision for supporting those with MS. Members of the Rotary Club of Colchester Centurion are now planning to visit Josephs Court to see the facilities for themselves and learn more about how access to our centre improves the lives of local people affected by MS.
To top off a successful morning, the club generously donated £2,000 to MS-UK in order for Josephs Court to purchase a brand new piece of equipment! We have been looking to offer resistance-based exercises at the centre for a long time. This form of training has been shown to benefit people with MS by increasing muscle mass, improving tone and ultimately making daily functions easier. In addition, the benefits can be seen on a physiological level, improving neural transmissions from the brain to the muscles and reducing the progression of brain atrophy (shrinking). With that in mind, we cannot wait for our shiny new weighted pulley machine to arrive!
We would like to say a huge thank you to Rotary Club of Colchester Centurion for their very kind donation. I will certainly be letting them know how our clients are getting on with the new machine when it arrives. Thank you!
Wellness Centre Manager at Josephs Court
I am thrilled to share a sneak peak into the latest issue of New Pathways magazine, which is out now!
Our cover star this issue is MSer and HR Specialist Rebecca Armstrong, who discusses being your own boss and taking a step into self-employment on page 16.
On page 24-25, wellness coach and Director of Work.Live.Thrive Zoe Flint discusses how relaxation can help boost your immune and central nervous systems. This feature all about mindfulness for MS shares Zoe's insights and her top 5 things to get your started.
Also, MSer and Feature Writer Ian Cook reveals his first-hand experience of becoming a carer. Ian says, 'It may sound strange to say this but I believe being disabled is, in many ways, the perfect qualification to care for another disabled person.' Read the full article on page 12, and don't forget to check out his 'revisited' article on page 42 all about Shopmobility.
Fats have once again been dominating the news of late, so we asked MSer and Nutritional Science Researcher Sharon Peck to reveal the truth and explain what we really need to know on page 19. We also take a look at the natural remedies lurking in the back of your kitchen cupboard that could help relieve MS symptoms on page 18.
If you would like to see something specific in New Pathways please email me and let me know your thoughts or feedback.
Editor, New Pathways
I am delighted to say that our Annual Review 2017 is now published. This booklet is our way to thank our supporters and celebrate our success in a public way, and I hope you enjoy reading it.
Our vision is a world where anyone affected by multiple sclerosis (MS) can access the information and support they need to make their own decisions. Since 1993 we have led the way in promoting choice, tackling taboos and remaining independently funded. We are built on a foundation of listening and acting according to the needs of people affected by MS. I am thrilled to see that this is reflected in our work from last year.
We are driven by our values, guiding principles that inform every aspect of our work. In 2017 we were able to bring these values to life, and our services supported thousands of people. Every service is shaped by people affected by MS. By listening to people, we are able to offer services that are truly community led.
Thank you to every single person who has shared their voice with MS-UK or supported us so on our journey so far.
Our work would not be possible without the support of so many people.
It’s World Mental Health Day, an annual day to highlight the importance of looking after your mental wellbeing that is recognised by the World Health Organisation.
To recognise the day, the Prime Minister Theresa May has appointed a minister for suicide prevention. Jackie Doyle-Price will add this to her role as Health Minister to help tackle the stigma surrounding suicide.
Here at MS-UK, we have been told that when it comes to living with multiple sclerosis (MS) the mind is often overlooked. That’s why this time last year we launched MS-UK Counselling, a confidential telephone counselling service for people with a diagnosis of MS.
I wanted to let you know a bit more about it, as it is World Mental Health Day. The only service of its kind, MS-UK Counselling is focused on helping people with MS explore the emotional impact of living with this condition.
It is very common for people to struggle with coming to terms with a diagnosis or dealing with the uncertainty of how their condition may progress. For some, MS-specific counselling is crucial in supporting them to come to terms with their condition, understand their feelings and live positively with MS.
So if you are thinking about your mental health today with all the media attention on World Mental Health Day, do visit our web page to find out more about MS-UK Counselling. Our team of counsellors are here to help and support you,
Head of Services
This issue of New Pathways magazine is jam packed full of a variety of news, features and real life stories. Start your read by catching up on all the latest developments in MS on pages 4-10. Then why not discover nine anti-inflammatory foods that could benefit your diet and MS on page 34.
Next we take a look at how a condition that predominantly affects women, actually impacts men on page 12. And on pages 30 and 32 MSer and feature writer Ian Cook revisits Access to Work and gives electric wheelchairs a spin.
Stem cells research and personal stories are still dominating the news, so we thought we would produce an update on this ever popular treatment option on page 24.
Also in this issue, MSer and HR Specialist Rebecca Armstrong explains how to get the best out of occupational health on page 16, we take a look at the therapeutic benefits of horse therapy on page 18, and Rosalind Barton reveals the highlights of her surprisingly accessible trip to Singapore.
Editor, New Pathways
It’s that time again when I reveal a sneak peek at what’s inside the new issue of New Pathways magazine!
In issue 109 you will find lots of great content, from the latest news and your real life stories, to expert comment. On page 11, cognition expert Dawn Langdon talks healthcare priorities and on page 18, Professor Gavin Giovannoni and his team explain why we should all #ThinkHand when it comes to research.
In addition, Feature Writer Ian Cook celebrates his silver MS jubilee on page 38, MSer Charlie Gee updates us on the fight to make medical marijuana legal on page 27 and Dr Elphinstone discusses how chiropractic can help treat MS symptoms on page 12. There’s even a cheeky throwback to our cryptic crossword on page 45.
Also this issue, we need your help! On page 23, MS-UK CEO Amy Woolf explains how she is setting out a plan for the charity’s future, but we need your input to help shape and inform the direction we take. Why not pour yourself a cup of tea and have a read, give it some thought and then write to us? We are here for you, so we want to know what you want and need from us.
Thanks in advance and as always, enjoy reading,
New Pathways Editor
We at MS-UK are inclined to agree. This year, inspired by the recent launch of our MS-UK Counselling service and MS Awareness Week 2018, we're praising the power of talk. We believe that the simple act of opening up to someone who'll listen can have a hugely beneficial impact on a person's wellbeing and quality of life.
We sat down with MS-UK counsellor Jonathan who told us what he finds most rewarding about being able to lend an ear to those in the MS community.
April is always an exciting month for us here at MS-UK as we mark MS Awareness Week, and 2018 is no different!
This year we are celebrating our newest national service, MS-UK Counselling. We launched the pilot of this service in October 2017 and since then have delivered over 150 telephone counselling sessions to people with a diagnosis of multiple sclerosis. But we want to help even more people!
At MS-UK, we believe that it’s good to talk. However, we know that there can still be a stigma around accessing counselling, and we want to break down these barriers so people diagnosed with multiple sclerosis can get the support they need.
So, this MS Awareness Week I ask you to help us spread the message that it’s good to talk! Throughout the week of 23 – 27 April we will be posting on Facebook and Twitter all about MS-UK Counselling, and it would be great if you could help us spread the word by retweeting or sharing our posts. Thank you!
Keep an eye on our blog for updates as we near the big week...