This year, MS-UK will be coming to the end of our current Strategy, and right now we're exploring what we should focus on in the next three years. But we need your help to get it right, and make sure that the wider MS community is included every step of the way!
Please take our short survey today and let us know what barriers you face to feeling happier and healthier in your life with MS. Perhaps you feel there is a vital MS service missing? Maybe you believe MS-UK could raise awareness of multiple sclerosis among the general public? We'd like to know your opinions, and use your voice to shape our work in the next three years.
Your voice matters. Thank you for sharing it with MS-UK!
Since 2013, Chris has managed to complete 100 marathons in aid of MS-UK, racking up over 2,500 miles! What is the secret to Chris' success? We spoke to him to find out...
I ran the Virgin Money London marathon in 2013 and 2014, the London to Brighton 100km (63 miles) challenge, the 15 marathons challenge in 2015, and the 30 marathons challenge in 2017. My 100th marathon, at Betteshanger Country Park, was also in celebration of MS-UK!
When my wife Jennie was diagnosed with MS in 2011 we turned to MS-UK for help. They were brilliant. They gave Jennie access to the help and support she needed at the time and ever since. I decided to do something to support the brilliant work they do for people living with MS. Now, seeing the centre grow and the facilities develop, it feels great to have played a part.
I have run several navigational races and normally get lost which adds to the fun! During the London to Brighton challenge in 2014, a fellow runner was following my head torch to help get over a stile but missed the jump and fell over in style!
I found it easy to raise money the first time around as the 100 marathon challenge is a massive commitment that everyone is eager to see you complete. In the years that followed I have found events such as quiz and music nights really worked well. I hosted a fundraising penalty shootout which worked well too.
For my next fundraising challenge I will be taking on a 100 mile run in Dover in 2019. As 63 miles is the furthest distance I have ever run, I feel like this will be my biggest challenge yet! If you would like to donate you can visit my JustGiving page!
Every year we run our annual 'Getting to know you' survey, asking you to tell us a bit about yourself.
We do this so that we can make sure we are always providing services that really meet your needs, and so that we ensure we are reaching as many different people as possible that want multiple sclerosis information (MS) or support.
In the survey we'll be asking questions all about you - from how old you are to what MS-UK services you may have used in the past. Everything is completely anonymous, and we won't be asking you for any contact details at all.
You can take the survey online up until 5pm today - thank you for your help!
This time next week MS-UK will be celebrating MS Awareness Week, and you can join us!
This year we are spreading the word about our newest national service, MS-UK Counselling. I would love you to get involved by downloading our Twitter and Facebook graphics...by adding them to your profiles you will be helping us reach even more people affected by multiple sclerosis who may benefit from counselling.
Right click on these images and select 'Save image as...' to download them to your computer:
Thank you for your help!
April is always an exciting month for us here at MS-UK as we mark MS Awareness Week, and 2018 is no different!
This year we are celebrating our newest national service, MS-UK Counselling. We launched the pilot of this service in October 2017 and since then have delivered over 150 telephone counselling sessions to people with a diagnosis of multiple sclerosis. But we want to help even more people!
At MS-UK, we believe that it’s good to talk. However, we know that there can still be a stigma around accessing counselling, and we want to break down these barriers so people diagnosed with multiple sclerosis can get the support they need.
So, this MS Awareness Week I ask you to help us spread the message that it’s good to talk! Throughout the week of 23 – 27 April we will be posting on Facebook and Twitter all about MS-UK Counselling, and it would be great if you could help us spread the word by retweeting or sharing our posts. Thank you!
Keep an eye on our blog for updates as we near the big week...
I am pleased to say New Pathways issue 108 is now landing on doormats across the country! As always we have a packed issue, full of all the latest multiple sclerosis (MS) news and research, including drug updates and the latest cannabis study findings.
As the sunshine begins to make an appearance, we get topical with lots on vitamin D. MSer Ian Cook puts vitamin D tablets and sprays to the test (see page 30) and Kahn Johnson reveals what happened when his vitamin D levels became toxic on page 16.
Also in this issue, MS Nurse Miranda Olding discusses sexual dsyfunction and what can be done to help (page 14) and we have the big interview with the star of Channel 4 programme 'The Search for a Miracle Cure' Mark Lewis (page 24).
I hope you enjoy reading this issue, and please do email me your comments and letters to email@example.com.
Editor, New Pathways
P.S. Don't forget New Pathways is available to read on the go. Download the My MS-UK app from the App store on your phone or tablet device today!
MS-UK’s Wellness Centre, Josephs Court works closely with the University of Essex to support occupational therapy students (OTS) by providing role-emerging placements while they train.
Each year the Josephs Court team is invited to speak at a symposium with the new OT recruits about role-emerging placements at its Wellness Centre in Colchester, Essex and increase their knowledge of multiple sclerosis (MS).
Diana Crowe, Head of Services, said: ‘We took the opportunity to promote all of our services, but focused on what we deliver at Josephs Court, such as the exercise equipment and the benefits this brings to clients.’
‘There was good interaction and we were asked about the social activities we provide, so we discussed the MS-UK Social Group in Colchester, which has regular coffee mornings and other events such as bingo!’
‘Due to recent headline news regarding HSTC there was an interest in how this treatment could impact on us as a charity and our clients. Just like everyone else we will have to wait and see how the treatment develops, but we will continue to support people with MS for as long as they need us.’
‘We split into groups, which gave us a chance to speak in more detail with some of the students,’ explains Dean Jeffreys, Centre Manager. ‘The students were interested to know about APS Therapy, how we link up with other services and how politics impacts on our strategy.’
Speakers from St Helena’s Hospice spoke about its gardening project for those at the end of life and Craig, from Pots the Soldier, spoke about his post-traumatic stress diagnosis after leaving the army and how he found a love of pottery thanks to the support of OTs – very inspirational!
‘It was great to see the students so interested in the work MS-UK does and we hope to continue to work with Essex University over the coming years. Who knows one day we may have our own MS-UK Occupational Therapist,’ adds Diana.
We just wanted to let you know about this important source of information that our MS-UK Helpline team regularly uses to support the multiple sclerosis (MS) community.
The Disability Rights Handbook is a guide to benefits and services for anyone with a disability, their families, carers and advisers. It contains a wealth of information relating to the benefits system, as well as social care services and help for carers. This guide will be relevant to many people living with MS.
Clients who use the MS-UK Helpline have let us know how valuable the information provided by our advisors is and, since a lot of that information can be found in the Disability Rights Handbook, we wanted to share it with you. If you would like to buy your own copy, you can do so on the Disability Rights UK website store.
We wanted to let you know this was available to pre-order as last year’s handbook sold out in quite quickly!
As always, though, our MS advisors are available to listen to you, talk things through with you and keep giving you as much helpful information and support as possible.
This year MS-UK is commemorating 25 years of supporting people affected by multiple sclerosis, and I have a fun, easy way for you to show your support and get involved!
Just add our Twibbon to your Facebook or Twitter profile picture and help us celebrate our 25th anniversary!
There are lots of other ways to support us as well, just visit our website to find out more.
Jill Purcell, Fundraising Manager
Every year we run our annual survey, asking you to tell us a bit about yourself. Last year hundreds of you took part – thank you!
We run this survey every year so that we can make sure we are always providing services that really meet the needs of people affected by multiple sclerosis, and so that we ensure we are reaching as many different people as possible that want information or support.
In the survey we’ll be asking questions all about you – from how old you are to what MS-UK services you may have used in the past. Everything is completely anonymous, and we won’t be asking you for any contact details at all.
Thank you so much for taking part!
Laura May, Marketing Manager