I made a promise to my dad twenty years ago that one day I would do a charity event and raise money for multiple sclerosis (MS). My dad is 83 and had relapsing-remitting MS for 40 years and I have seen first-hand how this disease not only affects the person but also the family.
So, after twenty years of procrastinating, my partner Anne-Marie and I decided to finally hold true to my word. I was already in the RideLondon-100 so we looked at MS charities for Anne-Marie. Thankfully we spoke to Jenny at MS-UK who was enthusiastic and welcoming and that sealed our decision.
I know a lot of people use charity places as a way of getting into an event they wanted to do anyway but if there was one bit of advice I could ever give someone, it would be to pick a charity that means something to you.
For all those rainy days you don’t feel like training, for all the times your bum hurts (even with a litre of chamois cream slapped over it), for all those times you are halfway up a steep hill wondering why you aren’t slouched on the couch chowing down on popcorn, knowing why you are putting yourself through this makes such a difference to your resolve and dedication.
Training went well until one sunny May afternoon, I had a collision with a car whilst out cycling. The end result was a road closure, ambulance, two police cars, a suspected broken leg, injured back and hand, stitches in the chin and my bike was written off.
Subsequent x-rays and MRIs to my hand and leg miraculously showed nothing broken. By sheer chance, the angle of my knee prevented a far more serious long term knee injury occurring so I feel incredibly lucky.
Nevertheless, I was told I would be on crutches for up to 10 weeks and that all cycle events would be out until September.
This was devasting for both myself and Anne-Marie.
To put this into perspective, Anne-Marie is not a confident cyclist. She has never ridden on her own so the thought of her cycling 100 miles solo scared her to death.
She continued to train on an indoor bike in the gym but only for an hour at a time which wouldn’t be enough to get her in shape for a 100 mile ride outside.
She also suffered far more than me after my accident. My damage was physical but Anne-Marie’s was mental. From a lack of sleep due to nightmares leaving her exhausted, from having to be my carer for five weeks leaving little time for the bike, to seeing her partner in almost constant pain, her confidence plummeted.
But this is where choosing a charity that means something to you is so important. Despite all her fears, she knew she wouldn’t pull out. It was too important a promise to go back on.
After a few weeks of mental turmoil, she made a last-minute decision to try the Tour of Cambridge on her own. A massive feat for her and one I am so proud of her for.
In the meantime, I had been rehabbing for up to two hours a day. I developed a huge admiration for people like my dad who, because of their MS, have to ‘rehab’ every day just to keep mobile and functioning.
I remember the first day I managed to do a full revolution of a pedal stroke in the gym. It took me 10 minutes to get my leg over the top of the pedal stroke and it felt amazing. Within a week I managed five minutes on an indoor bike. A week later I double that time to 10 minutes and a week later I tried 20 minutes. Each time I felt exhausted and despite the Physio telling me there was no way I would get to the start line of the RideLondon, the prospect of being there with all the other MS-UK riders really made me want to give it a shot.
Despite everyone telling me not to overdo it, I cautiously overdid it and increased my longest ride from 20 miles to 25 to 35 to 53 to 70 miles on subsequent sessions with Anne-Marie always by my side.
At the end of each ride, I felt exhausted and would fall asleep in a sweaty mess.
So here we are today. My max longest ride will have been 70 miles. I don’t feel ready for the event, my hand still hurts but I’ll give it a jolly good bash. I can honestly say if it wasn’t for the importance of the charity, I wouldn’t have tried anyway near as hard on the rehab. Anne-Marie would have certainly dropped out of the event too but she feels a connection to the charity through me and my family.
Seeing the effort families put in to helping their loved ones, seeing the effort those suffering from MS put into daily life means that you can’t help but feel motivated and inspired to put that little bit more into your own daily life.
For those who are reading this who are doing the event, I look forward to seeing you on the start line. I also look forward to seeing you (hopefully) at the finish line.
It’s all for a great cause and the journey has been unexpectedly up and down but also an amazing growing experience for both of us.
Good luck everyone and go #TeamPurple!
David Bint and Anne–Marie Cannon
Myself and two close friends completed the Action Peak District Challenge, a run covering 100 Kilometres (62.5 miles) 2450 metres of elevation (Ben Nevis is 1,354m). The route took us through a tough and varied figure of eight loop around Peak District National Park. With none of us having attempted a challenge anywhere near this distance, we were entering completely uncharted territory. However,18 hours 17 minutes and 41 seconds after departing Bakewell showground we crossed the finish line. Out of a field of over 600 runners, 508 completed the continuous challenge, we ended up finishing 68th.
My Mum and Uncle were diagnosed over 10 years ago and over this time I have watched how horrible multiple sclerosis (MS) can be. Over that time the treatments have got much better however the unpredictably of symptoms occurring has remained. When deciding to use this challenge to fundraise my first thought was to find a charity that helps people with MS.
Before this challenge I had never ran more than 15 miles. I had no idea how to train to run over 4 times that, and working away from home made training difficult at times. Before the challenge started I knew it was going to be more of a mental battle than a physical one, to mute that little voice telling you to give up.
Having completed the first 52Km with no major problems and feeling confident we headed off after grabbing some lunch feeling really optimistic. Almost immediately after setting off I hit my biggest obstacle. At the 54Km mark whilst descending a steep hill, I started to feel a shooting pain in my left knee, which as the miles went on got worse and worse. The pain and discomfort escalated and became a gruelling mental battle to carry on and at a prolonged slower pace. Dealing with the frustration of not being able to run and watching as people we had overtaken hours ago now overtaking us was hard to take, we had out worked them and a freak injury meant they were now in front. At the time it seemed very unfair. At that point I also felt a massive burden to the other two guys who could of carried on running. However later they too came up against their own injuries which together we worked through.
This was my first time fundraising. I have learnt a lot of lessons. Everything revolves around social media, get posts out often, start fundraising well in advance, Have information for how to donate on you at all times to give people, lots of times in conversation people expressed an interest in donating but I didn’t have the link at hand to give them.
I attempted this challenge predominantly for selfish reasons – I wanted to know if I could do it, if I could raise some money for a good cause at the same time that was a bonus. However the lessons I have learnt from the experience are far more than that of physical endurance.
The key take away lesson from this experience for me was that we always have more in the tank than we think, and it is often the support given from others which allowed us to see it. Me, Louis and Ryan were able to achieve as a collective something that would of been beyond us as individuals. And I think that really underpins the importance of the work done by charities like MS-UK, because that support really does make a monumental difference in what we can all achieve.
Get in touch! Call Lucy on 01206 226500 or email Lucy today.
Last year, MS-UK launched its first ever corporate fundraising challenge. Dubbed the 925 Challenge (only very slightly inspired by the Dolly Parton hit, ‘9 to 5’), we invited local businesses to try and raise at least £925 in nine weeks, two days and five hours.
It proved to be a huge success. Teams from Ellisons Solicitors, Charles Derby Financial Services, Harp Commercial Interiors, Whitehall Electrical, Team Pivotal, Push Energy, The White Hart, OPM Response and Direct Solutions, all entered into the spirit of healthy competition and let their creative side run wild on their quest to beat the countdown clock!
The 925 Challenge returns in September and this time it’s going national! We are on the hunt for ambitious companies from every corner of the country who want to gather work colleagues together for the ultimate test of teamwork and outside the box thinking.
There’s no right or wrong way in which teams can raise the golden £925. Plan to raise funds by sponsoring the construction of a giant pyramid of cards? Go for it. Fancy hosting a slinky race? A little strange, but be our guest. Whatever shape the masterplan takes, your fundraising efforts will inspire camaraderie, raise the public profile of your company and potentially bring your local community together.
The challenge is set to launch on Thursday 12 September 2019. Then, nine weeks, two days and five hours after the first second ticks over – Saturday 16 November to be precise - the countdown clocks will be stopped!
Which team will prove to be the most innovative or imaginative? Who can showcase what it means to be a true team? Prizes to answer these questions and more will be handed out at an awards evening held on Thursday 28 November.
On Sunday we had 30 people take on the ASICS London 10k in the bright and sunny London for MS-UK. Congratulations and thank you to all those that ran and came along to cheer and support, it goes so far in helping those affected by multiple sclerosis (MS) to live happier and healthier lives.
Part of our 30 racers was a running group from Berkshire, who was organised by a cherished long-term fundraiser who is affected by MS herself. Alongside many people who have taken part in the Asics London 10k previously, as they enjoyed it so much before!
Our team have been hosting their own events to help fundraise for this day, ranging from a gin tasting night, to a boot camp and even a rock and roll bingo night!
We had a very enthusiastic cheer point of volunteers who came along to support #TeamPurple at this event in London, most of who had either volunteered before or had taken part in our other events. We are so immensely grateful for this support and just can’t do these events without you, so we wanted to give a massive thank you!
Here is what Chris and Fran Setterfield, two of our amazing volunteers, had to say about the day…
'We love supporting our runners at the cheer points. Seeing the unexpected smiles on their faces when they suddenly hear their names being called out means so much to them! We know how important this is, having been at the receiving end!'
Deb Wald, who ran the race itself, said 'I’m so happy to have taken part and done it again for MS-UK, there’s a continuity with them that’s very motivating.'
Places are still available in the Royal Parks Half Marathon!
Email Jenny today to find out more or call us on 01206 226500!
With MS-UK being CBW’s Charity of the Year, we got a team together to do a 100 mile bike ride on Saturday 29 June (the hottest day of the year).
The ride was completed (by most) on Saturday.
After months of hard training (or days in my case!) the day was finally upon us. Turned out to be the hottest June day since the 70s. Temperatures predicted to be about 33°C. We had a team of seven colleagues and were joined by two clients as well.
Everyone had arrived by 7:00 ready for their bacon sandwich from Leman Café who kindly opened up just for us. Nine clueless individuals set off at 7:40am heading west in the general direction of Reading. Taking the cycle superhighway from the office to our first landmark, the Houses of Parliament. I looked at my watch tracking the distance and time and we had clocked up the first three miles. I thought to myself, this is easy. In jovial spirits we started to head out of the city passing Craven Cottage (the home of Fulham FC), through Chelsea and eventually crossing Putney Bridge. Seven miles down and no issues.
First Stop – Richmond Park (8:45am). First toilet and refreshment break. After the short stop we set off, with our sights set on the next part of the trip. The tunes went on. Listening to some classics such as Ebeneezer Goode, Rhythm is a Dancer etc. the team got in their Rhythm until the sat nav took us off road. We went wrong somehow, somewhere.
We followed the Thames path towards Hounslow. Things were going nice and smoothly setting a good pace along flat roads passing Heathrow, through Staines (we saw some great towns!) and on to Runnymede, our second stop. 22 miles down and the heat was increasing. It was 31°C and refreshments were needed.
Final Stop - The George pub, in the suburbs of Reading. The clock had clicked over 50 miles, we had finished the outward bound journey, completing it in 4:43 (riding time 4 hours) and it was time to stop for a well earned lunch. We dived straight in the pub asking for menus and it was quite an easy choice. Seven Ham, Egg and Chips, a Chicken Burger and the vegetarian option with nine cokes. Checking the thermometer in the pub garden, it was showing 38°C!!!
The finish line ended up being Westminster after a few wrong turns throughout the day had meant that 100 miles was clocked up before getting back to the office.
During the journey back we sadly had three people that had to drop out due to the heat and dehydration.
MS-UK has been very supportive during the build up to the ride and gave plenty of tips which really helped organising. At the end we raised just over £2,500. It was a great day with a great team. We are looking at our next ride soon (hopefully on a cooler day).
Every penny raised by Tijmen and his team at CBW helps us support even more people affected by multiple sclerosis (MS). Get in touch with the fundraising team today to find out more about getting involved!
On Friday 21 June we held our annual MS-UK Summer Ball with the theme of a Midsummer Night. Our games, entertainment from The Lisa Graham Duo, alongside our sensational auction and raffle produced donations that we couldn’t be more grateful for, truly signifying how much a success the night was.
We managed to raise a staggering £17,010! This will go so far in helping us support even more people affected by multiple sclerosis (MS), thank you so much to everyone who attended!
Over 140 of you came along, fromour trustees, clients, marathon runners, volunteers, networking groups to our community champions. We kick-started the night with an entertaining quiz, the heads and tails game that was themed appropriately with summer themed questions, of course.
Following some entertainment, the auction was on its way. With an outstanding ten prizes on offer generously donated by various companies and people, there was a lot to bid for. From an Anthony Joshua signed glove, a spa break for two at Champneys, Six Nations 2020 tickets to a private BBQ for 20 guests, there was huge variety! Similarly, our raffle prizes had the wow-factor to match. From the three course dinner for two, a Bose portable speaker, to the family portrait photo shoot, there was a lot to play for.
Certainly the prizes were astounding but the reason everyone attended was for a much more heart-warming reason. It was to help us raise thousands of pounds so we can be here now and in the future. With the support of so many amazing people at events like this, we are able to offer our vital services to more people living with MS.
Gregg Rice, an attendee of our Summer Ball said ‘I like to support MS-UK as my partner is affected by MS. I’ve run two marathons as I’ve felt it’s important to support what MS-UK do. Again, this was another fantastic night raising money for such a worthwhile charity, and I’ve felt truly humbled by the atmosphere there’.
We would like to warmly thank all those that donated prizes for our raffle and auction and to all those that attended to bid for them. You made it a very magical evening.
See you next year!
Jill Purcell, Fundraising Manager
This week is national Volunteers' Week and we are celebrating by saying a big thank you to our amazing volunteers. Last year over 130 people volunteered with MS-UK in all sorts of ways. Together you donated 500 hours of time to MS-UK and helped us be here for people affected by multiple sclerosis (MS). We literally couldn't do it without you, thank you!
This year we have lots of opportunities to get involved. You could join our fantastic cheer squad and support our fundraisers to make it over the finish line at a national event. Or you could come into our offices in Essex and get stuck in behind the scenes. We are also currently looking for volunteer counsellors to help us offer telephone counselling to more people who may need it across the UK.
Whatever you decide to do, we'll be here every step of the way to support you. You can share your skills and develop new ones, gain some experience working with a national charity and we provide you with a full induction and ongoing support.
In the mean time, you can find out more about Volunteers' Week across the country on the NCVO website. If you already support MS-UK, don't forget to download our Twibbon to show the world you are part of #TeamPurple.
Best wishes and happy volunteering!
Sarah Wright, General Manager
On Sunday March 23, more than four thousand people took to the streets of Colchester to be part of the towns’ biggest community sporting event the year, the Colchester Half Marathon.
The event is organised by a group of volunteers from Colchester Colne Round Table who work tirelessly throughout the year to stage this fantastic event. All the proceeds from the race are shared between local charities.
This year MS-UK were lucky enough to have been chosen as the main charity beneficiary for the event. Brain injury charity Headway Essex were the other charity partners. MS-UK worked closely with the organisers and recruited a team of over 100 volunteers and 50 runners to support the event.
Taking on a half marathon is brave enough, but not enough of a challenge for MS-UK’s long term supporter Clare Thompson and her running buddy Dave, who completed the course wearing an MS-UK branded purple tyre!
It was a great day, everyone had loads of fun and the Great British weather was exceptionally kind to us too.
This week MS-UK received a very handsome donation of £48,750 from the event. Jill Purcell, MS-UK’s Fundraising Manager said 'We are delighted to receive such a fantastic sum of money raised from the event. The amount is equivalent to MS-UK being able to provide specialised supervised exercise sessions to more than 50 clients for a whole year at Josephs Court, our wellness centre in Colchester. Thank you to the Colchester Half Marathon committee, and all runners and volunteers for their generous support. It is always a great event which significantly benefits the local community too'.
Every penny raised from the Colchester Half Marathon helps MS-UK support even more people affected by multiple sclerosis (MS), by raising awareness of the condition and offering services like our helpline, MS-UK Counselling and New Pathways magazine.
Thank you so much to all involved and our amazing #TeamPurple runners!
We can't quite believe it but we have just seen another Virgin Money London Marathon take place and it was amazing to see so many #TeamPurple runners taking on the challenge in aid of MS-UK! Thank you to every single person who made the day so special.
Now we're looking to next year and the date has been announced - 26 April 2020! The ballot for the Virgin Money London Marathon is now open, so visit the website to register today! It will close this Friday at 5pm, 03 May.
Good luck everyone!
I started supporting MS-UK in 2014 when my running buddy and I decided to participate in a running challenge of three marathons in three weeks, with London being the finale of the trio. Having missed out on the ballot we were given the chance of a place with MS-UK, which was a good fit because I’ve had relapsing-remitting multiple sclerosis since my late 30s. I was immediately hooked and have been fundraising for the last five years now. I’ve raised a total of £16,372.20 so far!
This year will be my fifth marathon, all of which were charity bond places with MS-UK. Each marathon has been special in its own way; two have been with my buddy Debbie Germain, one was with my husband, last year I ran with my daughter and this year I will be by myself. The trio of marathons was an epic challenge though and a very proud moment.
Without a doubt the end of the race is very special, you are treated like a superstar by the charity and they look after you as though you have just won the gold medal.
When it’s come to raising the funds for each race I’ve organised lots of different events. I have done a quiz night a few times, various raffles, I had race entries donated for me to auction, as well as a private run coaching session with Shane Benzie.
I organise a yearly Halloween and Christmas 5k night run around Greenham Common Air Base, a fantastic spectacle of lights moving around the Common in the pitch black with medals, hot soup or mulled wine at the end.
I have a Rock and Roll Bingo evening next month where you have to guess snippets of songs and cross off bingo numbers, which should be fun.
One of my more notorious fundraisers was with my buddy Debbie. We produced a Naked Runners Calendar, with 12 of our male running friends all tastefully photographed by our photographer friend, they all have appropriately placed props of course! The calendar sold for £10 and proved to be very popular.
I’d definitely encourage anyone who’s been thinking about supporting MS-UK to give them a call. They will support you just as much as you support them.