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Our Christmas opening hours...

Posted on: December 14 2018

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Holidays are coming, so here's an update about our opening hours over the next few weeks...

Our office

The MS-UK office will be closed from 5pm on Friday 21 December until 9am on Wednesday 02 January 2019.

Josephs Court

Josephs Court, our Wellness Centre, will be open during these times:

  • Saturday 22 December 2018, 9am - 3pm
  • Thursday 27 December 2018, 10am - 2pm

Josephs Court will then reopen at 9am on Wednesday 02 January 2019.

From all of us at MS-UK, we wish you a very merry Christmas if you are celebrating and a happy New Year!

Want to access counselling but worried about the assessment process?

Posted on: November 19 2018

Louise Willis crop_0.jpgMS-UK Counsellor, Louise Willis reveals what you can expect from MS-UK Counselling...

Multiple Sclerosis (MS) can present many physical challenges and some can be identified and treated by the medical profession, but what about the hidden emotional and mental challenges that can be faced?

MS affects around 110,000 people in the UK. Each person affected has a different life story, an individual set of beliefs and values, and ultimately a different way of dealing with diagnosis and the changes that MS can bring. There is no right or wrong way forward, but sometimes some extra support can be invaluable at any stage of MS. From diagnosis to new changes and developments, MS-UK counsellors are here for you every step of the way.

What should I expect from the assessment?

One of our trained counsellors will call you at a time that is suitable for you. We ask that you are alone at this time and in a quiet, confidential place and that you are comfortable as the call can take between 30 and 45 minutes. If you are unable to answer the call straight away, we will always ring back around 5 minutes later.

Is counselling confidential?

Yes, counselling is a safe and non-judgmental space for you to talk about any worries you might have about any aspect of your experience with MS. Any information we take down is kept on our encrypted servers here at MS-UK and is not passed on to any third parties unless you ask us to.

We will only break confidentiality in the event of a safeguarding issue which would mean any form of harm to either you or someone else.

What will I be asked?

We will ask you about what is bringing you to seek counselling and about any mental health issues you may have. We will also ask you what times and days are best for you for your counselling sessions. They will be at the same time and day each week for six weeks.

What happens if I can’t make a session?

If you are unable to make one of your sessions, let us know as soon as you find out and we can reschedule. However, if this is within 24 hours of the session you may forfeit the session as all of our counsellors are booked in advance.

How do I sign up?

Simply go to our website, call our helpline on 0800 783 0518 or ask your MS Nurse to contact us on your behalf.

Next Steps…

After your assessment we will pop a counselling contract in the post, or send it via email for you to sign ready to speak to one of our specially trained MS counsellors.

We look forward to meeting you!

Guest blog: My year living with multiple sclerosis

Posted on: November 19 2018

In his latest guest blog, Tom Cutts tells us about life with MS since being diagnosed a year ago...Photo of Tom Cutts

A year, wow, how time flies. At the time of writing this it’s exactly a year since I was diagnosed with multiple sclerosis (MS). Before that day I had no idea what MS was. Now all I think about is MS. Instead of thinking about what I want to do in 3 years time I’m now planning what I can do in 3 hours time. Every day is a different day. On a Saturday night I’m looking forward to my run in the morning and pumped up ready to go…then the morning comes. It’s Sunday. I’m struggling. Time to change my plans.

That is one of the things I’ve learnt most about MS. I’ve always made plans months in advance let alone weeks, but now I look at this in a new light. At first if I missed a plan I would sink to a new level, I felt like MS was controlling my life, I felt that it was the end of the world. Now I look at it and even though I’m still upset, I remember it’s only one day, they’ll be others I can attend. If you have amazing friends like I do then they’ll understand, as long as you let them. This brings me on nicely to what else I’ve learnt.

Talking. Talking about my MS, my depression, my everything is possibly the best thing I’ve learnt since being diagnosed. You shouldn’t have to bottle up what’s inside, it’s scary telling people but how else can someone help you? I’m not afraid to say that I had counselling. I’m not afraid to say I went home and cried after some sessions. I’m not afraid to say it is one of the things that’s helped me the most. It gave me the confidence to speak to my family, my friends, my girlfriend. It’s why I’m happy to be so public about everything I’ve been and am going through! Because of this they all understand what’s happening with me. MS doesn’t just affect the sufferer. I know that people have cried over my diagnosis and the affect it’s had on me, but I also know that being open and approachable about it has helped them. If I had to give one piece of advice to anyone suffering with something it would be to talk about it.

Do you have something you love to do? Love to see? For me fitness is the one thing I love to do. I may complain about running on a cold Tuesday night in Swindon, or a rainy Colchester morning, but once I’m out there I love it. Ok I lie (don’t judge me) but I love to read too. This year I’ve read over 30 books and they’re not just tiny books either! Escaping in to another world, furthering my knowledge in something, allowing myself to become fully immersed in a book has helped me through this year. Find something you love to do. Find something you want to love to do. Hobbies, interests, whatever it is, give it your all and you’ll appreciate it afterwards.

A year on and I still don’t really know what MS is. Does anyone?! I ask numerous silly questions multiple times and I will carry on doing this for as long as I live! One year down and hopefully many, many more to come. I’ll get there one day, maybe come back and ask again next year?!

Remain positive.

Tom

Find out more about MS-UK Counselling

MS-UK Counselling is a confidential service open to anyone living with MS. You can talk about your thoughts and feelings with a qualified professional that also has an understanding of MS. 

Visit our web page for more information

Listen... 3 stress-busting podcasts to help you unclutter your mind

Posted on: November 07 2018

07 November 2018

Everyone experiences stress in one way or another. It can affect you both physically and mentally, making you feel anxious and impatient. But stress doesn't have to dominate your daily routine.

To mark Stress Awareness Day 2018, we are giving you the opportunity to learn how to focus your mind with a series of stress-busting podcasts hosted by mindfulness coach Zoe Flint. Each step-by-step guide is designed to give you the tools you need to de-cutter your thoughts, focus on the present, and ultimately reduce your stress levels.

Want to get involved in the conversation? You can follow all the talk about Stress Awareness Day by searching for and using the hashtag #StressAwarenessDay on Twitter and Facebook.

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Our Annual Review is out now...

Posted on: October 18 2018

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Read our Annual Review 2017

Hello,

I am delighted to say that our Annual Review 2017 is now published. This booklet is our way to thank our supporters and celebrate our success in a public way, and I hope you enjoy reading it.

Our vision is a world where anyone affected by multiple sclerosis (MS) can access the information and support they need to make their own decisions. Since 1993 we have led the way in promoting choice, tackling taboos and remaining independently funded. We are built on a foundation of listening and acting according to the needs of people affected by MS. I am thrilled to see that this is reflected in our work from last year. 

We are driven by our values, guiding principles that inform every aspect of our work. In 2017 we were able to bring these values to life, and our services supported thousands of people. Every service is shaped by people affected by MS. By listening to people, we are able to offer services that are truly community led.

Thank you to every single person who has shared their voice with MS-UK or supported us so on our journey so far.

Our work would not be possible without the support of so many people. 

Best wishes,

Amy

CEO, MS-UK

It is World Mental Health Day

Posted on: October 10 2018

Photo of Diana from MS-UKHello,

It’s World Mental Health Day, an annual day to highlight the importance of looking after your mental wellbeing that is recognised by the World Health Organisation.

To recognise the day, the Prime Minister Theresa May has appointed a minister for suicide prevention. Jackie Doyle-Price will add this to her role as Health Minister to help tackle the stigma surrounding suicide.

Here at MS-UK, we have been told that when it comes to living with multiple sclerosis (MS) the mind is often overlooked. That’s why this time last year we launched MS-UK Counselling, a confidential telephone counselling service for people with a diagnosis of MS.

I wanted to let you know a bit more about it, as it is World Mental Health Day. The only service of its kind, MS-UK Counselling is focused on helping people with MS explore the emotional impact of living with this condition.

It is very common for people to struggle with coming to terms with a diagnosis or dealing with the uncertainty of how their condition may progress. For some, MS-specific counselling is crucial in supporting them to come to terms with their condition, understand their feelings and live positively with MS.

So if you are thinking about your mental health today with all the media attention on World Mental Health Day, do visit our web page to find out more about MS-UK Counselling. Our team of counsellors are here to help and support you,

Best wishes,

Diana

Head of Services

MS Awareness Week 2018 - Thanks for your support

Posted on: April 27 2018

6 steps graphic for social media (1)_1.pngMS Awareness Week 2018 is drawing to a close – thank you so much for all your support!

Over the past few days our supporters have been making their voices heard and spreading the word of our newest national service, MS-UK Counselling.

We at MS-UK would like to thank everyone who championed our message that it’s ‘good to talk’ by sharing our posts on Facebook and Twitter, reading our blog, and opening up about life with multiple sclerosis (MS).

With your help, counsellors like Jonathan hope to be able to reach out to as many people across the UK affected by MS.

Find out more about MS-UK Counselling on our website, contact the team by email or give us a call on 01206 226500.

MS Awareness Week 2018 - Counsellor Jonathan's Story

Posted on: April 26 2018

As the old saying goes: 'A problem shared is a problem halved'.

We at MS-UK are inclined to agree. This year, inspired by the recent launch of our MS-UK Counselling service and MS Awareness Week 2018, we're praising the power of talk. We believe that the simple act of opening up to someone who'll listen can have a hugely beneficial impact on a person's wellbeing and quality of life.

We sat down with MS-UK counsellor Jonathan who told us what he finds most rewarding about being able to lend an ear to those in the MS community.

MS-UK supports the next generation of occupational therapy students

Posted on: April 05 2018

MS-UK’s Head of Services Diana Crowe and Centre Manager Dean Jeffreys inspire The University of Essex occupational therapy students

MS-UK’s Wellness Centre, Josephs Court works closely with the University of Essex to support occupational therapy students (OTS) by providing role-emerging placements while they train. 

Each year the Josephs Court team is invited to speak at a symposium with the new OT recruits about role-emerging placements at its Wellness Centre in Colchester, Essex and increase their knowledge of multiple sclerosis (MS). 

Diana Crowe, Head of Services, said: ‘We took the opportunity to promote all of our services, but focused on what we deliver at Josephs Court, such as the exercise equipment and the benefits this brings to clients.’

‘There was good interaction and we were asked about the social activities we provide, so we discussed the MS-UK Social Group in Colchester, which has regular coffee mornings and other events such as bingo!’

‘Due to recent headline news regarding HSTC there was an interest in how this treatment could impact on us as a charity and our clients. Just like everyone else we will have to wait and see how the treatment develops, but we will continue to support people with MS for as long as they need us.’

‘We split into groups, which gave us a chance to speak in more detail with some of the students,’ explains Dean Jeffreys, Centre Manager. ‘The students were interested to know about APS Therapy, how we link up with other services and how politics impacts on our strategy.’

Speakers from St Helena’s Hospice spoke about its gardening project for those at the end of life and Craig, from Pots the Soldier, spoke about his post-traumatic stress diagnosis after leaving the army and how he found a love of pottery thanks to the support of OTs – very inspirational!

‘It was great to see the students so interested in the work MS-UK does and we hope to continue to work with Essex University over the coming years. Who knows one day we may have our own MS-UK Occupational Therapist,’ adds Diana.

 

Counselling survey - have your say!

Posted on: January 09 2017

diana.jpgHi everyone,

As you may know, MS-UK is planning to launch a new counselling service in 2017.

But we need your help!

With your feedback, we hope to make it as relevant as possible for people affected by multiple sclerosis. So, we’re asking you to take a short service to help us shape this service for the future.

Take the survey now online

It’s important that we learn about what has and hasn’t worked for people in the past and what it is that people with MS really need.

Thank you for your help!

Best wishes,

Diana

Diana Baxter

Head of Service

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