I just wanted to wish you, on behalf of myself and the whole team here at MS-UK, a very Merry Christmas and a Happy New Year.
This year we have been proud to commemorate our 25th anniversary of supporting people affected by multiple sclerosis.
We have seen our newest service, MS-UK Counselling, grow rapidly as more and more people seek confidential counselling that is grounded in a knowledge of living life with MS.
Our helpline has answered thousands of enquiries and our Choices leaflets have been downloaded over 70,000 times from our website. We now have over 20 different titles, encompassing a wide range of topics, from diet and nutrition through to complementary therapies.
Our magazine, New Pathways, landed on doormats every other month, connecting thousands of people with the wider MS community. And our wellness centre, Josephs Court, has extended its range of complementary therapies and social activities to better support people affected by MS in our local community.
Next year, we will be launching our new strategy. Until then, thank you for your support in 2018. We couldn’t have done it without you.
Amy Woolf, CEO
‘Our sister and cousin, Nicola, 48 year old mother of three, was diagnosed with multiple sclerosis (MS) in 2017.
‘Obviously such a diagnosis came as a shock to us all. From the beginning the support she has received from MS-UK has been tremendous. It gave her a forum to discuss her fears and engage with people who also have MS. In turn, it continues to give her strength and courage and is empowering her to live her life to the fullest.
‘Through Nicola we heard about the MS-UK sponsored places at the Royal Parks Half Marathon and as runners, it was an obvious way for us to give back, do an activity that we love, make a difference...all in all, a win-win situation.
‘Out the outset, as busy people, we wanted to keep our fundraising efforts simple to achieve our target of £800.
‘We canvassed family for their suggestions on how best to raise the money and the consensus was very much in favour of fundraising activities rather than just donations. This enabled us to bring our family and friends together and the desire to have some fun along the way!
‘We agreed our two events would be a garden tea party and a quiz to make the most of the lovely summer we had this year. Both activities exceeded our expectations – you can see we raised an amazing amount on our fundraising page!
‘The key challenge for us was to ensure that our guests at both events went away feeling they had an enjoyable experience and the £10 fee was good value. Feedback from both events exceeded our expectations, with suggestions we should set up our own afternoon tea business and turn the quiz into an annual event.
‘We smashed our target and raised approximately £1,200, which enabled us to spend the latter two months focusing on training for the race.
‘Both of us came away from this experience feeling a sense of pride in achieving some personal physical targets (we both set a new personal best) and in our own small way we have made a difference.
‘So what’s next? We are delighted to be volunteer stewards for the upcoming Colchester Half Marathon and looking to engage as many family members. Maybe we will see you there!
Karen and Maxine
I am thrilled to share a sneak peak into the latest issue of New Pathways magazine, which is out now!
Our cover star this issue is MSer and HR Specialist Rebecca Armstrong, who discusses being your own boss and taking a step into self-employment on page 16.
On page 24-25, wellness coach and Director of Work.Live.Thrive Zoe Flint discusses how relaxation can help boost your immune and central nervous systems. This feature all about mindfulness for MS shares Zoe's insights and her top 5 things to get your started.
Also, MSer and Feature Writer Ian Cook reveals his first-hand experience of becoming a carer. Ian says, 'It may sound strange to say this but I believe being disabled is, in many ways, the perfect qualification to care for another disabled person.' Read the full article on page 12, and don't forget to check out his 'revisited' article on page 42 all about Shopmobility.
Fats have once again been dominating the news of late, so we asked MSer and Nutritional Science Researcher Sharon Peck to reveal the truth and explain what we really need to know on page 19. We also take a look at the natural remedies lurking in the back of your kitchen cupboard that could help relieve MS symptoms on page 18.
If you would like to see something specific in New Pathways please email me and let me know your thoughts or feedback.
Editor, New Pathways
This weekend our amazing #TeamPurple runners will be taking on the challenge of the Royal Parks Half Marathon - good luck!
The event kicks off at 9am on Sunday 14 October and is set in four of London's Royal Parks: Hyde Park, The Green Park, St James's Park and Kensington Gardens. It is the perfect autumnal tour of central London’s most exquisite outdoor spaces, and we can't wait to cheer everyone on!
If you can't make the event but want to stay updated, you can follow @MSUK6 on Twitter and enjoy the action in real time!
Good luck from all of us here at MS-UK, your efforts mean we can support people affected by multiple sclerosis to really make the most of each day - thank you!
Fancy being in with a chance of winning a £25 Debenhams gift card?
This weekend is the last chance to make sure your voice is heard in our supporter survey - so please do let us know what you think by taking our survey! The survey closes on Monday 24 September 2018.
The prize draw will be on Tuesday 25 September, so by next weekend you could be going shopping!
Good luck, and thank you for giving us your feedback, it really does help us plan for the future,
Fundraising Manager, MS-UK
In our latest guest blog, Rossia Mockett tells us how she's turned a love of sewing into a 'stich-perfect' way of supporting MS-UK!
My eldest son was diagnosed with multiple sclerosis (MS) in 2015, it came as a shock for him and for us as a family, then came the emotions and dealing with the diagnosis which wasn’t easy for any of us. As time went on we searched on the official MS charity websites (including MS-UK) which were helpful to us in gaining a better understanding of MS and some of the difficulties that come alongside living with MS. We found it helpful to be able to read the stories of others and to be able to know that our son was not alone in what he was going through.
This year I decided that I wanted to raise money for three main multiple sclerosis charities, one of them being MS-UK. I love sewing, so earlier this year I launched my business, New Barn Crafts on Etsy. I then applied to craft fairs and took my handmade items along to them, taking with me my MS-UK collecting boxes and literature. This has been successful because people could purchase an item from my stall or donate to one of the three MS charities of their choice. On some occasions they do both! I’ve really enjoyed doing the craft fairs as I’ve met some wonderful people and had some great conversations about their loved ones, family members, or friends who are living with MS. I have so far raised enough money for a Pin for Pounds badge which I am thrilled with!
Where possible I think that it’s important that others try to get involved and help raise money for such a great cause! It’s given me great pleasure that, even doing something as small as this, you can make a difference. If I can do it anyone can do their bit to raise money for an amazing charity such as MS-UK. As we come to the end of the summer, and the craft fairs are finishing up, I look forward to developing my Etsy shop and New Barn Crafts Facebook page further and get some sewing completed for next year’s forthcoming events.
Want to get your hands on a limited edition, 25th Anniversary MS-UK pin badge?
I am delighted to say that on Thursday 06 September we officially launched our 925 Challenge at Colchester Golf Club!
The 925 Challenge will see 11 teams from local businesses go head-to-head in our very first corporate fundraising challenge, during which time they have 9 weeks, 2 days and 5 hours to raise £925 for MS-UK!
The challengers taking part include teams from Ellisons Solicitors, Charles Derby Financial Services Ltd., Harp Commercial Interiors Ltd., Whitehall Electrical Ltd., Team Pivotal, Push Energy, The White Hart, OPM Response Ltd., Direct Solutions and BeagrieCo Ltd.
The 925 Challenge is the charity’s first ever corporate challenge as part of our 25th anniversary celebrations, and I am so delighted we kicked off in style. You can check out the photos from the launch event in our Facebook album.
Thank you to every business taking part, we can't wait for the games to begin!
Jill Purcell, Fundraising Manager, MS-UK
This issue of New Pathways magazine is jam packed full of a variety of news, features and real life stories. Start your read by catching up on all the latest developments in MS on pages 4-10. Then why not discover nine anti-inflammatory foods that could benefit your diet and MS on page 34.
Next we take a look at how a condition that predominantly affects women, actually impacts men on page 12. And on pages 30 and 32 MSer and feature writer Ian Cook revisits Access to Work and gives electric wheelchairs a spin.
Stem cells research and personal stories are still dominating the news, so we thought we would produce an update on this ever popular treatment option on page 24.
Also in this issue, MSer and HR Specialist Rebecca Armstrong explains how to get the best out of occupational health on page 16, we take a look at the therapeutic benefits of horse therapy on page 18, and Rosalind Barton reveals the highlights of her surprisingly accessible trip to Singapore.
Editor, New Pathways
Yesterday we had a huge team of 55 taking on the iconic Prudential RideLondon for MS-UK. The weather conditions were not the best and our cyclists were certainly challenged by the elements! They had to deal with constant rain, which affected visibility and high winds which turned the rain horizontal. The rain brought up muck on the roads, and one of our team members endured 6 punctures along the course! But they all completed the event with determination and a smile on their faces. During this 100 mile cycle event, cyclists whizzed past the iconic sights of London and took on the world-famous zig-zags of Box Hill.
I would like to say a huge thank you to #TeamPurple for taking on this ultimate cycle challenge, and for working so hard training and fundraising – especially in the hot conditions the UK has been experiencing recently. So far as a team you have raised a whopping £21,656! MS-UK are so thankful for this amazing effort...it means we can support even more people affected by multiple sclerosis (MS) and make sure we’re here to listen and offer information when we’re needed.
As always, we can never do these events without our trusty volunteers! From cheering to handing out snacks, you were amazing at supporting our cyclists on the day, and you never seem to run out of that #TeamPurple energy and spirit - even in the pouring rain! If you fancy being part of the cheer squad, we would love your help supporting #TeamPurple at our events – just visit our website for more info.
If this has inspired you to cycle the Prudential RideLondon for MS-UK, please do get in touch with me as recruitment for the 2019 team will be open shortly! Just email me or give me a call on 01206 226500.
Thank you again to everyone involved – you make our work possible!
This year is very special for MS-UK as we celebrate our 25th anniversary of supporting people affected by multiple sclerosis! So, how can you get involved? Well, you could be the proud owner of one of our limited edition anniversary pin badges! In 2018, we have a limited edition 25th anniversary pin badge especially for anyone who raises or donates £25 or more in aid of MS-UK! Whether you love getting active or prefer a cuppa and cake, fundraising for MS-UK is as much fun as you make it! Ways to support MS-UK…
Whatever you decide to do, we’re here to support you all the way. Contact the fundraising team using our online form. And good luck!
Jill Purcell, Fundraising Manager