Today marks the beginning of Expo, four days of fun-filled excitment at ExCeL in London where runners taking on the Virgin Money London Marathon will be registering this week!
Every year over 100 runners run 26.2 miles in aid of MS-UK, raising thousands of pounds for us. Over 100,000 people in the UK live with multiple sclerosis, and we want to be able to provide our vital services to everyone who needs them, so every single penny they raise goes towards helping MS-UK continue our work.
The MS-UK fundraising team is ready to welcome #TeamPurple to Expo this week, so if you're coming along please say hi to us on stand 583!
Wednesday 18 April 11:00-20:00
Thursday 19 April 10:00-20:00
Friday 20 April 10:00-20:00
Saturday 21 April 09:00-17:00
We'll be live tweeting all week from Expo (and of course on marathon day itself this Sunday) so follow us on Twitter to stay updated!
Jill Purcell, Fundraising Manager
This time next week MS-UK will be celebrating MS Awareness Week, and you can join us!
This year we are spreading the word about our newest national service, MS-UK Counselling. I would love you to get involved by downloading our Twitter and Facebook graphics...by adding them to your profiles you will be helping us reach even more people affected by multiple sclerosis who may benefit from counselling.
Right click on these images and select 'Save image as...' to download them to your computer:
Thank you for your help!
When I was eight years old I remember joining thousands of other people lining the streets of London, waving and cheering as streams of people ran past. At the time I didn't really understand the enormity of what those people were doing, running mile after mile, some fast, some slow, some walking but all in the aim of completing 26.2 miles. Amongst those people was my Dad.
Fast forward a few years and my Dad had to take every ounce of energy he had and a hell of a lot of drugs to pull himself out of his wheelchair and slowly holding tight on to me, walk a few steps down the aisle of a church on my wedding day. He had been diagnosed with multiple sclerosis (MS) the year before and had his world turned upside down. From being fit and healthy, in the Police to being forced to take early retirement and a complete change of life.
For years after I watched my Dad, I would watch the marathon on TV every year saying to myself 'one day', and since taking up running the itch has needed scratching so I decided the year I turned 40 to make my bucket list dream happen to take part in the most amazing marathon in the world.
As soon as I heard I'd been accepted to run for MS-UK I set the wheels in motion for my fundraising, looking at where I could start generating easy money with little effort whilst I planned a big fundraiser. Sponsorship started coming in as soon as I announced my challenge and as a Slimming World Consultant I have had amazing support from my members for my fundraising. I have a change pot in group and my members along with other groups in Chelmsford, Essex agreed for the next few months to have these for MS-UK. Everyone's odd 5ps, 10ps are really adding up to over £50 a month donated this way. Again members supported through donating their slimmed out of clothes which were swapped for cash and a Christmas raffle in my groups raised £284.
Michelle who runs Chelmer RoadRunners, a local running group which is where I first learned to run completing a couch to 5km course, sings in a local band and I approached her to sing at a charity night I was planning. Seen as she got me into the mess in the first place it seemed fitting to have her at the event! A local pub was the venue (free hire to maximise funds raised!) and with the fabulous entertainment, a raffle to be held. After hundreds of letters, emails and approaching local companies I managed to secure some great donated prizes and started selling raffle tickets to people who couldn't make the night, again to ensure I raised as much as possible. Promotion of the event went out on social media, posters up locally and great support from local papers - three have now printed my story to help further support!
The charity night went well, everyone had a fantastic time and most importantly a brilliant £1,186.06 was raised to bring my total fundraising over my initial aim of £2,500 - but I'm not stopping there - a sweepstake planned, further change pots and sponsorship will hopefully bring the total to £3,000, or more! Every penny will help MS-UK give amazing support to people like my Dad.
So now, the countdown is on till the big day itself where I shall be so proud to be running the same streets that my Dad did in 1986 (but not accepting his challenge of beating his time of 3 hours 35 minutes!)
My name is Rosie and I am in my second year of university, I am studying Politics at Leeds. I grew up in a very active family where Mum and Dad encouraged us to play team sports at school, took us on regular skiing holidays and liked us to push ourselves. Although not as athletically blessed as my brothers, I still took part and enjoyed every moment.
Upon arriving at university, hours spent doing physical activity dramatically dropped and by the end of my first year I knew I needed a challenge to get me going again. The Virgin Money London Marathon had always been on my agenda having watched my Mum train and run both London and New York for MS as a child and then more recently witnessed my older brother complete it. My Mum ran for multiple sclerosis for her brother who has lived with the disease for almost two decades…hence why MS-UK seemed an obvious choice for me! So one day as procrastination from some university work, I entered the ballot and applied to a couple of charities that were close to my heart, not really thinking anything would come of it. A couple of weeks later I received a call from Jenny who offered me a place for MS-UK, and I accepted it…and that is how I am here lining up to run the London Marathon!
Upon returning to university, I started my training plan…let me tell you nothing sorts out a hangover like a 5mile run in the cold! All was going well until the end of October when I started to get this searing pain in my foot every time I put it down, having ignored it for a while my friends dragged me to A&E and I heard every runners worse nightmare…you have a stress fracture. So I dutifully spent the next 7 weeks in a moonboot, doing very little and followed the doctor’s advice to the T as I returned to running. I am now well back on track, although I have to take it a little steadier than I would like, I have completed a half marathon in 2 and a half hours. I have three more long runs till the big day and the excitement is building with each week!
Finally, fundraising is going well! I have had some very generous donations from friends and family. My first sponsorship push was to write to all my Mum and Dad's suppliers and ask for donations, and golly were they charitable! Its been a busy couple of months juggling training, fundraising, university, eventing, working and maintaining some sort of social life but I wouldn’t have life any other way!
Thank you to everyone who has supported me and hopefully see you the other side of the finish line!
April is always an exciting month for us here at MS-UK as we mark MS Awareness Week, and 2018 is no different!
This year we are celebrating our newest national service, MS-UK Counselling. We launched the pilot of this service in October 2017 and since then have delivered over 150 telephone counselling sessions to people with a diagnosis of multiple sclerosis. But we want to help even more people!
At MS-UK, we believe that it’s good to talk. However, we know that there can still be a stigma around accessing counselling, and we want to break down these barriers so people diagnosed with multiple sclerosis can get the support they need.
So, this MS Awareness Week I ask you to help us spread the message that it’s good to talk! Throughout the week of 23 – 27 April we will be posting on Facebook and Twitter all about MS-UK Counselling, and it would be great if you could help us spread the word by retweeting or sharing our posts. Thank you!
Keep an eye on our blog for updates as we near the big week...
On Sunday 25 March, nearly 3,000 runners took to the streets of Colchester in Essex to complete the Colchester Half Marathon. The day promised an ‘amazing mass-participation event bringing together local runners, businesses and the community’. It didn’t disappoint. With lots of excitement the runners set off at 9am sharp!
Taking part in the race and running especially for MS-UK were occupational therapy masters students from the University of Essex, Tess, Claire and Lauren. Lauren and Claire both have personal experience with multiple sclerosis (MS).
Commenting before the race, Claire said: ‘My neighbour was diagnosed three years ago and it has driven me to fundraise for this charity, I know it will make him proud.’
Neil Dulieu, a Teaching Assistant at Mersea Island School, has been running semi-seriously for around five years. His wife Amanda has secondary progressive MS and he took part in this year’s Colchester Half Marathon as part of his bigger fundraising plans.
Neil explained: ‘At the end of last year I decided I really wanted to set myself a challenge for 2018 to raise money for MS. 2018km in 2018 just came to me one night, the numbers worked well, it equated to averaging a full marathon distance every week and meant I could start on 1st January and incredibly finish the challenge on my birthday, 1st December. I tend to run most days before or after school and then often run the Colchester or Mersea Park Runs on a Saturday morning to finish my week off (with one rest day on a Sunday).’
The chosen charity partners for this year’s Colchester Half Marathon were Essex & Herts Air Ambulance who will receive 75% of the proceeds and MS-UK who will receive 25%.
Jill Purcell, Fundraising Manager from MS-UK said: ‘It was great to see the turn out on Sunday and the atmosphere was buzzing. We had Myles the MS-UK mascot dancing away and spurring everyone on, as well as volunteers at water stations, marshalling and in the stadium supporting all of the runners.
‘We at MS-UK are so proud of everyone who took part and would like to thank you all for your time, dedication and effort in raising money for people with MS. The charity relies on the generous support of our fundraisers to make our work possible, and we’re delighted that we’ll be able to continue supporting people affected by multiple sclerosis.’
To see all of the great pictures taken on the day, visit the MS-UK Facebook page. Don’t forget to ‘like’ and ‘follow’ our page while you’re there!
Because we can. That’s why we run…for those that can’t. Multiple sclerosis (MS) has had a great impact on both our families. Fran’s cousin has suffered very badly for over 30 years but was only diagnosed 8 years ago, and is now effectively immobile. It’s heartbreaking to see her this way. My mum was diagnosed in 2016. We are still coming to terms with her reducing mobility; as each month passes that little bit more is taken away from her. My parents sold their lovely home last summer, which they so dearly loved, and have moved into a new home much more suitable to her needs, and without stairs! My cousin, at 38, was also diagnosed at the same time. So we took the decision to do something special and to raise funds towards helping out those close to our hearts, and many others, inflicted by this horrible disease.
We always say we’d do one. And kept saying it for years and years. Now, well past our prime and in our naughty forties, the marathon word finally became reality. No more excuses; it was time to make some serious cash for an MS charity. Fran had already secretly entered both of us into the Virgin Money London Marathon 2017 ballot, and the first I knew about it was when ‘a lucky you’ package came through the post congratulating me on my place. First time of asking as well! So with my place confirmed, MS-UK kindly gave a Gold Bond place to Fran with the plan being to run together and raise money to help those with MS. We did all sorts to raise funds including charity bucket collections, bake-offs, sweep stakes and organising quiz nights. We had fantastic support from family and friends via donations to our charity page, and as we requested, many gave a donation in lieu of our birthday and Christmas presents. Our son even asked for the same - top lad!
Training was ‘interesting’ and certainly much more time consuming and hard going than we ever predicted. The MS-UK Marathon Facebook page was so useful for tips and encouragement. It was inspiring to see how others were tackling the same challenges, supporting and encouraging each other daily. It was also, oddly enough, quite comforting to see that others found it hard going too…we weren’t alone!
The Big Day
For those of you that have already run it, you will already know the crowds are just amazing; the shouts of constant support really hits you. Literally every mile is packed with people spurring you on. You certainly won’t need those motivating iPod beats that accompanied you on your training routes, and besides, you won’t be able to hear it! The buzz and the relief you get from crossing that line makes all that hard work worth it. The time doesn’t matter, it really doesn’t. Who cares? The achievement; that’s what counts! Ride that wave, and you may even find you go faster than you planned. Fran managed a brilliant ‘Good for Age Time’, which meant…
…automatic entry next year! Wouldn’t waste that now. So despite saying we’d only run one, we are now doing it together all over again in 2018, and again for this wonderful charity. However, one massive difference stands out this time round: the weather. We had it great training up to and on the day for the London marathon in 2017; this time round it has been so pants!!! But that’ll make this years that little bit more special.
Another? Best ask us after we cross that line. Personally, I fancy a sponsored pub crawl!
You can find out more and sponsor this amazing couple on their fundraising page. Good luck guys!
This year MS-UK is commemorating 25 years of supporting people affected by multiple sclerosis, and I have a fun, easy way for you to show your support and get involved!
Just add our Twibbon to your Facebook or Twitter profile picture and help us celebrate our 25th anniversary!
There are lots of other ways to support us as well, just visit our website to find out more.
Jill Purcell, Fundraising Manager
Well our first make a smile lottery draw has taken place, and here’s the results for Friday 02 March…
Jill Purcell, Fundraising Manager
Hello, The Colchester Half Marathon will be taking place on Sunday 25 March and MS-UK has been chosen as one of the charities to benefit from the funds raised from the event! We are really excited to be part of the big day, and I would like to invite you to join us! You could volunteer to be a marshal, help us cheer our hearts out at our water station or come along to Weston Homes Community Stadium to greet runners with a smile and good luck before the race begins. It is a truly brilliant day, and cheering on #TeamPurple is really rewarding.
Ben, who volunteered with MS-UK at last year's Colchester Half Marathon, says... ‘I have been volunteering at events with MS-UK for a while, but Colchester Half Marathon is right on my doorstep so last year I joined the MS-UK team who set up at the water station at mile 11. The atmosphere was buzzing! The runners really need a final boost near the end of the race, and I felt really proud to be part of the MS-UK cheer squad who gave them that – many runners also gave us a round of applause, which was brilliant!’
So if you, your friends and family want be part of a day to remember please get in touch! You can email Catherine or call us on 01206 226500. Here's to another fantastic event on our doorstep! Jill Jill Purcell, Fundraising Manager