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Taking it all in at the MS Trust conference

Posted on: November 14 2017

Hi everyone,

On Monday 13 November Nileema (our Counselling Coordinator) and myself went along to the MS Trust conference in Hinckley, Leicester!

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The MS Trust is a UK charity that produce multiple sclerosis (MS) information and support MS specialist health professionals. This year they celebrated their 21st annual conference, welcoming some 300 guests to learn, share expertise and focus on improving care for people living with MS.

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We went along to seminars about sharing best practice and understanding MS and mental health. At the plenary session we learnt more about high risk MS drugs and keeping safe, as well as understanding and supporting risk perception to people with MS. All of the speakers were excellent, and it was a fantastic day.

Nileema and I also spoke to people about our new service – MS-UK Counselling. This is a brand new telephone counselling service for people living with MS in the UK. You can find out more and register on our website at www.ms-uk.org/counselling.

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Thank you to the MS Trust for making us feel so welcome, and thank you to all of the MS professionals who stopped by our stand and chatted with us.

Looking forward to next year’s conference!

Laura

Laura May

Marketing Manager

Guest blog: Liz is saying 'Yes'!

Posted on: October 12 2016

Today we publish another of our ‘Guest Blog’ articles from Liz about how she plans to attend a course all about multiple sclerosis.

If you would like to write an article for our blog please contact john@ms-uk.org.

You can view the guidelines for writing for us online now at www.ms-uk.org/ourblog.


liz-murby_300.jpgIt is largely with thanks to my youngest sister, Anna, that I type yet another hopeful blog for possible publication in the MS-UK blog.

So what’s going forward for me right now..?

Firstly, me, me, me. The exercises Rachel Love ‘designed’ for me during my recent spell in Berrywood Hospital…no doubt MS related, but surprisingly, not that I was ever directly informed…made some lifelong friends during my brief-ish stay…friendships always good in my book!

Secondly, continue Professor Georgev Jelinek’s 7 Steps to Overcoming MS…nb., not curing, but Overcoming…Multiple sclerosis, can wait until after (I’ve made a good start, reaching page 29 of its 451 pages). The book is almost certainly available, cost-free to me and others within the UK, from http://overcomingms.org.

I trust you’ll find it as engaging as I am!

By happy co-incidence…If you’re as happy, and able as I am to use all tools available to address our ‘condition’, my copy of Open Door, the quarterly newsletter of Multiple Sclerosis Trust has literally just been delivered.., you cannot only enjoy reading it, and also communicate with the body via info@mstrust.org.uk or freephone 08003323839.

Hey, just done it again Allanah, following our brief joint meeting with Mary Lowthian, just a couple of weeks back, I’m thrilled to report, for all MSers within striking distance: you know you’re out there, please join us: you know we’re stronger together…

Anyway, attentive and alert Allanah, and her team, together with agents from yet another burgeoning branch of the national MS Society, relatively locally based, are thrilled to give us plenty of notice of the forthcoming discursive/sharing forum: ‘Getting to Grips with MS’.

This unmissable exchange will take place on 08 October in Kettering.

You can check out the suitability / excellence of the venue itself, before making your decision to spend a couple of precious weekend hours meeting others that:

• understand each others ‘uniqueness’;
• are looking forward to enjoying learning a lot of genuinely useful stuff;
• possibly making a whole lot of new friends;

….refer to the blog’s title for my own response….er: YES!.

The thing is, our condition, yes MS, is not anybody’s fault…just as we are: all unique in our own ways: left-handed, right-handed, grammar-school educated, or school-leaver at 15/ as soon as possible…we might try to explain, worse, actually assign ( less favourable aspects of our current circumstances ) on MS…

My truth is that yesterday, one very old, OK, grown up, now 48 year old, primary school friend, her husband, and the oldest of her three daughters, collected me to take me to celebrate the life of the Wing Attack in our school netball team! Liz had lead a very active and 95% happy life, which we were all thrilled to celebrate with her…

I spent a rewarding and entertaining weekend celebrating SalAd [Sally and Adam]’s…geddit? joint 50th birthday celebration/occasion somewhere in the dune/woodland area in Wales, not too far from Swansea…see, if you put your mind to it, if you really want to, there’s maybe a chance you might be able to…give it a go…using sticks now, doubt I’ll congratulate Mum, Judith Tee, as was, for tennis playing endeavours, but can and WILL do what I am able for others with MS…doesn’t define me, does it define you?…

I hope I saw  you in Kettering, Getting to grips with MS on 08 October.

MS-UK connects with the MS Trust…

Posted on: July 26 2016

ms-trust.jpgOn Wednesday 20 July, I visited the MS Trust headquarters in Letchworth Garden City.

It was a great morning, and I met with Pam Macfarlane, CEO of the MS Trust, and Joanne Sopala, Director of Fundraising and Marketing.

The MS Trust is a charity that offers people affected by multiple sclerosis (MS) practical, evidence based information to make choices that are right for them. They also support and develop specialist MS services in the UK, especially championing MS nurses and undertaking campaigning to affect policy.

Connecting with other multiple sclerosis charities is really important to our team here at MS-UK. The UK-based MS charities are all so unique and offer people affected by MS such a range of services.

It was great to connect with the MS Trust and find out how we can support each other in the future. Of course, Myles our beloved mascot couldn’t resist tagging along too!

If you would like to connect with MS-UK, do get in touch,

Best wishes,

Amy Woolf

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