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Today #TeamPurple take on the marathon!

Posted on: April 22 2018

Photo of runner message for marathonIt's a beautiful day in the capital, and our amazing #TeamPurple runners are getting ready to take on the Virgin Money London Marathon in aid of MS-UK.

They will be joining so many other dedicated charity supporters this morning, and at last count the event had raised collectively over £20,000,000 for charities!

So, why have our runners decided to get involved? Vic, from Essex, remembers watching her Dad run when she was a child. Now she's running in his footsteps, as he no longer can. Sue and Ellie-Rose are a mother and daughter team taking on the mighty 26.2 miles together. The Boland family are all in it together and have flown over from the USA to run today. So many reasons, but each one has been touched in some way by multiple sclerosis (MS).

All week we have been at the Expo event, meeting our runners and wishing them lots of luck.

Have a look at the messages of support, positivity and determination that they wrote on the MS-UK #TeamPurple runners wall in our Facebook album today!

For everyone running on 22 April 2018, whoever you're running for, good luck.

We'll be cheering you all on every step of the way!

You can follow MS-UK on Twitter to see marathon day live updates!

Fundraiser of the month: Mel's story!

Posted on: August 15 2017

image002.jpgOur fundraiser of the month for August is Mel Foyle. She got in touch with us in April to tell us about a fundraising day that she was planning with raffles, games for the kids and food and drink. The event took place on the 01 July and was a great success!

My name is Mel Foyle and I have recently done a fundraising event for MS-UK.

A little bit about myself, I am 27 and I have a little girl called Millie who is 3 :)

I was diagnosed with relapsing-remitting MS in 2015, but symptoms first started in 2011. At the start of the year, I made a resolution that I would raise some money and awareness for MS-UK. I wanted to do this because I've seen my friends' mum and her friend raise so much money for them and I wanted to do my bit as well. I also know how much this charity does and I wanted to do a UK based one, I never know when I will need their help.

I wanted to do my own fundraiser and I chose a family fun day! It took me a few months of organising, with help of family and friends of course - especially my 2 best friends and my mum.

The day started at 4.30pm at Thatcham Football Club. We charged people to get in and inside had stalls for cakes and sweets, a bar, a tombola and some games. We also had a DJ, and decorated the hall with balloons in purple, green, orange and white.

Outside we had a bouncy castle, an ice cream van, some more games and a big penalty shootout. I also held a raffle later on, with nearly 60 prizes ranging from evenings in London to meals out, family days, haircuts and beauty products. These sold very well! The plan was to also have a burger van, but after it was half an hour late we soon realised it wasn't going to turn up! I had to try and stay calm, and luckily my best friend and brother in law took it on themselves and went and got loads of food and a BBQ, so none of the worry was on me. My dad and father in law cooked away and managed to have it all under control, I'm lucky to have them all!

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Overall we had around 100 plus people there and the weather was hot and sunny. It had been rubbish weather all week so I was happy when the sun decided to come out! Other than the burger van fiasco, the day went so smoothly! I feel really proud of myself that I managed to pull off such a good event and I will be doing it again for sure, just not for a while haha. But I will continue to try and raise money and awareness wherever I possibly can.

My final total, from the event and my JustGiving page, was a massive £1,790, which was way more than I ever expected! I couldn't have done it without my wonderful partner Chris, he has supported me through absolutely everything. Big thanks to Nick at MS-UK for all his support, help and advice from start to finish!

Mel

Well done British 10k runners!

Posted on: July 10 2017

Hi everyone, I just want to say a massive well done to everyone who took part in the British 10k on Sunday 09 July in aid of MS-UK...you guys make our work possible!

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It was a hot day (OK, it was a scorching day!) and you still got up early, made your way to our capital city and took to the streets in full force, wearing your purple with pride. It was fantastic to be a part of your day, and share in your achievement!

Check out the photos on Facebook now!

Our cheering point was definitely extremely loud and great fun to be on, and a massive thank you to all of our dedicated volunteers who clapped and cheered for hours to encourage all of the runners to keep going. We couldn’t make the day so special without you.

All of our runners have their own reasons for running, but all of you have one thing in common now – you have smashed the British 10k! And you have made a difference…the money you have raised helps us offer people a listening ear when they need one through our helpline, ensure someone gets New Pathways magazine landing on their doormat or it may pay for new exercise equipment at our centre in Essex. You are making our work possible, to help people affected by MS to really live life to the full and make the most of today.

Thank you!

Best wishes,

Jill

Jill Purcell

Fundraising Manager

Guest blog: Remembering Phil

Posted on: April 12 2017

In 2016, Simon Gauge ran the Virgin Money London Marathon for MS-UK.

But he really ran it for his brother, Phil.

Phil passed away just last month. In this blog, Simon remembers his brother’s courage and quick wit, and shares his hopes for the future…


‘I contacted MS-UK to let them know that unfortunately my brother Phil, who has bravely fought MS for the past 13 years, passed away in the early hours of Sunday morning aged 43.’

Raising a whopping £33,000 for the charity by undertaking the marathon last year, Simon was inspired to take on the challenge by the bravery and courage of his brother who lived with primary progressive multiple sclerosis.

‘Phil was barely able to speak but he never lost his sense of humour.

He was my inspiration’

‘I took on the marathon because I wanted to raise money to provide help and support for people with MS whose family may not have the means to assist them in the battles they face on a daily basis.’

Simon and Phil’s parents dedicated their lives to supporting Phil to remain independent. ‘Phil was very lucky…he died in his own adapted bungalow, with family and a fantastic care team around him (he had 24 hour care). He had the worst form of the disease but I can honestly say he was happy right up to the very end.’

‘Phil always said he did not suffer from MS but had to learn how to live his life as full as possible with his MS.’

Looking to the future, Simon and his family are focusing on remembering Phil for the positive, hopeful man he was. They would like to ensure his legacy lives on.

‘I contacted MS-UK to let them know that any donations will be going to the charity. Anyone can get multiple sclerosis and I want charities such as MS-UK to be there in the future to give the information and support needed to anyone affected.’

Simon is also planning to sell Phil’s fully adapted bungalow to someone else who may benefit from its many adaptations.

Simon says, ‘It is a fully adapted disabled bungalow with a wet room and separate bedroom for carers to stay in. Rather than sell it to anybody we would like to sell it to somebody that it could benefit from it and enable that person to continue to live life independently.’

About the bungalow

137 Holme Court Avenue, Biggleswade, Beds SG18 8PA

Originally the Bungalow was a two bedroom Bungalow but has been fully reconfigured to cater for a disabled person requiring the use of a wheelchair and requiring a 24 hour care package.

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The Bungalow has small gardens to the front and rear. You enter via the front door (set up so it can be remotely opened via a Possom device or similar) into a spacious entrance hall. To the left is a lean to overlooking the rear garden. To the right is a wet room with a sliding door for easy wheelchair access. It is large enough to fit a wheelchair and hoist. Straight ahead is a double bedroom and via the hallway you enter the lounge that has a fully equipped kitchen coming off of it and a storage room.

Value around £270,000

To find out more, contact Simon directly by email.


MS-UK sends our thoughts and wishes to Simon and his family, and we would like to thank him for sharing such as positive message at this time.

Happy Valentines!

Posted on: February 13 2017

Love is literally in the air this Valentine’s day!

rory-and-hilary-6.jpgValentine’s Day is just around the corner and a lot of people I know are trying to find the perfect gift for their loved ones! Maybe they’ve bought an amazing bouquet of flowers, a massive heart shaped box of chocolates or are treating themselves to a night in by the telly.

We at MS-UK, however, like to go a bit more extreme with our valentine’s gifts. We like to send people off to scream about their love from 10,000ft!!

Yes, I’m talking about a skydive for MS-UK!

We have a fantastic offer that has been passed to us by Skyline that is not to be missed! When you sign up to any event on skyline you can get two for the price of one on the registration fee. This means for a skydive you only pay a £70 registration fee for two of you to jump and if you raise over £395 each (£790 together), you’ll even get this cost back, making your jump effectively free!

This could be the most unique and perfect valentine’s gift for you and a loved one. But it’s not just limited to your valentine! You could also take the leap with your best pal or even that guy from down the street, the choice is yours!!

If you are interested in the offer and skydiving for MS-UK, you can use the code ‘SkylineValentinewhen booking on the skyline website here. This offer ends on 14 February at midnight, so be quick! Please also get in touch with me if you’d like a bit more information, my details are below!

Nicholas Adams
Fundraising Assistant
Nicholas@ms-uk.org
01206 226500

Valentine's Day

Posted on: February 08 2017

untitled-design-1.pngHi all,

We want to help you tell that someone special how much they mean to you this Valentine’s Day and help us help all those affected by MS!

Here is all you have to do…

  • Remember to put a lovely message in the comments box, or perhaps request a song!
  • Tune in to the MS-UK Twitter page or Facebook page between 9am – 5pm on Tuesday 14 February, when we’ll be sharing all of your messages!

We hope you have a lovely Valentine’s Day!

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John Habkirk

Digital Officer

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