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Disability Rights Handbook out now

Posted on: March 14 2018

ryan.jpg
Ryan Jones

Hi everyone,

We just wanted to let you know about this important source of information that our MS-UK Helpline team regularly uses to support the multiple sclerosis (MS) community.

The Disability Rights Handbook is a guide to benefits and services for anyone with a disability, their families, carers and advisers. It contains a wealth of information relating to the benefits system, as well as social care services and help for carers.  This guide will be relevant to many people living with MS.

Clients who use the MS-UK Helpline have let us know how valuable the information provided by our advisors is and, since a lot of that information can be found in the Disability Rights Handbook, we wanted to share it with you. If you would like to buy your own copy, you can do so on the Disability Rights UK website store.

We wanted to let you know this was available to pre-order as last year’s handbook sold out in quite quickly!

As always, though, our MS advisors are available to listen to you, talk things through with you and keep giving you as much helpful information and support as possible.

Best wishes,

Ryan

Ryan Jones

MS Advisor

MS-UK Easter opening hours

Posted on: March 09 2018

Hello everyone,

blog11.jpgJust to let you that due to the bank holidays, we will be closed over Easter…

Friday 30 March

MS-UK and Josephs Court will be closed.

Saturday 31 March

Josephs Court, our wellness centre based in Essex, will be open 9am to 3pm.

Monday 02 April

MS-UK and Josephs Court will be closed.

We will reopen on Tuesday 03 April and the MS-UK Helpline will be available from 9am either via live web chat or via telephone on 0800 783 0518. If you would like information about multiple sclerosis (MS) please do visit the MS-UK website.

For those celebrating, Happy Easter!

Best wishes,

The MS-UK team

Have you got your ticket to ride?

Posted on: February 05 2018

mon-2-45.jpgHello,

Over the next couple of weeks, people across the country will hear from Prudential RideLondon-Surrey 100 about whether or not they got a ballot place. I can just imagine the thousands of lucky people who will get a 'yes' and start planning their big day out in the capital.

But as over 80,000 people applied for a ballot place, there will also be some disappointment…but do not worry! You can still be part of the action as a member of the MS-UK team!

The Prudential RideLondon-Surrey 100 starts in Queen Elizabeth Olympic Park then follows closed roads through the city and Surrey before finishing on The Mall. On Sunday 29 July we’ll be heading to London to cheer on #TeamPurple, and that could include you!

Not only will you take on 100 miles, but you’ll be helping us support even more people affected by multiple sclerosis (MS). When someone calls the MS-UK Helpline to ask a question about managing bladder and bowel problems, your efforts mean we can pick up the phone. When someone reads an article about a complementary therapy in New Pathways that could help with fatigue, you could be the reason the magazine lands on their doormat.

Visit our website to apply today for a charity place in the Prudential RideLondon-Surrey 100 and get your ticket to ride. You can also give me a call on 01206 226500 or email me.

Now, it must be time for the song…

Best wishes,

Jenny

Jenny Poulter, Events Fundraiser

Happy new year!

Posted on: January 02 2018

happy-new-year-1.jpgHello everyone,

Happy new year!

The MS-UK Helpline is now open again, so do get in touch if you would like any support or information about multiple sclerosis.

You can find out more about all of our MS services on our website, and of course if you are looking for a challenge in 2018 do check out our fundraising opportunities too!

We hope you had a fantastic new year, and if you missed it you can watch our Christmas jingle video on our YouTube channel.

Hello everyone,

Happy new year!

The MS-UK Helpline is now open again, so do get in touch if you would like any support or information about multiple sclerosis.

You can find out more about all of our MS services on our website, and of course if you are looking for a challenge in 2018 do check out our fundraising opportunities too!

We hope you had a fantastic new year, and if you missed it you can watch our Christmas jingle video on our YouTube channel.

Welcome back!

Love from MS-UK

Our Christmas opening hours...

Posted on: December 18 2017

We would like to wish you all a very merry Christmas on behalf of the whole MS-UK team!

img_1690.jpg

Over Christmas the MS-UK Helpline service will be closing from 1pm on Friday 22 December. This service will be up and running again at 9am on Tuesday 02 January.

Our local wellness centre for anyone affected by multiple sclerosis, Josephs Court will be open for some of the Christmas period. Our opening hours over Christmas are as follows:

Saturday 23 December, 10am – 4pm
Monday 25 – Tuesday 26 December closed
Wednesday 27 December, 10am – 2pm
Thursday 28 December closed
Friday 29 December, 10am – 2pm
Saturday 30 December, 10am – 4pm
Monday 01 January closed
Tuesday 02 January 9am – 5pm

We hope you have a lovely Christmas!

3 top tips for dealing with disability at work

Posted on: December 04 2017

rebecca-armstrong.jpgHR Specialist and MSer, Rebecca Armstrong offers her advice...

Rebecca Armstrong has a background in HR and Leadership Development at a Senior Level. She was diagnosed with multiple sclerosis (MS) in 2013 and she now focuses on helping organisations embrace Equality and Diversity in their management practice. She established the Facebook group MS & Work in order to use her knowledge to support people with MS facing challenges in the workplace. Here are her top tips for those who are feeling discriminated against.

  • If you think you are being treated unfairly keep a log of everything. Keep copies of emails and log all conversations. Ensure you keep this factual; record specifically what was said and what happened. Try to minimise emotion as much as you can – tribunals work mainly on the facts.
  • Be open to helping your employer understand. If they get it wrong assess whether it was through naivety or discrimination. Think about how much you knew about MS before you were diagnosed and help educate. Use resources such as leaflets and booklets from MS-UK to help.
  • If you are being discriminated against act in a timely manner, it is easier to ‘nip things in the bud’ than let them escalate and become stressful. Remember stress is a major factor in MS relapses and progression, often a simple conversation can remove it quickly. Put your concerns (with specifics) in writing under your company grievance process. In a tribunal a judge will consider what opportunity the company has had to do the right thing or to put right what’s wrong.

You can read more advice from Rebecca regarding disability and work in issue 106 of New Pathways magazine. Subscribe today and get your copy. Contact the MS-UK Helpline for further support or join Rebecca’s MS & Work Facebook group to continue the conversation.

5 ways to stave off colds this winter - flu vaccination

Posted on: October 18 2017

51.pngOur fifth and final blog this week in our series of how to stave off colds this winter is all about the flu vaccination...

It’s a controversial subject – should you or shouldn’t you have it? Flu vaccination is estimated to be effective in 17-53% of older adults compared to 70-90% of younger people.

But if you do decide to have the flu vaccination, a recent study conducted by Nottingham University has found that being in a good mood when you have your flu jab boosts its efficiency.

The team of scientists measured negative mood, positive mood, physical activity, diet and sleep three times a week over a six week period in a group of 138 older people due to have their flu jab. Then they examined how well the jab was working by measuring the amount of influenza antibody in the blood at four weeks and 16 weeks after the vaccination.

The results showed that of all of the factors measured, only positive mood over the six week observational period predicted how well the jab worked – with good mood associated with higher levels of antibody. In fact, when the researchers looked at influences on the day of vaccination itself, they found an even greater effect on how well it worked, accounting for between 8 and 14% of the variability in antibody levels.

If you would like information and support about anything we have covered this week, or would just like to chat, the MS-UK Helpline is here to help. Call us on 0800 783 0518, email us info@ms-uk.org or chat with us online at www.ms-uk.org/livewebchat.

Our Impact Report…

Posted on: September 18 2017

impact-report-cover-2016.jpgI am really pleased to say you can now read our Impact Report online at www.ms-uk.org/aboutus.

This booklet is our way to thank you to MS-UK supporters and celebrate our success in a public way.

Our mission is to provide high quality, accessible and relevant information and support to anyone affected by multiple sclerosis and in 2016 we built upon our strong foundations to do this.

In this report you can read about the MS-UK Helpline, New Pathways magazine and our Essex-based wellness centre, Josephs Court. I hope you enjoy reading about the progress we made in 2016.

I am proud of what my team has achieved in meeting needs of our clients. Throughout the year we continued to listen to real people affected by multiple sclerosis, and use their voices to shape our services.

Thank you for being part of the journey so far, and I look forward to the future and supporting even more people affected by MS.

Best wishes,

Amy

Amy Woolf, CEO

Watch our Choices leaflets video

Posted on: September 05 2017

Hi everyone,

In the past month we’ve been updating some of our Choices leaflets, and you can now read them on our website.

Watch our short video today about how we update our Choices leaflets.

We have updated our leaflets about…

  • Bladder and bowel symptoms
  • Vitamin D
  • Personal Independence Payment (PIP)
  • Useful organisations

If you have any questions about any of the topics covered in our Choices leaflets, you can get in touch with me to any of the MS-UK Helpline team via live web chat or by calling us on 0800 783 0510.

Best wishes,

Ryan

MS Advisor

Improving accessibility to the helpline

Posted on: August 23 2017

interp-1.pngOur helpline not only attracts people from the UK, but we also chat with many people from overseas via our live webchat facility. This is great, as it allows those in different time zones to contact us if they need to talk.

Another service that complements this nicely is our telephone interpretation service.

This service is not just available for those contacting us from overseas, but for those based within the UK, whose English is limited.

Whilst using the interpretation service, in order to communicate with clients we use a values led, non-for-profit business. This covers over 100 languages, all interpreters are fully qualified and based in the UK.

All interpreters are experienced in working with sensitive issues and all have Disclosure and Barring Service clearance. This gives another layer of protection to our clients.

So, how does our telephone interpretation service work?

The service is straight forward and simple. Once contact has been made with the MS-UK Helpline, all we need to know is your

  • Name
  • Contact number
  • Specified language

We will then make contact with an interpreter who will get back to you as soon as possible. You will then be connected to a three way conversation between yourself, the interpreter and a member of our helpline who will give you the support you need.

Laura Amiss-Smith
Helpline Supervisor

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