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New Pathways issue 108 is out now!

Posted on: April 06 2018

Hi everyone,Front cover of New Pathways

I am pleased to say New Pathways issue 108 is now landing on doormats across the country! As always we have a packed issue, full of all the latest multiple sclerosis (MS) news and research, including drug updates and the latest cannabis study findings. 

As the sunshine begins to make an appearance, we get topical with lots on vitamin D. MSer Ian Cook puts vitamin D tablets and sprays to the test (see page 30) and Kahn Johnson reveals what happened when his vitamin D levels became toxic on page 16. 

Also in this issue, MS Nurse Miranda Olding discusses sexual dsyfunction and what can be done to help (page 14) and we have the big interview with the star of Channel 4 programme 'The Search for a Miracle Cure' Mark Lewis (page 24). 

I hope you enjoy reading this issue, and please do email me your comments and letters to newpathways@ms-uk.org.

Best wishes,

Sarah-Jane

Editor, New Pathways

P.S. Don't forget New Pathways is available to read on the go. Download the My MS-UK app from the App store on your phone or tablet device today!

Disability Rights Handbook out now

Posted on: March 14 2018

ryan.jpg
Ryan Jones

Hi everyone,

We just wanted to let you know about this important source of information that our MS-UK Helpline team regularly uses to support the multiple sclerosis (MS) community.

The Disability Rights Handbook is a guide to benefits and services for anyone with a disability, their families, carers and advisers. It contains a wealth of information relating to the benefits system, as well as social care services and help for carers.  This guide will be relevant to many people living with MS.

Clients who use the MS-UK Helpline have let us know how valuable the information provided by our advisors is and, since a lot of that information can be found in the Disability Rights Handbook, we wanted to share it with you. If you would like to buy your own copy, you can do so on the Disability Rights UK website store.

We wanted to let you know this was available to pre-order as last year’s handbook sold out in quite quickly!

As always, though, our MS advisors are available to listen to you, talk things through with you and keep giving you as much helpful information and support as possible.

Best wishes,

Ryan

Ryan Jones

MS Advisor

MS-UK Easter opening hours

Posted on: March 09 2018

Hello everyone,

blog11.jpgJust to let you that due to the bank holidays, we will be closed over Easter…

Friday 30 March

MS-UK and Josephs Court will be closed.

Saturday 31 March

Josephs Court, our wellness centre based in Essex, will be open 9am to 3pm.

Monday 02 April

MS-UK and Josephs Court will be closed.

We will reopen on Tuesday 03 April and the MS-UK Helpline will be available from 9am either via live web chat or via telephone on 0800 783 0518. If you would like information about multiple sclerosis (MS) please do visit the MS-UK website.

For those celebrating, Happy Easter!

Best wishes,

The MS-UK team

Have you got your ticket to ride?

Posted on: February 05 2018

mon-2-45.jpgHello,

Over the next couple of weeks, people across the country will hear from Prudential RideLondon-Surrey 100 about whether or not they got a ballot place. I can just imagine the thousands of lucky people who will get a 'yes' and start planning their big day out in the capital.

But as over 80,000 people applied for a ballot place, there will also be some disappointment…but do not worry! You can still be part of the action as a member of the MS-UK team!

The Prudential RideLondon-Surrey 100 starts in Queen Elizabeth Olympic Park then follows closed roads through the city and Surrey before finishing on The Mall. On Sunday 29 July we’ll be heading to London to cheer on #TeamPurple, and that could include you!

Not only will you take on 100 miles, but you’ll be helping us support even more people affected by multiple sclerosis (MS). When someone calls the MS-UK Helpline to ask a question about managing bladder and bowel problems, your efforts mean we can pick up the phone. When someone reads an article about a complementary therapy in New Pathways that could help with fatigue, you could be the reason the magazine lands on their doormat.

Visit our website to apply today for a charity place in the Prudential RideLondon-Surrey 100 and get your ticket to ride. You can also give me a call on 01206 226500 or email me.

Now, it must be time for the song…

Best wishes,

Jenny

Jenny Poulter, Events Fundraiser

Share your experiences to shape our Choices leaflets...

Posted on: January 09 2018

survey-graphic.pngHello, We are updating our Choices leaflets about diet, Primary Progressive MS (PPMS), speech and swallowing, visual symptoms and Low Dose Naltrexone (LDN). But we need your help! If you have a diagnosis of multiple sclerosis (MS) please take our survey and share your experiences to help us shape the leaflets. We hope that by including your experiences, our leaflets will truly resonate with people who turn to us for help. Please be assured that any comments you give us will remain anonymous when published in our Choices leaflets.

Thank you for your help! Best wishes,

The MS-UK Helpline team

Happy new year!

Posted on: January 02 2018

happy-new-year-1.jpgHello everyone,

Happy new year!

The MS-UK Helpline is now open again, so do get in touch if you would like any support or information about multiple sclerosis.

You can find out more about all of our MS services on our website, and of course if you are looking for a challenge in 2018 do check out our fundraising opportunities too!

We hope you had a fantastic new year, and if you missed it you can watch our Christmas jingle video on our YouTube channel.

Hello everyone,

Happy new year!

The MS-UK Helpline is now open again, so do get in touch if you would like any support or information about multiple sclerosis.

You can find out more about all of our MS services on our website, and of course if you are looking for a challenge in 2018 do check out our fundraising opportunities too!

We hope you had a fantastic new year, and if you missed it you can watch our Christmas jingle video on our YouTube channel.

Welcome back!

Love from MS-UK

Our Christmas opening hours...

Posted on: December 18 2017

We would like to wish you all a very merry Christmas on behalf of the whole MS-UK team!

img_1690.jpg

Over Christmas the MS-UK Helpline service will be closing from 1pm on Friday 22 December. This service will be up and running again at 9am on Tuesday 02 January.

Our local wellness centre for anyone affected by multiple sclerosis, Josephs Court will be open for some of the Christmas period. Our opening hours over Christmas are as follows:

Saturday 23 December, 10am – 4pm
Monday 25 – Tuesday 26 December closed
Wednesday 27 December, 10am – 2pm
Thursday 28 December closed
Friday 29 December, 10am – 2pm
Saturday 30 December, 10am – 4pm
Monday 01 January closed
Tuesday 02 January 9am – 5pm

We hope you have a lovely Christmas!

3 top tips for dealing with disability at work

Posted on: December 04 2017

rebecca-armstrong.jpgHR Specialist and MSer, Rebecca Armstrong offers her advice...

Rebecca Armstrong has a background in HR and Leadership Development at a Senior Level. She was diagnosed with multiple sclerosis (MS) in 2013 and she now focuses on helping organisations embrace Equality and Diversity in their management practice. She established the Facebook group MS & Work in order to use her knowledge to support people with MS facing challenges in the workplace. Here are her top tips for those who are feeling discriminated against.

  • If you think you are being treated unfairly keep a log of everything. Keep copies of emails and log all conversations. Ensure you keep this factual; record specifically what was said and what happened. Try to minimise emotion as much as you can – tribunals work mainly on the facts.
  • Be open to helping your employer understand. If they get it wrong assess whether it was through naivety or discrimination. Think about how much you knew about MS before you were diagnosed and help educate. Use resources such as leaflets and booklets from MS-UK to help.
  • If you are being discriminated against act in a timely manner, it is easier to ‘nip things in the bud’ than let them escalate and become stressful. Remember stress is a major factor in MS relapses and progression, often a simple conversation can remove it quickly. Put your concerns (with specifics) in writing under your company grievance process. In a tribunal a judge will consider what opportunity the company has had to do the right thing or to put right what’s wrong.

You can read more advice from Rebecca regarding disability and work in issue 106 of New Pathways magazine. Subscribe today and get your copy. Contact the MS-UK Helpline for further support or join Rebecca’s MS & Work Facebook group to continue the conversation.

MS-UK Counselling is here...

Posted on: December 01 2017

We are delighted to announce that our new service, MS-UK Counselling, has now launched, and we wanted to share our short video with you…

Our telephone counselling service is focussed on helping you understand yourself in light of your MS and exploring its emotional impact on your life. It is available to anyone living with multiple sclerosis aged 18 and over, and is completely confidential.

Find out more about MS-UK Counselling on our website, call us on 01206 226500 or email us.

Can you help shape our leaflets?

Posted on: October 19 2017

survey-graphic-1.pngHello,

We are refreshing our Choices leaflets for people affected by multiple sclerosis (MS) and we need your real life experience to help shape them!

If you have a diagnosis of MS it would be great if you could take our quick survey. The questions are about adult social care, exercise and fatigue.

We want to always provide people with the fullest range of choices available to them; not only drugs but all types of treatments and lifestyle changes. We hope that by including your experiences, our leaflets will truly resonate with people who turn to us for help.

Please be assured that any comments you give us will remain anonymous when published in our Choices leaflets.

Thank you for your help!

Best wishes,

The MS-UK Helpline team

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