We’re feeling summery at the MS-UK offices as we prepare for our 6th annual Summer Ball on Friday 29 June...that's right, it's tomorrow!
Taking place in Constable Country at the beautiful setting of Le Talbooth, Dedham, over 100 guests are joining the celebrations in our 25th silver anniversary year.
Following pre-dinner drinks on the stunning lawns adjacent to the River Stour, guests will enjoy a three course dinner whilst being serenaded by The Harmonettes, a 1940’s style harmony duo.
A highlight of the evening is the grand auction, hosted by Will Quince MP, when diners have an opportunity to bid against one another for a variety of exceptional treats including; concert tickets, sporting, fine dining, musical and theatre experiences. Prior to dancing the night away, we also have a fantastic raffle. This is only possible thanks to the kindness and generosity of many donors and supporters.
MS-UK are dedicated to empowering people affected by multiple sclerosis to live life to the full, so every penny raised at our Summer Ball will allow us to continue our vital work. We are truly grateful to all of our supporters and hope that those attending have a fantastic evening.
It’s almost time to ‘get the glad rags on’ and in true ‘Strictly style’ …………’Keeeeeeeeeeep dancing!’
This blog has been written by Sue (pictured), who is volunteering with MS-UK this week...and as you can see, Sue has enjoyed the Summer Ball before!
'I met Michael 14 years ago through his mother Dinah as she was aware that I was a personal trainer. She approached me and asked if I would be able to train him. I was made aware of Michael’s autism and became determined to give this fine young man the opportunity to get fit within different environments such as the gym and running outdoors.
'As he gained confidence with me and in different social surroundings Michael agreed to enter a local six-mile running event in Northampton for some fun and as a focus to train. He managed to complete it and seemed to enjoy the feeling of achieving something.
'From this we decided to increase the distance as he developed trust in me. We went on to complete a Daventry 10-mile event and The Hyde Park Half Marathon in 2011. We raised funds for The Autistic Society, approximately £1,500.
'I certainly had the belief that Michael was capable of anything, and towards the back of 2017 we had a brief discussion about entering him into a marathon. Making the impossible possible was to be my mission in the year of 2018 and I suggested the Milton Keynes Marathon would be realistic in May. We certainly had the weather against us at the start of the year with snow still falling in March which delayed our outdoor sessions somewhat. We literally had eight weeks of preparation leading up to the big event.
'Over the course of eight weeks Michael had to face so many barriers when training for the marathon. I had to ask him to change what he eats and when he eats, run during unusual times of the day and at weekends. Due to his autism this was not an easy task, but he trusted me and was able to overcome these difficulties. We successfully managed to train up to 20 miles and felt as ready as we could be leading up to the event.
'Two weeks before the event we decided to raise some money for charity. I suggested that we could run for MS-UK as my working colleague lives with MS and was fully aware of the effects and problems it has on an individual and families supporting this. We set a low target to begin with and as the money came in it soon become obvious that friends, families and the general public were right behind us and they loved our commitment, passion and ambition to complete such a mammoth task.
'On the day of the event, 07 May, it was to be one of the warmest bank holidays on record. We had this against us and at mile ten of the race Michael became affected by the heat and fell to the concrete. I felt devastated for Michael and thought that he was unable to carry on for a brief moment. But through positive talk, motivation and his determination Michael got back onto his feet and together we managed to complete the next 16 miles. It was undoubtedly one of the most challenging tasks I have ever done and to Michael a magic moment to savour for the rest of his life. It was a stadium finish with the crowd, family and friends behind him. He finished in six hours and six minutes. The emotion we both felt was beyond words. We did it!
'We made the impossible possible.
'Following the event it soon became clear that our target amount of money raised was totally smashed. We ended up raising over £3,000! It is so difficult to put this into perspective and we were totally blown away by everyone who supported us and offered kindness to us both.
'We have recently returned back to our regular training regime and Michael is absolutely certain he does not want to do it again next year! He keeps reminding me of this every time we head of out on a run!'
Since 2013, Chris has managed to complete 100 marathons in aid of MS-UK, racking up over 2,500 miles! What is the secret to Chris' success? We spoke to him to find out...
I ran the Virgin Money London marathon in 2013 and 2014, the London to Brighton 100km (63 miles) challenge, the 15 marathons challenge in 2015, and the 30 marathons challenge in 2017. My 100th marathon, at Betteshanger Country Park, was also in celebration of MS-UK!
When my wife Jennie was diagnosed with MS in 2011 we turned to MS-UK for help. They were brilliant. They gave Jennie access to the help and support she needed at the time and ever since. I decided to do something to support the brilliant work they do for people living with MS. Now, seeing the centre grow and the facilities develop, it feels great to have played a part.
I have run several navigational races and normally get lost which adds to the fun! During the London to Brighton challenge in 2014, a fellow runner was following my head torch to help get over a stile but missed the jump and fell over in style!
I found it easy to raise money the first time around as the 100 marathon challenge is a massive commitment that everyone is eager to see you complete. In the years that followed I have found events such as quiz and music nights really worked well. I hosted a fundraising penalty shootout which worked well too.
For my next fundraising challenge I will be taking on a 100 mile run in Dover in 2019. As 63 miles is the furthest distance I have ever run, I feel like this will be my biggest challenge yet! If you would like to donate you can visit my JustGiving page!
Like many others, I lost a special someone to this cruel disease on 13 February 2002 - my Mum!
As a promise to myself, I have vowed that for each landmark birthday I have - my mothers name, Deborah Bendell, will be honoured - as without her, I wouldn’t be celebrating at all. So, for my 25th birthday I am hosting a Dinner & Dance in aid of this amazing charity, MS-UK.
Multiple sclerosis is a cruel disease and those who suffer with it can often deteriorate extremely quickly and unfortunately this was the case for my Mum. Despite the pain and suffering my Mum went through, she’ll always be remembered for being the happiest and cheekiest person in any room. I aspire every day to make her proud and resemble her in some way - so for me, this fundraiser is just the start of a long journey.
I may not have had much time with my Mum, as I was only 8 when she passed; however I know the support we received after her passing was second to none and this charity, MS-UK, is able to offer similar to others in need too.
So the long and short of it, if you aren’t able to celebrate with us on 27 April at the Dinner & Dance (see below the flyer for contact details) but would like to contribute to this special charity, any spare change to reach my goal is unbelievably appreciated!
In memory of Deborah Bendell, my Mum, and other loved ones suffering!
It's a beautiful day in the capital, and our amazing #TeamPurple runners are getting ready to take on the Virgin Money London Marathon in aid of MS-UK.
They will be joining so many other dedicated charity supporters this morning, and at last count the event had raised collectively over £20,000,000 for charities!
So, why have our runners decided to get involved? Vic, from Essex, remembers watching her Dad run when she was a child. Now she's running in his footsteps, as he no longer can. Sue and Ellie-Rose are a mother and daughter team taking on the mighty 26.2 miles together. The Boland family are all in it together and have flown over from the USA to run today. So many reasons, but each one has been touched in some way by multiple sclerosis (MS).
All week we have been at the Expo event, meeting our runners and wishing them lots of luck.
Have a look at the messages of support, positivity and determination that they wrote on the MS-UK #TeamPurple runners wall in our Facebook album today!
For everyone running on 22 April 2018, whoever you're running for, good luck.
You can follow MS-UK on Twitter to see marathon day live updates!
Today marks the beginning of Expo, four days of fun-filled excitment at ExCeL in London where runners taking on the Virgin Money London Marathon will be registering this week!
Every year over 100 runners run 26.2 miles in aid of MS-UK, raising thousands of pounds for us. Over 100,000 people in the UK live with multiple sclerosis, and we want to be able to provide our vital services to everyone who needs them, so every single penny they raise goes towards helping MS-UK continue our work.
The MS-UK fundraising team is ready to welcome #TeamPurple to Expo this week, so if you're coming along please say hi to us on stand 583!
Wednesday 18 April 11:00-20:00
Thursday 19 April 10:00-20:00
Friday 20 April 10:00-20:00
Saturday 21 April 09:00-17:00
We'll be live tweeting all week from Expo (and of course on marathon day itself this Sunday) so follow us on Twitter to stay updated!
Jill Purcell, Fundraising Manager
When I was eight years old I remember joining thousands of other people lining the streets of London, waving and cheering as streams of people ran past. At the time I didn't really understand the enormity of what those people were doing, running mile after mile, some fast, some slow, some walking but all in the aim of completing 26.2 miles. Amongst those people was my Dad.
Fast forward a few years and my Dad had to take every ounce of energy he had and a hell of a lot of drugs to pull himself out of his wheelchair and slowly holding tight on to me, walk a few steps down the aisle of a church on my wedding day. He had been diagnosed with multiple sclerosis (MS) the year before and had his world turned upside down. From being fit and healthy, in the Police to being forced to take early retirement and a complete change of life.
For years after I watched my Dad, I would watch the marathon on TV every year saying to myself 'one day', and since taking up running the itch has needed scratching so I decided the year I turned 40 to make my bucket list dream happen to take part in the most amazing marathon in the world.
As soon as I heard I'd been accepted to run for MS-UK I set the wheels in motion for my fundraising, looking at where I could start generating easy money with little effort whilst I planned a big fundraiser. Sponsorship started coming in as soon as I announced my challenge and as a Slimming World Consultant I have had amazing support from my members for my fundraising. I have a change pot in group and my members along with other groups in Chelmsford, Essex agreed for the next few months to have these for MS-UK. Everyone's odd 5ps, 10ps are really adding up to over £50 a month donated this way. Again members supported through donating their slimmed out of clothes which were swapped for cash and a Christmas raffle in my groups raised £284.
Michelle who runs Chelmer RoadRunners, a local running group which is where I first learned to run completing a couch to 5km course, sings in a local band and I approached her to sing at a charity night I was planning. Seen as she got me into the mess in the first place it seemed fitting to have her at the event! A local pub was the venue (free hire to maximise funds raised!) and with the fabulous entertainment, a raffle to be held. After hundreds of letters, emails and approaching local companies I managed to secure some great donated prizes and started selling raffle tickets to people who couldn't make the night, again to ensure I raised as much as possible. Promotion of the event went out on social media, posters up locally and great support from local papers - three have now printed my story to help further support!
The charity night went well, everyone had a fantastic time and most importantly a brilliant £1,186.06 was raised to bring my total fundraising over my initial aim of £2,500 - but I'm not stopping there - a sweepstake planned, further change pots and sponsorship will hopefully bring the total to £3,000, or more! Every penny will help MS-UK give amazing support to people like my Dad.
So now, the countdown is on till the big day itself where I shall be so proud to be running the same streets that my Dad did in 1986 (but not accepting his challenge of beating his time of 3 hours 35 minutes!)
My name is Rosie and I am in my second year of university, I am studying Politics at Leeds. I grew up in a very active family where Mum and Dad encouraged us to play team sports at school, took us on regular skiing holidays and liked us to push ourselves. Although not as athletically blessed as my brothers, I still took part and enjoyed every moment.
Upon arriving at university, hours spent doing physical activity dramatically dropped and by the end of my first year I knew I needed a challenge to get me going again. The Virgin Money London Marathon had always been on my agenda having watched my Mum train and run both London and New York for MS as a child and then more recently witnessed my older brother complete it. My Mum ran for multiple sclerosis for her brother who has lived with the disease for almost two decades…hence why MS-UK seemed an obvious choice for me! So one day as procrastination from some university work, I entered the ballot and applied to a couple of charities that were close to my heart, not really thinking anything would come of it. A couple of weeks later I received a call from Jenny who offered me a place for MS-UK, and I accepted it…and that is how I am here lining up to run the London Marathon!
Upon returning to university, I started my training plan…let me tell you nothing sorts out a hangover like a 5mile run in the cold! All was going well until the end of October when I started to get this searing pain in my foot every time I put it down, having ignored it for a while my friends dragged me to A&E and I heard every runners worse nightmare…you have a stress fracture. So I dutifully spent the next 7 weeks in a moonboot, doing very little and followed the doctor’s advice to the T as I returned to running. I am now well back on track, although I have to take it a little steadier than I would like, I have completed a half marathon in 2 and a half hours. I have three more long runs till the big day and the excitement is building with each week!
Finally, fundraising is going well! I have had some very generous donations from friends and family. My first sponsorship push was to write to all my Mum and Dad's suppliers and ask for donations, and golly were they charitable! Its been a busy couple of months juggling training, fundraising, university, eventing, working and maintaining some sort of social life but I wouldn’t have life any other way!
Thank you to everyone who has supported me and hopefully see you the other side of the finish line!
Back in October last year I decided to apply for the running of the Virgin Money London Marathon in aid of raising money for MS-UK. It was less than a week later that I was delighted to receive the phone call that my application had been accepted.
My Mum, who has had the condition for a number of years is the reason why I am running for MS-UK.
Everybody who knows my Mum will agree, she is a completely selfless individual, always putting other people ahead of herself and has an admirable ‘just get on with it’ attitude towards her condition. By running the London Marathon for MS-UK, hopefully I am giving something back, however small it may be.
At the point of my Mum’s diagnosis, I wasn’t aware of the symptoms of multiple sclerosis nor had I heard of the condition at all, which, along with raising as much money as possible for MS-UK, is one of the main reasons I am sharing the fundraising as far and wide as possible – to raise awareness and understanding of the condition, which I know is an objective I share with the fantastic work that MS-UK undertake.
Having already raised in excess of £2,000 with over 7 weeks to go until the big day (at the time of writing this), the fundraising so far has been fantastic and has far exceeded the expectations I had. People’s kindness and generosity so far has been a huge source of motivation for those dark, freezing cold training runs which I have no doubt all the other runners for MS-UK are also enduring at the moment.
Due to the recent weather conditions and a couple of injuries, I can’t say training has been straight forward but nonetheless, remains on-track and now approaches its latter stages with a few more long runs to go, before gradually tapering the distance down as race day approaches.
A massive thank you to everyone who has donated so far, it’s hugely appreciated by my Mum, MS-UK, my family and myself. I am hoping to keep the momentum going by reaching £2,500+ by race day so please read my story and donate if you possibly can by visiting my fundraising page.
Good luck to all the other MS-UK runners with the remainder of your training and fundraising.
Thanks for taking the time to read.
On Sunday 25 March, nearly 3,000 runners took to the streets of Colchester in Essex to complete the Colchester Half Marathon. The day promised an ‘amazing mass-participation event bringing together local runners, businesses and the community’. It didn’t disappoint. With lots of excitement the runners set off at 9am sharp!
Taking part in the race and running especially for MS-UK were occupational therapy masters students from the University of Essex, Tess, Claire and Lauren. Lauren and Claire both have personal experience with multiple sclerosis (MS).
Commenting before the race, Claire said: ‘My neighbour was diagnosed three years ago and it has driven me to fundraise for this charity, I know it will make him proud.’
Neil Dulieu, a Teaching Assistant at Mersea Island School, has been running semi-seriously for around five years. His wife Amanda has secondary progressive MS and he took part in this year’s Colchester Half Marathon as part of his bigger fundraising plans.
Neil explained: ‘At the end of last year I decided I really wanted to set myself a challenge for 2018 to raise money for MS. 2018km in 2018 just came to me one night, the numbers worked well, it equated to averaging a full marathon distance every week and meant I could start on 1st January and incredibly finish the challenge on my birthday, 1st December. I tend to run most days before or after school and then often run the Colchester or Mersea Park Runs on a Saturday morning to finish my week off (with one rest day on a Sunday).’
The chosen charity partners for this year’s Colchester Half Marathon were Essex & Herts Air Ambulance who will receive 75% of the proceeds and MS-UK who will receive 25%.
Jill Purcell, Fundraising Manager from MS-UK said: ‘It was great to see the turn out on Sunday and the atmosphere was buzzing. We had Myles the MS-UK mascot dancing away and spurring everyone on, as well as volunteers at water stations, marshalling and in the stadium supporting all of the runners.
‘We at MS-UK are so proud of everyone who took part and would like to thank you all for your time, dedication and effort in raising money for people with MS. The charity relies on the generous support of our fundraisers to make our work possible, and we’re delighted that we’ll be able to continue supporting people affected by multiple sclerosis.’
To see all of the great pictures taken on the day, visit the MS-UK Facebook page. Don’t forget to ‘like’ and ‘follow’ our page while you’re there!