I started supporting MS-UK in 2014 when my running buddy and I decided to participate in a running challenge of three marathons in three weeks, with London being the finale of the trio. Having missed out on the ballot we were given the chance of a place with MS-UK, which was a good fit because I’ve had relapsing remitting multiple sclerosis since my late 30s. I was immediately hooked and have been fundraising for the last five years now. I’ve raised a total of £16,372.20 so far!
This year will be my fifth marathon, all of which were charity bond places with MS-UK. Each marathon has been special in its own way; two have been with my buddy Debbie Germain, one was with my husband, last year I ran with my daughter and this year I will be by myself. The trio of marathons was an epic challenge though and a very proud moment.
Without a doubt the end of the race is very special, you are treated like a superstar by the charity and they look after you as though you have just won the gold medal.
When it’s come to raising the funds for each race I’ve organised lots of different events. I have done a quiz night a few times, various raffles, I had race entries donated for me to auction, as well as a private run coaching session with Shane Benzie.
I organise a yearly Halloween and Christmas 5k night run around Greenham Common Air Base, a fantastic spectacle of lights moving around the Common in the pitch black with medals, hot soup or mulled wine at the end.
I have a Rock and Roll Bingo evening next month where you have to guess snippets of songs and cross off bingo numbers, which should be fun.
One of my more notorious fundraisers was with my buddy Debbie. We produced a Naked Runners Calendar, with 12 of our male running friends all tastefully photographed by our photographer friend, they all have appropriately placed props of course! The calendar sold for £10 and proved to be very popular.
I’d definitely encourage anyone who’s been thinking about supporting MS-UK to give them a call. They will support you just as much as you support them.
MS-UK fundraiser of month Guy Cooper fights back against his own MS by fundraising for others affected by MS
In May 2011, I was just three weeks into a new job. One afternoon, I suddenly lost vision in my left eye. After a couple of days, of my vision getting worse, I went to my GP. He immediately referred me to the Royal Gwent Hospital, Wales. After nine months of tests and examinations I was sent for an MRI scan.
When the results came in, I was informed that I was being transferred to my local neurology team. At my first appointment with neurology, I was shown my MRI Scan and told I had have multiple sclerosis (MS).
My MS has progressed slowly, but I have had some minor relapses and struggled with fatigue. I've also had a slow, but increasing loss of sensation in my left leg and arm.
To combat the fatigue I took up cross-country walking because I am surrounded by mountains where I live in Wales and it occurred to me I had never explored most of them - I wanted to put that right. I spent many happy hours in the areas overlooking Caerphilly and Cardiff, learning about the local history.
In the summer 2018, I suffered my worse relapse to date, which lasted eight weeks and took even longer to recover from. It hit me hard and really knocked my confidence. For the first time since I had been diagnosed I felt like I was losing the fight.
I decided to fight back from the relapse and I needed something to work towards. So I set myself the challenge to attempt my most ambitious hike to date. After receiving encouragement and support from my friends when I mentioned trying to do something, I then shared my plans with my work colleague Stina. I was braced to be told I was being stupid, but not only did she back me, she offered to help me plan the route and train for the attempt. My line manager Tim, who is also a keen walker, heard about the idea and also offered to help.
A few days after Christmas 2018, I was doing a Google search for MS support when I stumbled across the MS-UK website. I was impressed by how friendly it seemed, with natural photos and names of real people there to help. I liked the services they were offering on their website and decided I wanted this charity to benefit from my adventure, so I set up a JustGiving page. I spoke with the fundraising team because I wanted to make sure the money I raised would go towards sustaining the services that MS-UK provides for people with MS. I realise that not everyone is as fortunate as me. My symptoms haven't been life changing, I've had excellent medical support from my GP and MS team at The Royal Gwent, and I have an amazing group of family and friends who have stood by me.
So, on 16 March 2019 at around 8am, I will be setting off with support from Tim and Stina, to cover Bedwas, Machen, Rudry and Caerphilly Mountains in one day. The route will be just over 14.5 miles and we hope to complete it in under eight hours – wish me luck!
If you are inspired by Guy’s story and would like to support his fundraising effort, visit www.justgiving.com/fundraising/guy-cooper2 to donate. Thank you!
If you’ve been inspired to take on your own challenge, contact Lucy on 01206 226500, or email email@example.com.
This month, our fundraising star is Grace Catchpole who took to the stage with her university sketch group in aid of MS-UK to honour the memory of her mother (pictured above). Here's her story of show night and a special delivery that brought her to tears...
In September 2018 I lost my mother to multiple sclerosis (MS). She was first diagnosed over 20 years ago and throughout that time was an inspiration to many people. I know it’s a cliché, but I don’t think it is possible to fight harder or continue to find the joy in life in the way she did. She taught me to always make the most out of everything I did and to never give up, no matter what the obstacles, and to always keep a sense of humour about everything.
In light of this I knew I wanted to do something to support those with MS. Great sporting feats were out of the question for me, as merely the thought of doing a marathon or triathlon makes me feel ill, and I would be the first to admit I am not in the shape to even think about attempting one. Then the idea hit me. I’d recently been at a university society training day where they’d spoken to us about the idea of adopting a charity for the year. Although I am not in charge of my university drama society, I am running the sketch group. I spoke to my second in command, the president of the society, and finally the rest of the sketch group and was given the green light: our little medical school sketch group was adopting MS-UK as our charity for the year.
My family’s connection with MS-UK goes back many years. My dad ran the London Marathon for MSRC and MS-UK numerous times, something I have always been in awe of. So, when I decided that I wanted to raise money for an MS charity, MS-UK was the first place I looked to.
From the moment I decided to make contact I knew I’d made the right decision. I was put in touch with Lucy who phoned me and we had a long chat about what I wanted to do, and why I had chosen the charity and the cause. Knowing that I had such wonderful support from the charity helped no end throughout the organisation process, and the good luck wishes via email and the Facebook page gave me and the sketch group wonderful boosts going into our first show.
To anyone looking to fundraise for MS-UK I would recommend getting in touch with their fundraising team as soon as you can! The extra support can work wonders and it was through that initial chat with Lucy that I came up with the idea to have all of our front of house team in MS-UK t-shirts for the show, helping promote what we were raising money for!
The first chance for our group to raise money for MS-UK came with our annual sketch show in December. This is a one-night only show aimed at other students from the medical school and has been a huge success in past years, although this is the first time it has been performed for charity. The first thing that needed to be done was to look at the numbers – how much of the proceeds from the show could we afford to give to charity and still be able to fund our activity for the rest of the year? We decided to charge £1 extra for tickets which would go to MS-UK and then fit as many collection buckets into the venue as possible and rely on the generosity of medical students.
When it came to organise the event, I was at a distinct advantage. I was running a well-established event that has been running for five years, so already knew I had an audience that was willing to turn up, but the challenge was how to get them to put money in buckets. The answer came from my genius flatmate, who runs front of house for our shows. We would offer face-painting to anyone who put some money in – this tactic meant we almost doubled the money we made from ticket sales, and meant in addition we had a fabulous looking audience!
I would also like to use this space to thank the incredible alumni of our little group. On the day of the show I received an envelope, which arrived by special delivery, with strict instructions not open it until 6pm that day. At 6pm, just after doing the pre-show thankyous to my wonderful team, I opened it to discover a wonderful letter and £70 donation to MS-UK from some of our alumni, triggering unashamed tearfulness from me and an outpouring of love from the rest of the cast. After the show was over I have also been contacted by other alumni asking where they can donate money in a show of love and support I find myself overwhelmed by.
When I was first contacted by Lucy about being fundraiser of the month she spoke about the show and also about money that had been raised in my mum’s name from other areas. Both my uncle putting together a carol singing group which raised money around Oxford and the university hockey and football clubs running a student union event for MS-UK (both clubs are headed up by friends of my sister). I cannot take credit for these fundraising efforts but there is one common denominator across them all. My mother.
It was very flattering to be nominated as fundraiser of the month, however I don’t know if this recognition truly belongs to me. The way I see it all this fundraising was caused by one amazing woman who inspired not just me, but also those around her, to want to change something and want to improve the lives of others with the MS.
That this is one of the legacies she left behind is nothing more than any of us who knew her expected, you only have to look to the impressive amounts that were donated in her name when she died in September to see just how much she touched the lives of others. I am truly proud to have had her as my mother and feel blessed to have had her in my life. I like to think she would also be proud of me for showing I have inherited just a little bit of her organisational skills in putting together a charity event, although I did need a fantastic team behind me to help me pull it off, to all of whom I offer all my thanks. MS-UK is a fantastic charity supporting people affected by a truly challenging condition and I feel honoured that I was able to support this cause even though my contribution was small. I think what my story shows is that the memory, love and respect for one amazing person can make such a difference, and I will be forever grateful that my mother was one of those people.
The support of people like Grace mean we can continue our work being here for anyone affected by multiple sclerosis. Call Lucy on 01206 226500 or email Lucy today to order a free fundraising welcome pack and start your journey!
With both of us having parents who are sufferers of multiple sclerosis (MS), we both believed it would be important to try and raise money to help them as best we can. At first, we looked at participating in a triathlon, but on second thought believed we should do something more extravagant, and so turned to the idea of a skydive. We knew this would put us both outside our comfort zones and looked forward to the challenge. We collected donations for around three months prior to the jump, both setting a target of £500, with an overall goal of £1,000.
As you can imagine, at first both of us made a lot of money but after a while the donations began to dry up. Therefore, we took to advertising our JustGiving page on social media, sending it to friends and family. We also asked around our schools for donations, which contributed significantly. Our jump took place on 03 November at Hinton Skydiving Centre in Brackley.
Family and friends came along to support which was a big confidence boost due to a high level of nerves. We had our briefing, met our tandem jumpers, and set off on the fifteen-minute journey up to 13,000 ft. The journey up was the worst part because it came into perspective just how high we were jumping from. On the way up, we took in the view of Silverstone racetrack and had one final briefing before the long fall back to ground. Alex jumped first, and Dan went second.
Both of us thoroughly enjoyed the experience and both genuinely believed it was the best of our lives. The feeling of falling is very hard to explain, but it's an amazing sensation like no other that fills you with high levels of adrenaline and excitement. We would thoroughly recommend a skydive to anyone thinking about doing one, the experience is so unique, and you will not regret it.
Overall, we are delighted to say to that both met out targets and ended with a total of £1,497. Once again, we would like to thank MS-UK for their unconditional support and we hope our money goes to a good cause.
Dan Wood and Alex Greene
‘Our sister and cousin, Nicola, 48 year old mother of three, was diagnosed with multiple sclerosis (MS) in 2017.
‘Obviously such a diagnosis came as a shock to us all. From the beginning the support she has received from MS-UK has been tremendous. It gave her a forum to discuss her fears and engage with people who also have MS. In turn, it continues to give her strength and courage and is empowering her to live her life to the fullest.
‘Through Nicola we heard about the MS-UK sponsored places at the Royal Parks Half Marathon and as runners, it was an obvious way for us to give back, do an activity that we love, make a difference...all in all, a win-win situation.
‘Out the outset, as busy people, we wanted to keep our fundraising efforts simple to achieve our target of £800.
‘We canvassed family for their suggestions on how best to raise the money and the consensus was very much in favour of fundraising activities rather than just donations. This enabled us to bring our family and friends together and the desire to have some fun along the way!
‘We agreed our two events would be a garden tea party and a quiz to make the most of the lovely summer we had this year. Both activities exceeded our expectations – you can see we raised an amazing amount on our fundraising page!
‘The key challenge for us was to ensure that our guests at both events went away feeling they had an enjoyable experience and the £10 fee was good value. Feedback from both events exceeded our expectations, with suggestions we should set up our own afternoon tea business and turn the quiz into an annual event.
‘We smashed our target and raised approximately £1,200, which enabled us to spend the latter two months focusing on training for the race.
‘Both of us came away from this experience feeling a sense of pride in achieving some personal physical targets (we both set a new personal best) and in our own small way we have made a difference.
‘So what’s next? We are delighted to be volunteer stewards for the upcoming Colchester Half Marathon and looking to engage as many family members. Maybe we will see you there!
Karen and Maxine
Sue Bowles recently completed the West Highland Way in aid of MS-UK - a gargantuan 95-mile Scottish trek from Milingavie to Fort William! Sue tells us all about the challenge in her Fundraiser of the Month blog!
I decided to do this walk for MS-UK due to the inspiring way an ex pupil of mine has dealt with her diagnosis of multiple sclerosis (MS).
Kadeena Cox was a pupil of Wetherby High School and I had the privilege to teach her PE and coach her hockey. Kadeena was a very talented PE student and went on to be captain of the school hockey team. However her main talent was her speed and she became very involved in the Leeds Athletic Club where she would go most nights to train.
Kadeena's dedication to her training paid off and she earned herself a place in the elite Olympic camp. It was then, while training, that Kadeena was diagnosed with MS.
However she decided that she would not let it get it in the way of her ambition to become an Olympic competitor and she continued with her training, earning herself a place in the GB Paralympic team in 2016 in Rio, Brazil. Not only did she compete in cycling and sprinting events but she brought home gold, silver and bronze medals. She followed this up with many more achievements in the World Championships in 2015 and 2017. Kadeena is now focused on the 2020 Paralympics, and I am sure she will be as successful as ever.
She is a great role model showing that whatever obstacles come into your life you can adapt and still achieve many of your goals. Her attitude to MS mirrors the ethos of MS-UK whereby you can cope with challenges and still live your life to the full. That is why I chose to fundraise for MS-UK and to raise awareness of MS and the support that is available.
After completing the West Highland Way, which is set in stunning countryside, I decided it should be named the West Highland Challenge! I loved the whole experienc - all the blisters, rain, wind, and glorious rainbows! Whenever I was finding it tough I kept thinking about why I was doing it and I knew it was just for the moment. If I could just help a little bit for people who have to cope with an added challenge everyday then it was nothing.
I hope in some way my story might help to inspire someone else to promote awareness of MS and support MS-UK with all the work that they do.
My name is Charlie Stebbings and, along with a 14 strong team, I cycled from London to Paris between 04 - 06 May.
Myself, Mortimer McKechnie, Paris Baker, Millie Bampfylde, Tom Sater, Alicia Hanmer, Rob Gibson, Occy Cobb, Paddy Rogers, Lucy Munday, Robin Butler and Tom Everard decided to commit to this challenge in aid of three fantastic causes - MS-UK, Cancer Research, and SUDEP Action. Along with our amazing and indispensable support drivers Jack Smail and Helen Callaghan, not to forget our two broken bone casualties Katie Barton and Minty Naylor, we made a formidable fundraising team intent on giving as much support as we could to these fantastic causes.
MS-UK has been a fantastic support to our family over the last eight years since my mother was diagnosed. The work they do for suffers and their families is integral to all those affected by multiple sclerosis (MS) and therefore it is always a privilege to fundraise for them. Having said that, the pain you experience near the top of the mountain on day two at mile 95 was accompanied by a ‘what are we doing’ moment, but that is part of the fun! We organized this challenge to test ourselves and push us so that everyone felt that sense of achievement and success.
The 300 mile trip over three days was a brilliant way to do just that, and apart from Tom Sater Cycling into the back of Lucy Munday as he was being sprayed by a very friendly Frenchman watering his plants, and my exploding tire in Paris, we made it without a hitch. The 30 degree weather was both a blessing and a hinderance, but there is no doubt it kept moral high and helped those of us often void of a tan suitably rosy.
The fundraising experience is one that we can all approach in different ways, but we liked to get people engaged with the trip and run fundraisers instead of solely distributing letters or emails etc. I think there is nothing more enjoyable and motivating than hosting an event which shows you how much support you have for the charities and how many people genuinely care for your cause. I recommend it to anyone who haven’t involved people tangibly in their fundraising to try it. It adds that extra dimension and can remind you why you are doing this often crazy challenge!
Gift aid included, we raised £20,600 and am delighted to be able to give MS-UK some of that money. I must thank my team for supporting this charity with such enthusiasm. It means a huge amount to me, my family, and hopefully everyone in this community.
On to the next one!
Hello we’re Lily (eight-years-old) and Amelia (six-years-old) Smith. We recently completed the Westminster Mile to raise money for MS-UK because our mummy has multiple sclerosis (MS) and we wanted to help those affected by it. Mummy and daddy have previously raised money for MS-UK by completing the Virgin Money London Marathon and we wanted to do the same but we're a bit too young to do a marathon. So when daddy told us about the Vitality Westminster Mile we wanted to do it, both to help raise money and get a big medal at the end!
On the day it was very hot and sunny, and this made running very difficult. We had to drink lots of water to stay hydrated. The course itself was very flat but difficult for our little legs, but we kept going to the end, even sprinting the finish! The best bit about the day was getting the medals at the end. We wore them for the rest of the day, even when we went to Covent Garden with our daddy. We got to race with Mo Farah, and Amelia was luckily enough to get a picture with him! Amelia finished the Vitality Westminster Mile in 11 minutes and 51 seconds, and Lily in 13 minutes and 21 seconds.
We raised approximately £350, exceeding our target of £100, and fingers crossed there will be some more to come. If you would like to donate to us then you can visit our fundraising page.
I hope you enjoyed our post. Keep an eye out for us in the future, we hope to make the Olympics one day!
Lily and Amelia Smith.
Since 2013, Chris has managed to complete 100 marathons in aid of MS-UK, racking up over 2,500 miles! What is the secret to Chris' success? We spoke to him to find out...
I ran the Virgin Money London marathon in 2013 and 2014, the London to Brighton 100km (63 miles) challenge, the 15 marathons challenge in 2015, and the 30 marathons challenge in 2017. My 100th marathon, at Betteshanger Country Park, was also in celebration of MS-UK!
When my wife Jennie was diagnosed with MS in 2011 we turned to MS-UK for help. They were brilliant. They gave Jennie access to the help and support she needed at the time and ever since. I decided to do something to support the brilliant work they do for people living with MS. Now, seeing the centre grow and the facilities develop, it feels great to have played a part.
I have run several navigational races and normally get lost which adds to the fun! During the London to Brighton challenge in 2014, a fellow runner was following my head torch to help get over a stile but missed the jump and fell over in style!
I found it easy to raise money the first time around as the 100 marathon challenge is a massive commitment that everyone is eager to see you complete. In the years that followed I have found events such as quiz and music nights really worked well. I hosted a fundraising penalty shootout which worked well too.
For my next fundraising challenge I will be taking on a 100 mile run in Dover in 2019. As 63 miles is the furthest distance I have ever run, I feel like this will be my biggest challenge yet! If you would like to donate you can visit my JustGiving page!
This month our fundraiser of the month is Joshua Joseph. Joshua ran the British 10k for us on 09 July and has been fundraising for the last month in support of MS-UK! Here is his story...
My name is Joshua Joseph, I’m 25 years old and I fundraised for MS-UK in the Virgin Sport British 10K run.
I chose MS-UK because very recently my best friend was diagnosed with MS. It’s in its infant stages, however I felt so lost and scared that the only thing I could do was try to raise some money and support the cause the only way I knew how. I did the British 10K in the past and thought this would be a good place to get fit and do something that showed support for my best friend.
In all honesty, I chose MS-UK because when I was looking online I really liked what I saw, plus I really liked the logo! I remember the day I found out about my best friend, this run literally came into my head and I thought it had to be done, that was my only drive to do this event.
I tend to keep quite fit, however cardio is my kryptonite, I think it always will be. I found myself out on some of the hottest days of the year, doing an odd 3K, 4K here and there. I remember one day I did an 8K and my knee was killing me, which made me realise that I needed to wear a strap when running. I wanted to have little sachets of peanut butter, but because of sheer laziness, that didn’t work out lol. I thoroughly enjoyed my training, I think that’s one thing you need to do. It’s a very serious thing and doing it really helps to get your mind in the right place. Training really allowed me to understand exactly how much my body could take.
I managed to raise (at the time of writing this) £1,206, my target was £1,000. I originally thought of aiming for £500 as I thought that might have been a push, however my friend said, ‘Go for a grand, you can do it…’ – So I did. I made the page on JustGiving.com and put the link on my Instagram and Facebook. I think because a lot of my friends have a large social following, the message spread quite quickly, that and the fact my first donation was £200, which came from a very close friend of mine, so that gave me a good bumper to start my fundraising.
In terms of fundraising, I would say don’t be shy when it comes to telling people that you’re raising money for something, especially when it’s such a great cause. I will continue to raise and I will continue to push myself to do different things.
This has been an amazing journey.
I honestly don’t think it’s set in for me that my best friend has MS yet. He was there when I was born, he named me, I honestly can’t think of a time we didn’t speak. So if by raising money, or simply answering a text or call when he’s annoyed is all I can do, I’m going to try my best to take care of him.