I woke up on Sunday 26 April, London Marathon day, or at least it should have been! It should have been the 40th anniversary of the event. I thought about those who should have been taking part, the months of training, the moments of pain and the little victories along the way. I picked up my phone with my cup of tea and started catching up on the social media updates when I came across an MS-UK post on Facebook “The 2.6 challenge, Save the UK's charities, 1 Day to go”, and it was posted yesterday meaning launch day was today!
I dropped a quick comment to ask if it was too late to sign up and on hearing I wasn’t too late, I quickly started thinking about what I could do. I glanced around and saw the face of the famous Pokémon Pikachu painted on the side of my beer barrel from a previous event, he looked at me smugly from across the room and my challenge started to come together.
I decided that I was going to dust him off and carry him while running 26.26km, in keeping with the 2.6 challenge. I set up my JustGiving page and told the world about my challenge for MS-UK.
It got to 5pm and as I was walking to my start line I check my JustGiving page to see I had already raised over £200, which was the perfect little boost I needed before setting off!
At 5km in my elbows were already screaming at me, I had some water and a bit of flapjack and set off up the river path. I negotiate the barrel into different positions to ease the pain on the elbows. If I held it in one hand over my back it bounced on my shoulder blades, in front of me it banged on my hips, two hands behind my head and my elbows filled with pain, there just isn't a comfortable way to carry that thing! I focused on all the reasons I was doing this, I'm running this for my parents, I'm running it for those that can't, I'm running it to raise vital funds for a charity that is due to lose out. This isn't about me or my challenge, it's about them.
I reached the half way point and pulled out my phone to find messages of support, I snapped a quick photo, picked up my barrel and continued my run feeling a little more refreshed from those encouraging words. I saw a family ahead and moved well over to let them pass, but really I was grateful for a short rest. As they passed I heard, “You do realise they make smaller water bottles mate?” It made me smile and once they'd passed I carried on, getting ever closer to the end of my journey.
Three hours after I had set off, the sun had started to set in the sky and I was just 3km from the finish. I took one quick photo with the sunset and then I picking up my pace because I knew I was almost there. Literally on the home stretch now and running towards my house, barrel in front of me, I was regularly checking my watch for distance. I watched the numbers tick over… 25.90, 26.00, 26.10, 26.2... 26.26km, I was there! It was done! My hands felt bruised, my legs tired and I felt like what I had just achieved was harder than the marathon itself. I checked JustGiving again to find the total was now over £300! I was astonished at the generosity from friends, family and even social media followers.
It was then time for a bath and a cup of tea! I feel happy to know I've helped my charity in their time of need.
If you would like to make a donation to Gavin’s fundraising page visit his JustGiving page here.
As soon as I found out I had a place on #TeamPurple in the Virgin Money London Marathon 2020, I started telling everyone, and I mean everyone!
Setting up a JustGiving page makes sharing your fundraising story so easy. As soon as I had mine set up, I shared the link with friends, family, work colleagues, clients and suppliers at work, even the WhatsApp group that all the neighbours in my building are part of.
Spreading the excitement
Being passionate and truly caring about the cause you are running for is infectious. People feel it and get behind you because of it. Don’t worry about boring people, or get wrapped up in what they think about what you’re doing, as that’s not a productive use of your time and energy.
As well as donations from friends and family, I sold teams on a football scratch card. If you search ‘football scratch card’ on Amazon you can buy a pack of 10 for £3. I sold each team for £10, with £200 to go to the winner and £200 for MS-UK. I timed it to be drawn just before Christmas which I think helped get the squares sold. I’ll definitely be doing another card pre-race day.
I have also been in touch with my local community manager at Tesco to organise bag packing. I’ll be pushing for Easter weekend so that the shop will be a bit busier, and it’s not long before the race itself! I have linked up with a couple of other runners near me so that we can take this on together and have more of a presence in-store.
Running for my mum
My mum had secondary progressive multiple sclerosis. Her left leg was worst affected, making walking a daily struggle.
She would often fall in public and be left humiliated and, of course, in pain.
In September 2013, she was admitted to hospital for an unrelated skin infection. On discharge she was largely bed bound as her MS became increasingly aggressive, spurred on by a weakened immune system. A combination of all of the above led to her suffering a pulmonary embolism and passing away on 26/09/13. I don’t need to tell anyone how hard losing a parent is. I am completely and utterly lost without my mum and, even six years on, it’s as rubbish as it was then!
I was too young, selfish and naïve to take control of the situation for mum. I want to run the London 2020 Marathon in memory of her and to raise funds for MS UK to be able to help others with MS because of this. MS is misunderstood, it affects everyone differently and is completely unpredictable. I want to play my part in changing this.
My top tips
If you’re training for a big run, get started on your fundraising as soon as you can so you can smash it out of the park early and focus on training
Talk to everyone about it. It will connect you with people in a way you would never have imagined.
Use social media. I’m documenting my training on Instagram (@healthylivinglisa_). It’s an amazing tool to get chatting to other runners and widen your network even further.
Get yourself into the Facebook group and connect with other MS-UK runners. There are also a few London Marathon Facebook groups with thousands of people to chat to and get tips from.
Not everyone has this opportunity, certainly not those that are badly affected with MS, so it’s important to recognise how much of a privilege we all have to be part of #TeamPurple and what an honour it is to spread awareness and take this challenge on.
This guest blog is from Poppy Storey, aged seven, from Kent, who did the Tough Mudder with her brother Heath. Poppy’s mother, Helaina, is running the Virgin Money London Marathon 2020 for MS-UK too. The Storeys really are a force to be reckoned with!
My name is Poppy. My brother Heath and I raised £420 towards Mummy’s goal by doing a Tough Mudder. We had to run and go over lots of obstacles and we got really, really muddy!
I wanted to raise money for MS-UK so my Nanny can get better. My Nanny is really kind. I want everyone with multiple sclerosis (MS) to be happy and get well soon.
My favourite obstacle was the tunnel because going through it was really fun and it was like I ended up at a different place at the other end. It was really mysterious!
I didn’t really like the monkey bars as much because they were really hard to go on and Heath had to lift me and my hands were so muddy they kept slipping off, so it didn’t work. My little sister Imogen ran round everywhere with us but not in the track, obviously. She ran next to us at every obstacle and she was very excited.
A really funny part was when I couldn’t feel my legs because all the mud went into my trousers because when we went on Mud Mountain, every time I went down the hill I fell down into the water and started to float and it felt really weird.
One of the obstacles, Everest, was funny because I kept slipping down it and I got some mud in my eye when Heath tried to pull me up. He poked me in the eye with his muddy hand and Mummy poured water into my eye and scooped it out with her finger! Mummy said I was so brave and we got a treat at the end which was a sherbet ice cream and it was really sour.
At the end we got hosed off at the water station and my trousers were so heavy I couldn’t walk to the car!
Mummy told her friends to sponsor us and our school put it in the newsletter so our friends could sponsor us too. Daddy said we did such a good job and he donated another fifty pounds!
It was really fun and I was actually very surprised how much money we raised. We loved our MS-UK vests and even Mummy has one with her name on for the marathon. Go Team Purple!
Danny Holland, one of our clients at our wellness centre, Josephs Court, has helped MS-UK year on year since 2016 with a sponsored head and beard shave to raise money to help people affected by multiple sclerosis (MS).
‘This is something simple I can do to, at the very least, to help raise money for my charity.’
‘I myself have MS so I can understand how much pain and discomfort others are going through. That's why I want to help them by raising money for MS-UK and by doing so, it gives me a great feeling of happiness.’
‘I participate in the hair and beard shaving challenge to raise money and I also have a very close friend of mine who helps in collecting the money.’
Danny raised £112.38 this year, bringing his grand total raised so far up to £396.72! This money helps us to run Josephs Court, which supports people with MS to maintain their wellbeing and live independently.
If you would like to raise money for MS-UK our dedicated fundraising team are always on hand to help. We have had people raise money in lots of different ways, from sitting in a tub of baked beans to skydiving! Simply call Lucy on 01206 226500 or email email@example.com.
In this guest blog our October Fundraiser of the Month, Dan Young, tells us about how he raised an amazing £870 for MS-UK by walking the length of the River Thames this summer...
On 12 August, I set off to walk the length of the River Thames from the source in Kemble, Gloucester to the Thames Barrier.
When planning to do the walk, I decided to do it in memory of my Gran who had passed away after living with multiple sclerosis (MS) and as such, chose to raise money for MS-UK.
The route is 184 miles mainly following the Thames Path and at about 16 miles a day, I expected it take 12 days of walking through the summer heat. However, the British weather did not fail to disappoint. The first week poured with rain and in the second week, the temperature rose to 30C at its peak.
The weather made it harder than it already was. The long walks without seeing anyone were tough. I could walk 10 miles in the Oxfordshire countryside with only cows for company so when I finally saw another person I instantly wanted to talk to them!
Speaking of animals, they can be stubborn when they want to be. I had a number of situations with cows and sheep refusing to move out of my way, which left a dip in the Thames my only option at times. They were mostly harmless though and it was nice to roam through the fields and hills in the countryside and enjoy the long walks.
The scenery changed as I approached Reading and towards Central London. It was quite a relief to start walking on actual paths rather than cuttings in the grass as my feet started to feel every lump and bump in my path.
As I got into Central London, I soon turned into a tourist, walking past the Houses of Parliament and crossing the river to walk past the almighty Shard.
The end stretch from Tower Bridge to the Thames Barrier was the toughest! At this point, there were only 10 miles left but my feet were not in the best state. The area around the O2 gives little shade apart from the reflection of the sun off the skyscrapers of Canary Wharf but I pushed through. I finished at the Thames Barrier, 11 days and four hours after starting and had raised an amazing £870!
I am absolutely thrilled that I’ve stepped forward (no pun intended) and done it!
I’ve already started to plan my next adventure but for now, I’ll put my feet up…
Has Dan inspired you? Get in touch with Lucy if you would like to take on a challenge to raise money to help people affected by MS. Email firstname.lastname@example.org or call 01206 226500. You can donate to Dan’s cause via his JustGiving page.
This month’s Fundraiser of the Month is Mathilde Bru, who swam one mile in the 2019 Children with Cancer Swim Serpentine in September.
My mum was diagnosed with primary progressive multiple sclerosis (PPMS) around five years ago when I was 16 years old. My four younger siblings and I have witnessed first-hand the effects of this life-changing illness, and so I wanted to do something to support other people with the same illness as her.
Although there is no known cure for MS, by living with my mum I have seen that there are things that can be done to improve the quality of life of MS patients, and for this reason, I can see how crucially important MS-UK is as a charity.
To raise money to help people affected by MS, I decided to take part in the 2019 Children With Cancer Swim Serpentine one-mile swim in Hyde Park. The first time I practised swimming in the Serpentine, two swans swam up to me - I’ve always been quite scared of birds so started swimming away as fast as possible, and actually ended up swimming a full mile just trying to swim away from them! The training has definitely helped with my fear of birds, as I’ve become more used to sharing the lake with the swans (who are actually much less vicious than they are said to be!)
Raising money for MS-UK has made my swim preparations a hundred times more rewarding, and I am so glad to have signed up as part of #TeamPurple. I have received a huge amount of support and advice from both the people working at MS-UK and from the other swimmers, who have shared countless amounts of training tips and motivational support. Moreover, raising money for this charity, and sharing my fundraising page to my friends and family has been a huge source of incentive for me to train harder, as I provided updates on my practice swims. My tips for fundraising would be that others send as many emails around as possible, share on all forms of social media and annoy people enough until they donate!
Mathilde has now raised £1,827.08 for MS-UK! If you would like to donate visit www.justgiving.com/fundraising/mathilde-bru.
Earlier this month, Gary Beck and I did the Prudential RideLondon-Surrey 100 event. My wife Diana is Head of Services for MS-UK and I went with her as a volunteer supporter at the Virgin Money London Marathon in April. I was so inspired by the experience that I wanted to do something myself. I didn't think I had a marathon in me but when I heard that I could support the charity with a 100 mile bike ride I signed up immediately. I work with Gary and when I told him I'd signed up he said he'd do it too!
The most interesting thing about all the training (and there was lots of training!) was that you get to see all sorts of things on a bike that you don't see from a car. I've nearly run over dozens of pheasants, seen stoats and weasels, a buzzard that nested at one of my stopping places, foxes and deer and I've even seen a snake for the first ever time in this country. I can also guarantee that potholes are worse on a bike than they are in a car!
Gary was responsible for a lot of the fundraising and he managed to twist the arms of a lot of people at his golf club. I have to say a big thank you to the Colne Valley Golf Club Swindle Members who raised over £250 between them. I also have to thank my employer, Gallagher, which has a charity commitment to double anything it's people raise. Thanks Gallagher! That's my main tip - a lot of companies will match any funds raised by their employees so it's always a good idea to ask.
Perhaps the funniest thing to share is that I've broken my vow never to wear Lycra. I can't say I'll be rushing to buy any more Lycra gear but it did the job on the day.
I thoroughly enjoyed this event. I enjoy cycling but I've never done anything like 100 miles before. The only thing I'd really say is that if you fancy doing something like this but aren't sure if you can do it then have faith, you'll be surprised at what you can do.
We have places in #TeamPurple for the Prudential RideLondon-Surrey 100 2020! A lasting legacy of the 2012 London Olympic and Paralympic Games, this event sees more than 25,000 cyclists take on 100 miles from Queen Elizabeth Olympic Park, through the city and onto Surrey's stunning country roads and the Surrey Hills before the brilliant finish on The Mall in central London. Could you be one of them? Every penny you raise will help MS-UK support even more people affected by multiple sclerosis (MS).
Hi, my name is Nicky Sawyer I am 53 years old. I became aware of multiple sclerosis (MS) when I was a carer in my community as several of my service-users had MS. Each service user was completely different and they all had different stages of MS.
In 2013, my daughter Sam was diagnosed with MS and she had been having symptoms since 2011, obviously we were all devastated! Sam had her son in 2012 and although has her difficult days, she does everything for him.
Four years ago when ‘brave the shave’ was starting to really take off for women, I decided to take the plunge and shave my head, and I raised £2,500 for the MS Society!
I’ve said on many occasions that it was time I did something to raise money for MS again, and even suggested Sam and I did a skydive, but Sam wasn’t so keen on this idea! Instead, Sam asked if I fancied doing the walk over the O2. ‘Why not?’ Was my reply, but let’s raise some money! And this time we chose to raise money for MS-UK.
So with only two and a half weeks to go, I asked my friends and the customers at work to help me raise some money. Soon enough the total started to mount up! I had been sponsored for £285.50 by the time we did the walk. However whilst doing it we were approached by a lovely lady and said she would like to donate to MS-UK, she gave me £10! So I donated £5 myself to round up the figure.
Sam still doesn’t want to do the sky-dive, but I will be next year with my son, so watch this space!
I would like to thank Lucy from MS-UK for all her support and I look forward to working with her on my skydive challenge next year, and to everyone that supported me and Sam on this journey!
If you want to do something different like Nicky and Sam did, email Lucy at MS-UK or give us a call on 01206 226500 to get some information and support along your journey!
In 2013 my lovely mother got diagnosed with multiple sclerosis (MS). When we got the news of course we were devastated, not knowing much about the condition apart from the fact it was “incurable “ through medication and put her in a lot of pain, we just all did what we could to support her but for years I have felt helpless. She decided not to tell anyone but her close friends and family of the condition she was living with...why you ask?
My mum is one of the most strong, independent, driven and successful women you will ever come across. In 1999 she was awarded the Ernst & Young trophy winning Young Entrepreneur of the Year. From 1992 - 2012 she owned a very successful business expanding world wide in over twenty countries and for years she was on the panel of the DSA and was well respected in the industry she was in. Sadly, I believe because of all of this she put pressure on herself to portray this strong business women, I think she thought people would take pity on her or think she couldn’t get the job done if she came clean that she had MS. So instead she suffered in silence, for a few years she was CEO of a large network marketing business which was an extremely high pressured job and to get her through the pain day to day she would take morphine based pills which again is something none of her colleagues knew about.
In 2017 my mother found herself heading up Europe for one of the largest essential oils company in the world doTERRA, here again she would be working 70 hour weeks, another high pressured role but this time she would be taking over 100 flights a year around Europe. Anyone that has MS will know that one of the biggest struggles is tiredness, so it won’t come as a shock to you when I tell you that she was exhausted. But this time something was different, as she was now part of this essential oil business she discovered natural medicine and in time found the perfect essential oils to support her immune system and pain relief and now to this day is morphine free.
In June 2018, even though my mum was at her healthiest, her strongest, pain free and our “happy mum”, I still felt I needed to do something to help her and others with MS and also families that have lost loved ones through MS. I took the plunge and decided to apply to run the Virgin Money London Marathon 2019 to raise money for MS-UK. They help people and families through some of the darkest times. This journey has been incredible - I have not just been able to raise over £2,000 but I have also learnt so much about myself too, I feel so proud to be a part of it all and to have run for such a good cause with an amazing charity.
Last month my mum told me that I had given her the strength to tell the world what she had been hiding for years, she told her colleagues and thousands of people who work alongside her, friends she had not seen for years that she has had MS for over 6 years. People where stunned, some sad, some happy because her story had also helped them, but most of all no one took pity on her!
So my 'WHY' is my mum, I ran for her, for the strength she has shown, for never giving up, for still pursuing her career even though at times it was nearly impossible to get out of bed let alone run a business, for now helping so many other people with MS find a natural solution that works with them, for having the strength to tell everyone that she will fight and lastly for being the best mum I could wish for!
Applications are now open for MS-UK #TeamPurple places in the Virgin Money London Marathon 2020!
I signed up to the Etape Loch Ness cycle event last September. A close friend had decided that we would become the 'Invernairne Try Team', a team of four who would undertake challenges to test ourselves and keep fit. The initial plan was to try a triathlon, but somehow we ended up entering the Etape Loch Ness, a 65-mile cycle event that starts and finishes in Inverness, and which takes 5,600 cyclists around Loch Ness, offering spectacular views and scenery alongside some physically and mentally challenging climbs. I decided that if I was going to attempt it, I should try to raise money for a charitable cause and I chose MS-UK. Thankfully, deciding to ride for a cause kept me going to the finish line.
My mother was diagnosed with multiple sclerosis (MS) in 1973 when I was ten years old. Back then there was little in the way of help and support and life wasn’t easy for my mum or us as a family. Sadly my brother has recently been diagnosed with MS but hopefully, with advances in research, medication, therapy, and support, his experience will be a lot more positive. I also think that by fundraising it has brought awareness to the fact that my brother has the condition and recognition of the issues faced by those diagnosed with what is often a misunderstood condition.
I chose MS-UK because they support and encourage those with MS to continue to live life and challenge themselves. They also offer invaluable support through the MS-UK Helpline, MS-UK Counselling and the excellent magazine, New Pathways. I feel that if we previously had access to some of the services offered by MS-UK, life for us a family might have been a little easier.
I think the biggest challenge was the fact that neither the rest of my team or I were experienced cyclists. We were all quite fit for our respective ages but most of our training over the winter had to be indoors, as with short days and icy mornings we couldn’t really get out on the bikes until March. We also had the challenge of the five-mile hill hanging over us, and all we could do was push ourselves on indoor bikes with no idea what lay in store.
When we finally hit the road on the day, we had survived a few crashes and miscommunications, learned how to change a bike tyre, and stocked up with jelly beans to keep us going, but the furthest we had cycled was 40 miles. Thankfully the weather was kind and we all managed to complete it without any disasters. My indoor training really paid off and I am delighted to report that I finished in the middle of the pack and managed to stay on my bike up the five-mile climb. It was tough though and I was so relieved to hear the piper who welcomes riders to the top. Never has the sound of bagpipes been so welcome!
From then on it was almost all downhill, with a few nasty but shorter climbs thrown in to keep you focused. Thankfully the road home was dotted with fabulous volunteers - their encouragement was invaluable to seeing us all home.
Would I do it again? Well, I did it enjoy it and I’ve registered interest for next year. I don’t have to make my mind up until September, but it would be a shame not to tackle it again with a bit more training and experience. However, having said that, we’ve still got a triathlon to attempt and as I’m a rubbish swimmer, the next challenge may have to be in the swimming pool. To be honest, I think I’d rather tackle that hill again!
I have always felt that it is important to challenge yourself, and while I am fortunate to be fit and healthy enough to take on new challenges, I’ll continue to try new things. Hopefully, the money raised, with the help of MS-UK, will encourage those with MS to not give up, find ways to make the most of life and overcome their personal challenges.
For fundraising, I used JustGiving, mainly because it makes it easy to share your page on social media and enables you to post updates to keep your donors informed. It also deals with Gift Aid, which added another £500 to my fund. Emailing the link to my friends and family and sharing updates on Facebook was invaluable. I also feel that it is essential to thank your donors personally and I took time to thank them individually on Facebook and by email if I had their email address.
If you would like to try your hand at fundraising for MS-UK, contact Lucy on 01206 226 500, or email email@example.com.