In her latest guest blog Joanne writes about Christmas and multiple sclerosis (MS)...
Sorry it’s taken me so long to write. I’ve been battling bugs and the MonSter has come out with vengeance.
With Christmas only around the corner, I put my best foot forward (left if you’re asking!), grab my stick (I’ve realised it doesn’t work well in winter) put some lippy on and carry on Christmas starts in full swing. I may look like I’m in the Christmas spirit, but on the inside, my MS is bubbling away.
I’m secretly wanting peace and quiet.
I probably sound all bah hum bug as on the one hand, it is the most wonderful time of the year but it also feels like an assault course. Twinkly lights, the smell of evergreen, secret eating of cheap chocolate coins, knowing the big FC is coming soon and everyone running around like headless chickens.
Little man is still too young to fully understand but he does love Christmas like his mummy.
Christmas and MS don’t mix. MS is holding me back. I’ve had to scale back. What am I doing to make Christmas run as smoothly as possible:
Keep calm and carry on
Don’t stress out. With pressure to have this perfect Christmas, whatever perfect is, I try to ease the pressure by focusing on what’s important and remembering I live with MS, that’s pressure enough. Remember it’s only one day. Don’t over commit yourself. Do what’s right for you.
Tiring for all, but exhausting for you. There’s more travelling whether it’s seeing folks or going out and about. Food and drink topped with long days have their toll. Don’t ignore any vegging opportunities but plan rest. Like Christmas presents, MSers need our batteries charged too!
Blooming heck it is cold! It’s snowed recently, dark days and the heating is on full whack, so I’m feeling more tired, the cold is making my MS worse, getting out of a warm shower is my cryptonite and if someone sneezes, I’ll probably get the germs. Many things to contend with, so the girl guide in me is being even more prepared. I’ve bought supplements, wear lots of layers and my wheat toy monkey is on standby for placing on my MS mad hands or warming me up. Plus little man thinks it’s funny seeing him spin round in the microwave.
I can’t write, so no card writing. Annoying but probably a blessing. I try to focus on what’s important, rather than what I can’t do. Charities get my card money instead of the card manufacturers. I insist on hubby having time to help, whether it is present wrapping or shopping. Instead of list writing, I use the internet to save all my gift ideas and finally shop. It also helps with requests for buying for little man.
Christmas is about many things, for me, it’s also about random acts of kindness.
When little man saw the big man, the kind staff made it easier for me. Obviously you’d like it to be magical (and value for money) but I was also thinking about me. Not judging my mobility, was the cherry on the cake.
Recently I emailed ahead to get a table at a local bar. The bar reserved the table, so I could sit and enjoy drinks with ease. My friends have cooked meals and brought as a surprise. Many acts of random kindness. Before I wanted handbags or shoes, now I dream of kindness ( I still have the bag and shoes, although make them lovely flat ones!) So as the saying goes, I hope this isn’t just for Christmas.
So whatever your Christmas brings, let’s hope it’s happy, merry and kind. Remember kindness costs nothing (not like a drone at £500!)
Health and happiness to all.
With so many creative ideas coming from our supporters it was about time I got involved with a Festive Frolic of my own!
So, when one of my best friends Lucy offered to hand-make some Christmas cards and sell them on behalf of MS-UK it seemed like the perfect opportunity to get some friends together.
The evening started early at 7 pm and friends and neighbours dropped by to buy cards and Winter Draw tickets and have a glass of fizz. By the end of the night all of the cards were sold and a few of us stayed on for a good old natter and to finish up the Prosecco.
It was a great excuse to get friends together, meet new people and raise money for MS-UK at the same time!
So with that in mind, it’s not too late to organise a Festive Frolic of your own! If you don’t fancy hosting your own party you could make a donation and wear a festive jumper or woolly hat to work?
Or you could have a family and friends minced pie bake off! All donations from pie sales to MS-UK!
So my advice to you is don your Santa hats, get your reindeer jumpers on and bake some mince pies and hold a festive get together all in aid of a great cause!
To join in with the fun, just visit www.ms-uk.org/festivefrolic today!
Head of Fundraising, MS-UK
Well, our Winter Appeal has now launched, and we need your help! Here’s the top 5 ways you can support us this Winter…
Give as you Live and raise money for MS-UK!
Thanks for all your support!
Marketing Manager, MS-UK
Time really seems to have flown by this year, and with so much going on it’s hard to believe Christmas really is just round the corner! I’ve already started singing Christmas songs in the office here at MS-UK.
And being the Christmas enthusiast that I am, the countdown clock is ticking which means you have 49 days of present buying time left.
That’s 1191 hours to wrap all of those presents if you are the super organised type who bought all your presents in September.
Or my personal favourite 71,453 minutes to eat as many mince pies as humanly possible. – yum yum!
With everything else you need to remember the last thing you want to do is forget to send those all-important Christmas cards, and we are here to help!
Have a look at our online shop and see our wonderful selection of cards just £3.50 for a pack of ten or three packs for just £9 plus postage and package. Just add the discount code xmas15.
The end of October is fast approaching, but you still have enough time to order your MS-UK Christmas cards and get a free pair of Myles bear ears!
We have 3 different designs: Angels in the Sky, Christmas Trees and our fabulous Polar Bears! The message inside the card read With Best Wishes for Christmas and the New Year.
If you order 3 packs of MS-UK Christmas cards before 31 October 2015, you’ll get a free pair of Myles bear ears!
All orders are plus post and packaging.
You can order by calling the MS-UK office on 01206 226500 or purchase online at www.ms-uk.org/christmascards.
I look forward to receiving your orders!
Customer Services Administrator, MS-UK