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Swim Serpentine success!

Posted on: September 24 2018

Kirsty finishing the Swim Serpentine!
Kirsty achieves her London Classics medal!

Hello!

It's Monday morning, but we are still excited from the amazing weekend! Our amazing #TeamPurple swimmers Jeremy, Janice and Kirsty all braved the cold waters in Hyde Park on Saturday 22 September at Swim Serpentine - and they all achieved their London Classics medal!

Swim Serpentine is a one-day open water swimming festival staged in the heart of London. Organised by London Marathon Events, the festival is held in and around the beautiful Serpentine in Hyde Park, the venue for the open water swimming competition at the London 2012 Olympic Games. Early Saturday morning myself and Laura from MS-UK set off in the rain to make sure we were ready to cheer on our dedicated swimmers, and we were not disappointed! 

Now in its third year, a record breaking 6,000 people entered Swim Serpentine this year...the atmosphere was electric and it was fantastic to hear so many people were going to complete a 2 mile swim and enter the London Classics hall of fame...The London Classics is a challenge that recognises participants who have completed all three London Classic events - the Virgin Money London Marathon, the Prudential RideLondon-Surrey 100 and Swim Serpentine. What an achievement!

Jeremy and Janice at Swim Serpentine
Jeremy and Janice, our #TeamPurple champions!

For Jeremy, Janice and Kirsty, they realised this dream on Saturday and I was so proud to be part of the moment they grabbed their weighty London Classics medal - congratulations guys!

If you're inspired to join #TeamPurple, visit the fundraising section of our website to find out about all the different things you can do, or get in touch with the fundraising team. Plus don't forget to check out the photo album from Swim Serpentine on our Facebook page!

To all the swimmers on Saturday, a massive well done from MS-UK!

Jill

Fundraising Manager, MS-UK

Last chance to take our supporter survey!

Posted on: September 21 2018

Hello,Photo of Jill, Fundraising Manager

Fancy being in with a chance of winning a £25 Debenhams gift card?

This weekend is the last chance to make sure your voice is heard in our supporter survey - so please do let us know what you think by taking our survey! The survey closes on Monday 24 September 2018.

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The prize draw will be on Tuesday 25 September, so by next weekend you could be going shopping!

Good luck, and thank you for giving us your feedback, it really does help us plan for the future,

Best wishes,

Jill

Fundraising Manager, MS-UK

Fundraiser of the Month - Cycle King Charlie Stebbings!

Posted on: August 16 2018

Charlie Stebbings5.jpgMy name is Charlie Stebbings and, along with a 14 strong team, I cycled from London to Paris between 04 - 06 May.

Myself, Mortimer McKechnie, Paris Baker, Millie Bampfylde, Tom Sater, Alicia Hanmer, Rob Gibson, Occy Cobb, Paddy Rogers, Lucy Munday, Robin Butler and Tom Everard decided to commit to this challenge in aid of three fantastic causes -  MS-UK, Cancer Research, and SUDEP Action. Along with our amazing and indispensable support drivers Jack Smail and Helen Callaghan, not to forget our two broken bone casualties Katie Barton and Minty Naylor, we made a formidable fundraising team intent on giving as much support as we could to these fantastic causes.

MS-UK has been a fantastic support to our family over the last eight years since my mother was diagnosed. The work they do for suffers and their families is integral to all those affected by multiple sclerosis (MS) and therefore it is always a privilege to fundraise for them. Having said that, the pain you experience near the top of the mountain on day two at mile 95 was accompanied by a ‘what are we doing’ moment, but that is part of the fun! We organized this challenge to test ourselves and push us so that everyone felt that sense of achievement and success.

The 300 mile trip over three days was a brilliant way to do just that, and apart from Tom Sater Cycling into the back of Lucy Munday as he was being sprayed by a very friendly Frenchman watering his plants, and my exploding tire in Paris, we made it without a hitch. The 30 degree weather was both a blessing and a hinderance, but there is no doubt it kept moral high and helped those of us often void of a tan suitably rosy.

The fundraising experience is one that we can all approach in different ways, but we liked to get people engaged with the trip and run fundraisers instead of solely distributing letters or emails etc. I think there is nothing more enjoyable and motivating than hosting an event which shows you how much support you have for the charities and how many people genuinely care for your cause. I recommend it to anyone who haven’t involved people tangibly in their fundraising to try it. It adds that extra dimension and can remind you why you are doing this often crazy challenge!

Gift aid included, we raised £20,600 and am delighted to be able to give MS-UK some of that money. I must thank my team for supporting this charity with such enthusiasm. It means a huge amount to me, my family, and hopefully everyone in this community.

On to the next one!

Cycle for MS-UK

 

 

Diana defeats the Yorkshire Three Peak Challenge!

Posted on: July 25 2018

07.2018 - DC Yorkshire 3 peak challenge (7).jpgClimbing three mountains is harder than climbing one. That's just basic maths. In our latest blog, Diana, Head of Services here at MS-UK, tells us how she beat the Yorkshire Three Peaks Challenge...

On Wednesday 23 May I received a text from my husband saying he was organising the ‘3 peaks thing’ as a fundraising event for his employer’s charity of the year. He said ‘it’s hard work but doable’ and ‘it’ll need quite a bit of training’! I casually agreed to it as long as I could fundraise for MS-UK.

Now, I consider myself to be quite fit. I play netball once a week and had recently completed the NHS Couch to 5K programme, running three times a week until the heatwave descended upon us.

07 July saw our training walk in Sussex – the Seven Sisters walk in 30 degrees heat while England were playing their quarter final against Sweden in the World Cup. It had been graded 9 out of 10 in terms of difficulty. After the 12 miles we completed I had nothing left in me. But my husband threw a Mohammed Ali quote at me ‘Train hard – fight easy!’.

5am on 21 July we are up and heading to the start line of the Yorkshire Three Peak Challenge. Our kit was checked and a briefing given and we were off. 24 miles in 12 hours was the challenge, reaching the summits of Ingleborough, Pen-y-ghent and Whernside. Being extremely competitive I started off keen but after finishing the first peak I wondered how I would ever complete the challenge.

Our group leader, a professional mountaineer encouraged us by calling us his ‘Warriors’! No time to rest, no time to take in the views, we just had to power on. Regular painkillers for the dodgy hips and we soldiered on.

I have to say this was the hardest thing I’ve ever had to do, but whilst I had my head down, and I was quietly battling my fatigue, I remembered why I was doing this challenge. As Head of Services at MS-UK I am inspired every day by people affected by multiple sclerosis. They were my motivation and what got me through.

I managed to complete it in 11 hours and 03 minutes and so far I have raised over £300 for MS-UK. Here is my fundraising page if you would like to sponsor me.

Fundraiser of the month - James Harrison the skydiving superstar!

Posted on: June 17 2018

James SD 1.JPG'My name is James Harrison. I was first diagnosed with multiple sclerosis (MS) in 2014 following on from around two years of unexplained relapses in both physical and neurological difficulties. I put the relapses down to stress as I was working my first professional job and was put under an immense amount of pressure. This work stress lead me to change my job to something much less stressful, although still unaware I had an underlying condition.

'After having a relapse where I experienced the pins and needles, I got in touch with my GP to see what was happening. I had pushed the idea of MS to back of my mind and was sure it must be something else, something much less serious. This then triggered the need for an MRI scan to determine what sort of neurological activity was happening. Not long after the MRI scan I was called for a consultation and given the diagnosis of having relapsing remitting MS.

'After the diagnosis started to sink in I was hit with an immense amount frustration, confusion, uncertainty and depression. Thankfully though, I was engaged to a very loving and caring woman, who did everything possible to keep my spirits up in the weeks that followed my diagnosis. My fiancée came with me to my first appointment with my MS nurse who discussed medication options. I decided to take Rebif Interferon as this was an injection three times a week and seemed the best option. Getting used to being on the medication was a lot to adjust to. Not being afraid of taking injections three times a week was definitely a shock to the system. The aftereffects left me groggy and also left me with an increased appetite causing me to gain weight.

After only 6 months of being on the medication, I was moved on to Copaxone due to increased liver functions. This was an injection every day and took some getting used to and the injection sights were becoming more noticeable. About a year of being on the medication I found myself feeling I had control over my condition and moved myself back into a job role that would challenge me and offer future prospects.

From there it was life as normal leading up to my 30th birthday were I was able to cross off the head line of my bucket list, a skydive, which my wife surprised me with on the morning of my birthday! 

It was the most exhilarating experience of my life and I came down a changed man as I felt 'if I can do that, I can do anything'! It was even more amazing to learn afterwards, my wife and family had secretly been raising money for MS UK. In the end we managed to raise £505.00. I have always wanted to raise money for MS but never got round to doing it, so having my birthday surprise double up as a sponsorship was a great idea. I learnt afterwards that my wife had not only been raising money but also awareness of MS, especially amongst her work colleagues.

Next for me and my wife is the news that we will be parents in December. This is something I have been waiting for my whole life and couldn’t be happier.

This will be another huge change for us both and will undoubtedly lead to some very tired times as well as many happy times. However, the place I am at with my MS, I know I will be able to manage any future changes and remain positive, and similarly with my condition whatever the outcome maybe.

 

 

Guest blog: ‘It’s a severe test of skill and physical and mental stamina’ just like MS

Posted on: March 20 2018

Chris Bishop, aged 58, from Henley-on-Thames reveals why he’s taking on the cold waters of the River Thames this Easter…

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Image credit: Henley Herald

My team mate Paul Reynolds and I decided to compete in this year’s Devizes to Westminster International Canoe Race to raise awareness and funds for two charities, one of which is MS-UK. We are team Forget Me Not! We both have friends and family living with multiple sclerosis (MS), so we have seen first-hand the challenges it can bring to someone’s life and that is why we decided to set our very own challenge. We will be paddling 125 miles in a Canadian Canoe or C2, while portaging 77 times over the Easter weekend, from Devizes in Wiltshire to Westminster Bridge in London. It seemed like the perfect challenge to help us raise money for and awareness of MS.

The Devizes to Westminster International Canoe Race has been held annually over the Easter weekend since 1948 and this year is its 70th anniversary.

The first 52 miles are along the Kennet and Avon Canal to Reading, followed by 55 miles along the River Thames to Teddington. The final 17 mile section is on the tidal portion of the Thames. The race is a severe test of skill, physical and mental stamina and planning, with the unpredictable British weather adding a further challenge.

We’ve been doing lots of training and I will say that rolling an open C2 into the freezing River Thames as part of our capsize drill, when you’re nice and warm wearing your multiple layers, does take your breath away!

Our target is to raise £10,000, so if you would like to donate to our efforts please visit our Team Forget me Not for MS-UK fundraising page.

Guest blog: In memory of Gramps

Posted on: March 13 2018

In April 2018, Laura Cassidy will be reaching the dizzy heights of 10,000 feet when she takes on a skydiving challenge to raise funds for MS-UK. In this guest blog, Laura tells us all about why this is so important to her…

grandad.jpg‘Doing a skydive has always been the top of my bucket list, so when I finally built up the nerve, doing it for charity really was a no brainer. Being able to have this amazing experience and raise money for a great cause…how amazing!

‘I knew straight away I wanted the money to go to a multiple sclerosis (MS) charity and after doing some research MS-UK really stood out to me.

‘My Gramps suffered with MS for a long time and my only memories of him are in a wheelchair but he always had a smile on his face. The care he received was always great so I am so pleased to be able to contribute to help other people.

‘I am so overwhelmed by how much I have raised so far and am desperate to reach £1,000 by the time it comes to my jump! I’m excited about it now but when it comes down to it I think I might have to be pushed out of the plane!!


We are really pleased to say Laura has smashed her £1,000 target, but you can still donate on her JustGiving page today!

Your donations help MS-UK support even more people affected by multiple sclerosisto really make the most of today and live life to the full. Thank you!

Fundraiser of the month - Wendy Cole

Posted on: June 15 2017

Our fundraiser of the month this month is Wendy Cole, who ran a 100k ultra challenge for MS-UK on the 27 May!

fotm-june.jpgHi! My name’s Wendy Cole. In August 2015 I took part in my first 100km ultra challenge, London2Cambridge. I’m a runner who fancied a change, so decided I would walk the route. I enjoyed the experience so much that I decided pretty quickly that I would take on another challenge, this time the London2Brighton 100km challenge on the 27 May, raising funds for MS-UK.

Back in 2014 I was very fortunate to receive a charity place with MS-UK in the Virgin Money London Marathon and found them so supportive prior to and during the race that it was a pleasure to get the opportunity to raise funds for them again.

I lost my Mum in 1997 at the age of 50 to Primary Progressive MS, so this is a cause very close to my heart and it’s great to be able to raise awareness of this disease and the work MS-UK do, supporting those affected by MS.

So, in July last year I signed up for London2Brighton in memory of my Mum. I knew I’d completed the distance before but also knew that this challenge would be much hillier. Too right it was!!! There’s a particularly huge hill at 88km, just where you don’t need one.

Again I decided to walk this ultra. I’ve run 11 marathons and 32 half marathons and found walking with a full rucksack quite different from running. You’re on your feet much longer, which is tiring, and you’re using different muscle groups, so ache in different places.

In the lead up to the big day, my training consisted of running three marathons, Brighton on 09 April, London (guide running with a visually impaired runner) on 23 April and Stratford on 07 May. I wouldn’t necessarily recommend running three marathons in five weeks!! I also walked the canal route from Worcester to Birmingham (28.4 miles) two weeks before the challenge.

At 8am on Saturday 27 May I set off from Old Deer Park in Richmond with just over 1500 other eager participants taking on the full challenge. The heavens opened just 0.6 miles from the start, but the rain stopped by the time we’d got our macs out. It was then dry for the remainder of the challenge. We walked day and night, on road and off road, over numerous stiles, taking in short refuelling stops every 25 kms or so at the checkpoints until we reached our final destination at Brighton Racecourse at 7.06am…still smiling, and for me, blister free.

I’m delighted to have exceeded my fundraising target of £300 and would like to thank Nick Adams from MS-UK for regularly making contact with me, offering support and generally seeing how my training was going.

My recovery’s been good. Two days after the event I felt pretty normal again and even managed to wear a kitten heel to work!!

I often wonder what my Mum would think of me now. I was a total couch potato until I hit the age of 40, so she has never seen any of these achievements. She’d probably think I was bonkers!!

Anyway, time for a little rest now…until the next challenge. I’m running New York Marathon in November and Tokyo Marathon in February, so will have a few weeks off over the summer until training starts again.

Wendy

The Skydiving Stag Night/High Flying Hen Do!

Posted on: March 27 2017

rory-and-hilary-5_0.jpgSo, everything for your friend’s wedding day has been planned, the day is getting closer and you’ve suddenly been asked as best man and woman to organise the stag night and hen do. Nightmare! You can’t think of anything to do!

Well, we believe we have found the answer.

We were discussing in the office what the most inventive and memorable stag or hen do would be, and as we discussed it, we realised that the answer was right under our noses and sitting at my desk the whole time. The most inventive stag/hen do would definitely be to go skydiving!

Thinking about it, we had seen skydives done before on some TV shows for stag/hen do’s and we thought it was the perfect day of pre wedding fun and would be a good way make the big day far less daunting for the bride and groom. You could also skydive during the day and then by night hit the town with your friends!

So, the other reason it would be the perfect stag do of course, would be that you can book it through MS-UK and fundraise for us at the same time. This would also make the jump completely free if you manage to raise the sponsorship minimum of £395 each. Leaving you with some extra money to treat your groom or bride to that big night out!

rory-and-hilary-6_0.jpgYou’ll also do several amazing things all at the same time...Support MS-UK and the services we provide, jump out of a plane at 10,000ft which is no small achievement and finally give your bride and groom an experience and a story they’ll never forget!

 

So if you are the best man or woman, or know someone that will be, maybe this could be the opportunity of a lifetime for them!

Get in touch with me at Nicholas@ms-uk.org or call me on 01206 226500 for more information on skydives! Alternatively, if you’d like to go straight to booking, please follow this booking link and fill out the form!

Nick

Fundraising Assistant

Happy Valentines!

Posted on: February 13 2017

Love is literally in the air this Valentine’s day!

rory-and-hilary-6.jpgValentine’s Day is just around the corner and a lot of people I know are trying to find the perfect gift for their loved ones! Maybe they’ve bought an amazing bouquet of flowers, a massive heart shaped box of chocolates or are treating themselves to a night in by the telly.

We at MS-UK, however, like to go a bit more extreme with our valentine’s gifts. We like to send people off to scream about their love from 10,000ft!!

Yes, I’m talking about a skydive for MS-UK!

We have a fantastic offer that has been passed to us by Skyline that is not to be missed! When you sign up to any event on skyline you can get two for the price of one on the registration fee. This means for a skydive you only pay a £70 registration fee for two of you to jump and if you raise over £395 each (£790 together), you’ll even get this cost back, making your jump effectively free!

This could be the most unique and perfect valentine’s gift for you and a loved one. But it’s not just limited to your valentine! You could also take the leap with your best pal or even that guy from down the street, the choice is yours!!

If you are interested in the offer and skydiving for MS-UK, you can use the code ‘SkylineValentinewhen booking on the skyline website here. This offer ends on 14 February at midnight, so be quick! Please also get in touch with me if you’d like a bit more information, my details are below!

Nicholas Adams
Fundraising Assistant
Nicholas@ms-uk.org
01206 226500

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