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Just keep swimming…

Posted on: March 09 2020

I’m still going!

This weekd9473de2-6eeb-4ecd-b54a-f84b1cc97d70_0.jpg will be my 18th swim which means I will have swum a third of my target, whoo hoo! That will be 1,080 lengths which is 27km. Lucy in our fundraising team has just informed me that is almost 17 miles.

I swim every week at Clacton Leisure Centre and the distance from the pool to our office in Colchester is just under 15 miles. I am amazed that I have swum further than that. It puts it into perspective for me that’s for sure.

I looked up distances for even more perspective and it appears that The Strait of Dover, which is the narrowest part of the English Channel, is 33.3km / 20.7 miles. Looks as though I am almost there then!

I must admit the last few weeks have been really difficult to stay motivated. I thought the winter months would be hard but wow it’s actually become a chore to get out of the house and go. I’ve had a knee problem that made swimming quite uncomfortable. I mostly swim breaststroke so I found it was aggravating it. Last week I tried to swim more front crawl which I do not find easy at all but my knee is much improved now anyway.

So far I have raised £325 which is great. I didn’t set a target as my swim is more of a personal challenge for me, than a fundraiser. I am delighted I have raised that much though and hope I can raise a bit more too as I still have several more lengths to go.

I’ll keep you posted.

Laura

If you would like to donate to Laura's fundrasing challenge then you can do so here https://justgiving.com/fundraising/80kmfor80yrs

Ain’t no mountain high enough

Posted on: February 10 2020

Mark Seabright.jpgMark Seabright’s challenge is to scale England’s highest mountain.

This whole thing started with a throw away comment from a colleague stating that they would like to walk the highest mountain in England, Scafell Pike, and before we knew it, we were pulling a team together and agreed that we should do the walk in aid of multiple sclerosis, as a few of us have friends who are diagnosed with the condition.

It didn’t take long for a date to be agreed and the digs booked. Then came the realisation that a few of us may need to get in some practice before the big day. The idea is to do one walk a month on varying terrain and varying lengths. This should allow each of the team to judge if they need to put in any extra training.

First attempt

The first practice walk took place on the morning of the 25 January when we decided to walk up a local landmark – The Wrekin in Shropshire. Not all ten of the team could make it due to other commitments. I have realised that I am certainly not in the great condition that I thought I was, and this walk came as quiet a surprise, with its incline beginning straight out of the car park and continuing all the way to the top. We completed the walk in 1hr 12mins, with a distance of 3.23 miles and an elevation of 778ft.

The next walk is planned for the 29 February. We have decided to do a longer distance, with less of an elevation over the hills near Church Stretton and we are hopeful that the more of the team can attend this one. We are out walking around the block in our lunch breaks and doing our own little bits of exercise when possible.

Our aim is to raise £500 for MS-UK, which we believe is a very deserving charity. MS-UK have been amazing, supplying branded t-shirts, a banner, and neck tubes along with kind encouragement and support.  

Want to support Mark and his friends? Head over to his JustGiving page http://www.justgiving.com/Julia-Preston3

If you would like to take on a challenge like Mark and his friends, please contact Lucy today on 01206 226500 or Lucy@ms-uk.org

"Running helps me beat fatigue"

Posted on: January 30 2020

JM-SM-Dubai.jpgJohn Mills tells us about his marathon motivation and how training helps him manage his MS

Here’s a quick introduction for those of you that don’t know me. My name’s John Mills and I’m going to be running the London Marathon for MS-UK this year.

I was delighted to be asked to blog on the run-up to the big race by the team at MS-UK. It’s a cause that’s very personal to me. The year 2017 was one of big changes. My wife gave birth to our beautiful daughter, I turned 30, and I was diagnosed with multiple sclerosis (MS).

In this blog, and further forthcoming ones, I will write about my journey and progress from the perspective of a runner, how my training is progressing and how my MS is in relation to this.

My motivation

I tried my hardest for over a year to ignore my diagnosis. I didn’t want MS to define who I was but, with the help of MS-UK, I have now realised that I can help define the condition instead, by raising awareness and promoting the fantastic work that MS-UK do.

Having already started fundraising, raising over £2,000 in a month, and meeting 20 or so #TeamPurple runners at a recent event means that there is now no turning back for me!

I am using the Nike Running Club (NRC) app for no other reason really than I have had it since 2013 and I know what to expect when using its training plans.

Royal Parks run

To get me off to the best start possible, I signed up for the Royal Parks Half Marathon. I am so pleased that I did. More than anything, I learnt what to expect come the 26 April 2020.

Here is what I took away from the day.

1. As silly as it sounds, 16,000 people is a lot to get across the start (and finish) line and that number will be doubled come April, which feels a little overwhelming. 

2. Headphones are not needed. You won’t need headphones come race day (for training they are a must, for me anyway) as there is so much more going on to keep you occupied other than a playlist; the sights of London, steel bands, marching bands and the incredible support. It’s amazing that someone who you have never met before shouting your name can put a smile on your face after just having ran 13 miles!

3. Try to at least roughly plan where your supporters will be beforehand as you will undoubtedly miss them, as I did, if you don’t know where they are. My first recommendation to anybody running the marathon for the first time is to try and get some race day experience so you know what to expect.  

My wife Sasha and I ran the Colchester half marathon for the MS Society back in 2016 because someone Sasha knows had been diagnosed with MS earlier that year. We raised £1,800 and, ironically, I had no idea that just a year later I’d be diagnosed myself.

Meditation

I’ve always enjoyed running, but even more so now, as for me it is a form of meditation. All I need to think about is putting one foot in front of the other – nothing else matters. You are only competing against yourself. I wanted to act now with regards to running a marathon because with MS you just don’t know if or when it will have a greater impact on your everyday life. MSUK royal parks half 2019-9.JPG

Running and, more specifically, training for the Royal Parks half marathon and now the London marathon is part of my daily routine. It may sound odd, but if I wasn’t running, fatigue would get the better of me and I would spend the rest of the day in bed.

Today is a perfect example of that. I find maintaining a routine is key and exercise forms a strong part of that. I’m told that there is science behind that, but I am by no means an expert. All I know is that it helps me.

My motivation

Training for the marathon is a great incentive for me to get out and maintain a certain level of fitness. After a run I get a sense of accomplishment and feel like I am beating MS one day at a time.

Currently I am not on any disease-modifying therapy for my MS, but I am due to start Ocrevus which works perfectly around training as it’s a six-monthly infusion. I take it as a sign that I am supposed to be running this marathon.

To sponsor John, visit his JustGiving page https://www.justgiving.com/fundraising/john-mills-msmyselfandi

Fundraiser of the Month: Lisa Addie shares her #TeamPurple marathon story

Posted on: January 16 2020

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As soon as I found out I had a place on #TeamPurple in the Virgin Money London Marathon 2020, I started telling everyone, and I mean everyone!

Setting up a JustGiving page makes sharing your fundraising story so easy. As soon as I had mine set up, I shared the link with friends, family, work colleagues, clients and suppliers at work, even the WhatsApp group that all the neighbours in my building are part of.

Spreading the excitement

Being passionate and truly caring about the cause you are running for is infectious. People feel it and get behind you because of it. Don’t worry about boring people, or get wrapped up in what they think about what you’re doing, as that’s not a productive use of your time and energy.

As well as donations from friends and family, I sold teams on a football scratch card. If you search ‘football scratch card’ on Amazon you can buy a pack of 10 for £3. I sold each team for £10, with £200 to go to the winner and £200 for MS-UK. I timed it to be drawn just before Christmas which I think helped get the squares sold. I’ll definitely be doing another card pre-race day.

I have also been in touch with my local community manager at Tesco to organise bag packing. I’ll be pushing for Easter weekend so that the shop will be a bit busier, and it’s not long before the race itself! I have linked up with a couple of other runners near me so that we can take this on together and have more of a presence in-store.

Running for my mum

My mum had secondary progressive multiple sclerosis. Her left leg was worst affected, making walking a daily struggle.

She would often fall in public and be left humiliated and, of course, in pain. crop_0.png

In September 2013, she was admitted to hospital for an unrelated skin infection. On discharge she was largely bed bound as her MS became increasingly aggressive, spurred on by a weakened immune system. A combination of all of the above led to her suffering a pulmonary embolism and passing away on 26/09/13. I don’t need to tell anyone how hard losing a parent is. I am completely and utterly lost without my mum and, even six years on, it’s as rubbish as it was then!

I was too young, selfish and naïve to take control of the situation for mum. I want to run the London 2020 Marathon in memory of her and to raise funds for MS UK to be able to help others with MS because of this. MS is misunderstood, it affects everyone differently and is completely unpredictable. I want to play my part in changing this.

My top tips

If you’re training for a big run, get started on your fundraising as soon as you can so you can smash it out of the park early and focus on training

Talk to everyone about it. It will connect you with people in a way you would never have imagined.

Use social media. I’m documenting my training on Instagram (@healthylivinglisa_). It’s an amazing tool to get chatting to other runners and widen your network even further.

Get yourself into the Facebook group and connect with other MS-UK runners. There are also a few London Marathon Facebook groups with thousands of people to chat to and get tips from. 1_2.jpg

Not everyone has this opportunity, certainly not those that are badly affected with MS, so it’s important to recognise how much of a privilege we all have to be part of #TeamPurple and what an honour it is to spread awareness and take this challenge on.

600 length milestone!

Posted on: December 23 2019

Laura's swimming blog -Dad_0.jpgBack in October 2019 Laura launched her swimming challenge. She decided to swim 80km in memory of her dad. Now having reached the 10-week mark she has written this blog to update us on her progress 

Wow, I have been dedicated to my swim challenge for 10 weeks already, which has gone quick. That equals 600 lengths, which means I have swum 15,000m. Phew, that makes me feel quite exhausted thinking about it. Of my 80km target, I have now swum 15k.

The hardest part now we are in the midst of winter is leaving my nice warm house to go out in the dark cold evenings. I am trying to get to the pool a bit earlier in the evening to help with that. I haven’t missed a week and once I am there it’s become quite easy to get in the pool and churn out the lengths.

One week I wasn’t that well and didn’t manage the distance. I made up for it the following week though by going twice. I am so determined! I can get bored and distracted very easily so I feel proud of myself for sticking to it. For some reason, this feels different to anything else I’ve ever done and the reason I’m doing it is by far the biggest factor in keeping me going.

One week I did really struggle to get into any kind of flow and I couldn’t focus my mind no matter how hard I tried. Every length was tough and I was really frustrated. I kept going but it was a very slow swim. I put it behind me and realised it was likely because I’d had a busy weekend, (and possibly a few too many drinks with friends!). It made me realise the importance of looking after my body if I want to achieve the distance.

My Dad was a very determined person, with everything he did in his life. He didn’t let anything get in his way, including his multiple sclerosis (MS). I remind myself of this at various points when I’m swimming. If he could be that determined then surely I must have a bit of that in me too! It is him that drives me forward. This challenge has made me feel closer to him than I have felt for some time. Maybe as I am allowing myself the headspace each week rather than constantly being lost in the busyness that life brings.

As we approach our tenth Christmas without him, we will remember with smiles and celebrate the memories. Merry Christmas Dad!

If you would like to donate to Laura's fundraising please visit her Just Giving page. Thank you!

 

How I ran a marathon for MS-UK and my country

Posted on: December 10 2019

Chris Rayner turned his life around in his mid-30s and competed beyond his wildest dreams 

Watching athletics with my Dad when Seb Coe, Steve Ovett and Steve Cram flew the flag for our country is one of my earliest sporting memories. However, if you had told me back in 1983 that I would one day pull on my country’s colours in competition, I would have found that hard to believe. Skip forward to October 2019 and I found myself Chris Rayner - England.jpgproudly slipping into my England vest ahead of the Yorkshire Marathon!

The beginnings

During my early 30s, as is often the case, I’d put on a bit of weight and didn’t really exercise. I was stuck all day behind the wheel of a car as a sales rep, and my eating habits weren’t the best.

The big change happened when my marriage failed. I began jogging to try and do something positive. It’s well known that running can really boost mental health, and I was feeling a bit lonely. A friend suggested I go along with her to an event organised by Chorlton Runners. I became a regular.

I was adamant I would never enter a race, but one night, after several post-run beers, I was persuaded to enter the 2013 Leeds Abbey Dash 10k and, during the same beer session, declared I’d be able to do it in under 40 minutes. I didn’t even have a running watch back then so decided I’d better train hard, and crossed the finish line in 39 minutes 22 seconds. I was hooked!

The accident

The excitement of Leeds was short lived, however. A few days later I was in an awful car accident near Aberdeen which saw me upside down in a field. A week later my spleen ruptured, which resulted in major abdominal surgery to save my life. I felt lucky and so thankful to be alive and was desperate to get back to running to put events behind me. Six weeks after surgery and now minus my spleen, I cautiously took part in the South Manchester parkrun and it felt great to be back.

My first marathon

The next huge event in my running story was, again, after a few beers when I was persuaded to enter the 2016 Manchester Marathon. I woke the following morning thinking I’d made a terrible mistake, but then I promised myself I would dedicate the next three months to doing every single run on the plan, come rain, sun, snow or sleet.

I stood on the start line that sunny April morning knowing that I could not have done any more and that, whatever happened in the race, I had already achieved the real value the marathon. The icing on the cake was that after a rather frantic sprint to the finish line, my watch said 2 hours, 59 minutes and 57 seconds!

Going international

After that, there was no stopping me and I competed in the prestigious Boston Marathon, then Venice, then London, and then the Chester Marathon. I managed to finish in under 2 hours 45 minutes and, a week later, I received an email to say I’d qualified to represent England Masters in the 2019 Yorkshire Marathon!

My first charity marathon

It was going to be a proud day for me pulling on an England vest in my home county with my parents watching. I decided to use the occasion to do some good and considered running for charity, something I had not done previously. My grandfather Thomas Rayner had multiple sclerosis (MS) and died before I was born. I knew my father and uncle would be very delighted if I ran to support an MS charity and I chose MS-UK because of the fabulous support they provide to people living with the illness, including friends and work colleagues. Having set up a Just Giving page, I was amazed when £1,000 was donated in just 48 hours and £1,500 in total was pledged. I am fortunate to have some very generous friends and family.

The big day

The day itself was amazing. Lining up with my England colleagues for the team photo made it suddenly seem very real, but I quickly got my race head on as I had a job to do. I had my girlfriend and friends cheering me at the start and knew my parents would be at mile 14/15. Despite having had a few issues in training was determined to give it my all. 

Standing alongside my Chorlton team mate Matt in the start pen, we wished each other luck and waited for the off. The conditions were pretty good – dry, cool, but a bit windy in places. I went out hard in the early stages and waited for the wheels to fall off, but got to halfway feeling good.  

The shout of “Go on England!” from my mum gave me a boost at 15 miles, but a mile later, I started cramping a bit in my left hamstring. Fortunately, I managed to get rid of the cramp but lost touch with the group I had been running in, which meant running into the wind on my own, which is hard both physically and mentally. 

The marathon is a massive mental game – you have so much time out there where you need to maintain form and focus and also remain hard in the head. Fortunately, Yorkshire folk are famed for this! The last six miles are always a battle in every marathon – they often say it’s a 20 mile warm up for a six mile race. I kept thinking of the finish line, all the people who I knew would be tracking my progress, the people who had sponsored me, and I shut out the message from my body that was saying Stop!

Two miles to go and my pace had just dipped a touch between 20 and 24 miles, but I rallied myself and knew I had this race and another personal best was within my grasp. With half a mile to go, the organisers kindly put a short but sharp hill in your way, but you know when you crest it you have a 400 meter downhill run to the finish. My cheer squad was placed on that hill and I flew up it, then belted it down to the finish line as the commentator called my name over the public address. I crossed the line, arm aloft, in a new best of 2 hours, 40 minutes and 51 seconds.

It is only when you finish a marathon that you realise how much pain you are in and you go from sprinting to the line to suddenly finding it hard to walk! However, I am so lucky to be able to enjoy my sport and it serves as a great reminder that things I sometimes take for granted are not so easy for others. Whilst I am very proud of my progress from taking up running in my late 30s to running for England in my mid-40s, the amazing donations I raised for MS-UK was the something that meant the day was truly special.

Fundraiser of the Month

Posted on: September 26 2019

Mathilde FOTM (low res).jpgThis month’s Fundraiser of the Month is Mathilde Bru, who swam one mile in the 2019 Children with Cancer Swim Serpentine in September.

My mum was diagnosed with primary progressive multiple sclerosis (PPMS) around five years ago when I was 16 years old. My four younger siblings and I have witnessed first-hand the effects of this life-changing illness, and so I wanted to do something to support other people with the same illness as her.

Although there is no known cure for MS, by living with my mum I have seen that there are things that can be done to improve the quality of life of MS patients, and for this reason, I can see how crucially important MS-UK is as a charity.

To raise money to help people affected by MS, I decided to take part in the 2019 Children With Cancer Swim Serpentine one-mile swim in Hyde Park. The first time I practised swimming in the Serpentine, two swans swam up to me - I’ve always been quite scared of birds so started swimming away as fast as possible, and actually ended up swimming a full mile just trying to swim away from them! The training has definitely helped with my fear of birds, as I’ve become more used to sharing the lake with the swans (who are actually much less vicious than they are said to be!)

Raising money for MS-UK has made my swim preparations a hundred times more rewarding, and I am so glad to have signed up as part of #TeamPurple. I have received a huge amount of support and advice from both the people working at MS-UK and from the other swimmers, who have shared countless amounts of training tips and motivational support. Moreover, raising money for this charity, and sharing my fundraising page to my friends and family has been a huge source of incentive for me to train harder, as I provided updates on my practice swims. My tips for fundraising would be that others send as many emails around as possible, share on all forms of social media and annoy people enough until they donate!

Mathilde has now raised £1,827.08 for MS-UK! If you would like to donate visit www.justgiving.com/fundraising/mathilde-bru.

 

Congratulations #TeamPurple swimmers!

Posted on: September 23 2019

Photo of MS-UK swimmersHi everyone,

This weekend I had a fantastic day cheering on our amazing #TeamPurple swimmers at this year's Children with Cancer UK Swim Serpentine - thank you to everyone who made the day possible! The water was a lovely 17 degrees and the sun was shining as we made our way to Hyde Park to set up our MS-UK stand in the festival area.

We were thrilled to have 21 swimmers taking on challenges in this year's swim and every penny they have raised will help us continue our work supporting people affected by multiple sclerosis (MS). Our fantastic fundraising total already stands at over £10,000 and it makes such a difference to our work at MS-UK, thank you!

Check out our photo album on Facebook today

A thousand people at the event achieved their London Classics Medal this year, including four of our very own #TeamPurple swimmers - congratulations! One of our London Classics Medal winner even learnt to swim this year just to get it on Saturday!

A massive well done to everyone who took part in the Children with Cancer UK Swim Serpentine and thank you to everyone who volunteered with us on the day to make it such a special atmosphere for our amazing swimmers.

Can't wait for next year!

Jenny

Events Fundraiser

Thank you to our #TeamPurple runners who took part in the Great North Run!

Posted on: September 09 2019

Photos of MS-UK runners at the Great North RunHi everyone,

On Sunday I had the privilege of cheering on our amazing #TeamPurple runners at the Simplyhealth Great North Run!

The weather was warm (if a little windy!) as I joined crowds of well over 200,000 people lining the route of the run, right from Newcastle to South Shields. Over the whole weekend around 58,000 people took part in events, from the 5k run through to the Great Tees 10k, but I was there to support the amazing runners taking on the Great North Run in aid of MS-UK.

This was the first year I have travelled North to support #TeamPurple at the Great North Run and I was amazed at the dedication and energy of our runners. It was a brilliant atmosphere and I would like to say a big thank you to everyone who wore our purple running vests with pride.

Photos of runners at Great North Run at end of the raceEvery penny raised from this event helps us support even more people across the whole of the UK who may be living with multiple sclerosis (MS). One service we offer is being able to listen to people’s worries and concerns through the MS-UK Helpline and offer lots of information and support at times when it is really needed. Our amazing fundraisers make this possible.

The date for next year is already out – 13 September 2020 – so if you want to join #TeamPurple please get in touch with me to register your interest. I would love to be cheering you across the finish line at this unforgettable event next year!

Best wishes,

Jenny

Events Fundraiser, MS-UK

Fundraiser of the Month: 'I was so inspired'

Posted on: August 23 2019

Photo of Martin cycling at the eventIn this guest blog our August Fundraiser of the Month, Martin Crowe, tells us why he and his friend Gary Beck took on the capital at this year's Prudential RideLondon-Surrey 100...

Earlier this month, Gary Beck and I did the Prudential RideLondon-Surrey 100 event. My wife Diana is Head of Services for MS-UK and I went with her as a volunteer supporter at the Virgin Money London Marathon in April. I was so inspired by the experience that I wanted to do something myself. I didn't think I had a marathon in me but when I heard that I could support the charity with a 100 mile bike ride I signed up immediately. I work with Gary and when I told him I'd signed up he said he'd do it too!

Photo of Martin and GaryThe most interesting thing about all the training (and there was lots of training!) was that you get to see all sorts of things on a bike that you don't see from a car. I've nearly run over dozens of pheasants, seen stoats and weasels, a buzzard that nested at one of my stopping places, foxes and deer and I've even seen a snake for the first ever time in this country. I can also guarantee that potholes are worse on a bike than they are in a car!

Gary was responsible for a lot of the fundraising and he managed to twist the arms of a lot of people at his golf club. I have to say a big thank you to the Colne Valley Golf Club Swindle Members who raised over £250 between them. I also have to thank my employer, Gallagher, which has a charity commitment to double anything it's people raise. Thanks Gallagher! That's my main tip - a lot of companies will match any funds raised by their employees so it's always a good idea to ask. 

Perhaps the funniest thing to share is that I've broken my vow never to wear Lycra. I can't say I'll be rushing to buy any more Lycra gear but it did the job on the day.

I thoroughly enjoyed this event. I enjoy cycling but I've never done anything like 100 miles before. The only thing I'd really say is that if you fancy doing something like this but aren't sure if you can do it then have faith, you'll be surprised at what you can do.

Visit Martin's fundraising page to read more

Feeling inspired?

We have places in #TeamPurple for the Prudential RideLondon-Surrey 100 2020! A lasting legacy of the 2012 London Olympic and Paralympic Games, this event sees more than 25,000 cyclists take on 100 miles from Queen Elizabeth Olympic Park, through the city and onto Surrey's stunning country roads and the Surrey Hills before the brilliant finish on The Mall in central London. Could you be one of them? Every penny you raise will help MS-UK support even more people affected by multiple sclerosis (MS). 

Find out more about RideLondon

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