With both of us having parents who are sufferers of multiple sclerosis (MS), we both believed it would be important to try and raise money to help them as best we can. At first, we looked at participating in a triathlon, but on second thought believed we should do something more extravagant, and so turned to the idea of a skydive. We knew this would put us both outside our comfort zones and looked forward to the challenge. We collected donations for around three months prior to the jump, both setting a target of £500, with an overall goal of £1,000.
As you can imagine, at first both of us made a lot of money but after a while the donations began to dry up. Therefore, we took to advertising our JustGiving page on social media, sending it to friends and family. We also asked around our schools for donations, which contributed significantly. Our jump took place on 03 November at Hinton Skydiving Centre in Brackley.
Family and friends came along to support which was a big confidence boost due to a high level of nerves. We had our briefing, met our tandem jumpers, and set off on the fifteen-minute journey up to 13,000 ft. The journey up was the worst part because it came into perspective just how high we were jumping from. On the way up, we took in the view of Silverstone racetrack and had one final briefing before the long fall back to ground. Alex jumped first, and Dan went second.
Both of us thoroughly enjoyed the experience and both genuinely believed it was the best of our lives. The feeling of falling is very hard to explain, but it's an amazing sensation like no other that fills you with high levels of adrenaline and excitement. We would thoroughly recommend a skydive to anyone thinking about doing one, the experience is so unique, and you will not regret it.
Overall, we are delighted to say to that both met out targets and ended with a total of £1,497. Once again, we would like to thank MS-UK for their unconditional support and we hope our money goes to a good cause.
Dan Wood and Alex Greene
Congratulations to all the businesses across Essex who celebrated their fundraising success at our 925 Challenge awards night on 22 November! Thanks to their hard work and dedication, they managed to raise an astounding £16,700 for people affected by multiple sclerosis (MS)!
Back in September, MS-UK officially launched our first ever 925 Challenge. Nine teams of local companies were handed countdown clocks and tasked with raising £925 before the timer ticked down to the end of 9 weeks, 2 days, and 5 hours.
The challengers - comprised of teams from NatWest, Charles Derby Financial Services, Team Pivotal, Ellisons Solicitors, OPM Response, Whitehall Electrical, White Hart, Push Energy and Direct Solutions - fought to be the first to reach the fundraising target by bringing the workplace together and getting creative.
As each team grappled to get the upper hand, the fundraising events became more and more innovative. We saw a 'dawn to dusk' golf day, a Swimathon, video game characters tackling an obstacle course, a car wash, a race night, and so much more!
The ideas were so good that once the clocks stopped we struggled to pick our final award winners!
After some tough deliberation we came to our decisions. The awards for ‘most money raised’ and the ‘team spirit award’ were scooped by the White Hart pub in West Bergholt who raised an incredible £6,000 by involving the community in their fundraising efforts.
Other awards went to Ellisons Solicitors for their quirky ‘Wacky Hat Wednesday’ event, OPM Response for their outstandingly fun fundraising films, and Direct Solutions for their innovative ‘Display for MS-UK’ initiative. As well as great team work, MS-UK recognised some individuals who went above and beyond during the challenge including 6 year old Shara Stevens who individually raised £300 and swam over a mile during local business networking group Team Pivotal’s Swimathon.
Collectively teams in our first corporate challenge raised a wonderful £16,700, which smashed our target of £10,000. We are delighted with the energy and enthusiasm all teams have shown for the challenge bringing colleagues, clients and customers together to raise both awareness and much needed funds for MS-UK.
This weekend our amazing #TeamPurple runners will be taking on the challenge of the Royal Parks Half Marathon - good luck!
The event kicks off at 9am on Sunday 14 October and is set in four of London's Royal Parks: Hyde Park, The Green Park, St James's Park and Kensington Gardens. It is the perfect autumnal tour of central London’s most exquisite outdoor spaces, and we can't wait to cheer everyone on!
If you can't make the event but want to stay updated, you can follow @MSUK6 on Twitter and enjoy the action in real time!
Good luck from all of us here at MS-UK, your efforts mean we can support people affected by multiple sclerosis to really make the most of each day - thank you!
It's Monday morning, but we are still excited from the amazing weekend! Our amazing #TeamPurple swimmers Jeremy, Janice and Kirsty all braved the cold waters in Hyde Park on Saturday 22 September at Swim Serpentine - and they all achieved their London Classics medal!
Swim Serpentine is a one-day open water swimming festival staged in the heart of London. Organised by London Marathon Events, the festival is held in and around the beautiful Serpentine in Hyde Park, the venue for the open water swimming competition at the London 2012 Olympic Games. Early Saturday morning myself and Laura from MS-UK set off in the rain to make sure we were ready to cheer on our dedicated swimmers, and we were not disappointed!
Now in its third year, a record breaking 6,000 people entered Swim Serpentine this year...the atmosphere was electric and it was fantastic to hear so many people were going to complete a 2 mile swim and enter the London Classics hall of fame...The London Classics is a challenge that recognises participants who have completed all three London Classic events - the Virgin Money London Marathon, the Prudential RideLondon-Surrey 100 and Swim Serpentine. What an achievement!
For Jeremy, Janice and Kirsty, they realised this dream on Saturday and I was so proud to be part of the moment they grabbed their weighty London Classics medal - congratulations guys!
If you're inspired to join #TeamPurple, visit the fundraising section of our website to find out about all the different things you can do, or get in touch with the fundraising team. Plus don't forget to check out the photo album from Swim Serpentine on our Facebook page!
To all the swimmers on Saturday, a massive well done from MS-UK!
Fundraising Manager, MS-UK
Fancy being in with a chance of winning a £25 Debenhams gift card?
This weekend is the last chance to make sure your voice is heard in our supporter survey - so please do let us know what you think by taking our survey! The survey closes on Monday 24 September 2018.
The prize draw will be on Tuesday 25 September, so by next weekend you could be going shopping!
Good luck, and thank you for giving us your feedback, it really does help us plan for the future,
Fundraising Manager, MS-UK
My name is Charlie Stebbings and, along with a 14 strong team, I cycled from London to Paris between 04 - 06 May.
Myself, Mortimer McKechnie, Paris Baker, Millie Bampfylde, Tom Sater, Alicia Hanmer, Rob Gibson, Occy Cobb, Paddy Rogers, Lucy Munday, Robin Butler and Tom Everard decided to commit to this challenge in aid of three fantastic causes - MS-UK, Cancer Research, and SUDEP Action. Along with our amazing and indispensable support drivers Jack Smail and Helen Callaghan, not to forget our two broken bone casualties Katie Barton and Minty Naylor, we made a formidable fundraising team intent on giving as much support as we could to these fantastic causes.
MS-UK has been a fantastic support to our family over the last eight years since my mother was diagnosed. The work they do for suffers and their families is integral to all those affected by multiple sclerosis (MS) and therefore it is always a privilege to fundraise for them. Having said that, the pain you experience near the top of the mountain on day two at mile 95 was accompanied by a ‘what are we doing’ moment, but that is part of the fun! We organized this challenge to test ourselves and push us so that everyone felt that sense of achievement and success.
The 300 mile trip over three days was a brilliant way to do just that, and apart from Tom Sater Cycling into the back of Lucy Munday as he was being sprayed by a very friendly Frenchman watering his plants, and my exploding tire in Paris, we made it without a hitch. The 30 degree weather was both a blessing and a hinderance, but there is no doubt it kept moral high and helped those of us often void of a tan suitably rosy.
The fundraising experience is one that we can all approach in different ways, but we liked to get people engaged with the trip and run fundraisers instead of solely distributing letters or emails etc. I think there is nothing more enjoyable and motivating than hosting an event which shows you how much support you have for the charities and how many people genuinely care for your cause. I recommend it to anyone who haven’t involved people tangibly in their fundraising to try it. It adds that extra dimension and can remind you why you are doing this often crazy challenge!
Gift aid included, we raised £20,600 and am delighted to be able to give MS-UK some of that money. I must thank my team for supporting this charity with such enthusiasm. It means a huge amount to me, my family, and hopefully everyone in this community.
On to the next one!
Climbing three mountains is harder than climbing one. That's just basic maths. In our latest blog, Diana, Head of Services here at MS-UK, tells us how she beat the Yorkshire Three Peaks Challenge...
On Wednesday 23 May I received a text from my husband saying he was organising the ‘3 peaks thing’ as a fundraising event for his employer’s charity of the year. He said ‘it’s hard work but doable’ and ‘it’ll need quite a bit of training’! I casually agreed to it as long as I could fundraise for MS-UK.
Now, I consider myself to be quite fit. I play netball once a week and had recently completed the NHS Couch to 5K programme, running three times a week until the heatwave descended upon us.
07 July saw our training walk in Sussex – the Seven Sisters walk in 30 degrees heat while England were playing their quarter final against Sweden in the World Cup. It had been graded 9 out of 10 in terms of difficulty. After the 12 miles we completed I had nothing left in me. But my husband threw a Mohammed Ali quote at me ‘Train hard – fight easy!’.
5am on 21 July we are up and heading to the start line of the Yorkshire Three Peak Challenge. Our kit was checked and a briefing given and we were off. 24 miles in 12 hours was the challenge, reaching the summits of Ingleborough, Pen-y-ghent and Whernside. Being extremely competitive I started off keen but after finishing the first peak I wondered how I would ever complete the challenge.
Our group leader, a professional mountaineer encouraged us by calling us his ‘Warriors’! No time to rest, no time to take in the views, we just had to power on. Regular painkillers for the dodgy hips and we soldiered on.
I have to say this was the hardest thing I’ve ever had to do, but whilst I had my head down, and I was quietly battling my fatigue, I remembered why I was doing this challenge. As Head of Services at MS-UK I am inspired every day by people affected by multiple sclerosis. They were my motivation and what got me through.
I managed to complete it in 11 hours and 03 minutes and so far I have raised over £300 for MS-UK. Here is my fundraising page if you would like to sponsor me.
'My name is James Harrison. I was first diagnosed with multiple sclerosis (MS) in 2014 following on from around two years of unexplained relapses in both physical and neurological difficulties. I put the relapses down to stress as I was working my first professional job and was put under an immense amount of pressure. This work stress lead me to change my job to something much less stressful, although still unaware I had an underlying condition.
'After having a relapse where I experienced the pins and needles, I got in touch with my GP to see what was happening. I had pushed the idea of MS to back of my mind and was sure it must be something else, something much less serious. This then triggered the need for an MRI scan to determine what sort of neurological activity was happening. Not long after the MRI scan I was called for a consultation and given the diagnosis of having relapsing remitting MS.
'After the diagnosis started to sink in I was hit with an immense amount frustration, confusion, uncertainty and depression. Thankfully though, I was engaged to a very loving and caring woman, who did everything possible to keep my spirits up in the weeks that followed my diagnosis. My fiancée came with me to my first appointment with my MS nurse who discussed medication options. I decided to take Rebif Interferon as this was an injection three times a week and seemed the best option. Getting used to being on the medication was a lot to adjust to. Not being afraid of taking injections three times a week was definitely a shock to the system. The aftereffects left me groggy and also left me with an increased appetite causing me to gain weight.
After only 6 months of being on the medication, I was moved on to Copaxone due to increased liver functions. This was an injection every day and took some getting used to and the injection sights were becoming more noticeable. About a year of being on the medication I found myself feeling I had control over my condition and moved myself back into a job role that would challenge me and offer future prospects.
From there it was life as normal leading up to my 30th birthday were I was able to cross off the head line of my bucket list, a skydive, which my wife surprised me with on the morning of my birthday!
It was the most exhilarating experience of my life and I came down a changed man as I felt 'if I can do that, I can do anything'! It was even more amazing to learn afterwards, my wife and family had secretly been raising money for MS UK. In the end we managed to raise £505.00. I have always wanted to raise money for MS but never got round to doing it, so having my birthday surprise double up as a sponsorship was a great idea. I learnt afterwards that my wife had not only been raising money but also awareness of MS, especially amongst her work colleagues.
Next for me and my wife is the news that we will be parents in December. This is something I have been waiting for my whole life and couldn’t be happier.
This will be another huge change for us both and will undoubtedly lead to some very tired times as well as many happy times. However, the place I am at with my MS, I know I will be able to manage any future changes and remain positive, and similarly with my condition whatever the outcome maybe.
My team mate Paul Reynolds and I decided to compete in this year’s Devizes to Westminster International Canoe Race to raise awareness and funds for two charities, one of which is MS-UK. We are team Forget Me Not! We both have friends and family living with multiple sclerosis (MS), so we have seen first-hand the challenges it can bring to someone’s life and that is why we decided to set our very own challenge. We will be paddling 125 miles in a Canadian Canoe or C2, while portaging 77 times over the Easter weekend, from Devizes in Wiltshire to Westminster Bridge in London. It seemed like the perfect challenge to help us raise money for and awareness of MS.
The Devizes to Westminster International Canoe Race has been held annually over the Easter weekend since 1948 and this year is its 70th anniversary.
The first 52 miles are along the Kennet and Avon Canal to Reading, followed by 55 miles along the River Thames to Teddington. The final 17 mile section is on the tidal portion of the Thames. The race is a severe test of skill, physical and mental stamina and planning, with the unpredictable British weather adding a further challenge.
We’ve been doing lots of training and I will say that rolling an open C2 into the freezing River Thames as part of our capsize drill, when you’re nice and warm wearing your multiple layers, does take your breath away!
Our target is to raise £10,000, so if you would like to donate to our efforts please visit our Team Forget me Not for MS-UK fundraising page.
‘Doing a skydive has always been the top of my bucket list, so when I finally built up the nerve, doing it for charity really was a no brainer. Being able to have this amazing experience and raise money for a great cause…how amazing!
‘I knew straight away I wanted the money to go to a multiple sclerosis (MS) charity and after doing some research MS-UK really stood out to me.
‘My Gramps suffered with MS for a long time and my only memories of him are in a wheelchair but he always had a smile on his face. The care he received was always great so I am so pleased to be able to contribute to help other people.
‘I am so overwhelmed by how much I have raised so far and am desperate to reach £1,000 by the time it comes to my jump! I’m excited about it now but when it comes down to it I think I might have to be pushed out of the plane!!
We are really pleased to say Laura has smashed her £1,000 target, but you can still donate on her JustGiving page today!
Your donations help MS-UK support even more people affected by multiple sclerosisto really make the most of today and live life to the full. Thank you!