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Getting to know the national therapy centres...

Posted on: July 08 2019

Hello,

On Friday morning I set off to the University of Warwick to attend the annual MS National Therapy Centre Conference.

MS National Therapy Centres (MSNTC) is a charity which represents individual therapy centres across England, Scotland, Wales, Ireland, the Channel Islands and Gibraltar. These centres provide treatments, therapies, help and support to some 15,000 peop

Photo of MS charity CEOs at the conference
Nick from MS Society, Amy from MS-UK, Frank from MSNTC and David from MS Trust

le living with multiple sclerosis (MS) every week.

The annual conference and AGM is a chance for therapy centres to come together, share best practice and learn from each other. The conference, which was hosted by Frank Sudlow, Chair of the charity, ran over two days and included workshops, speakers and lots of updates about the world of MS.

I was particularly keen to hear Dr Dawn Langdon speak about cognition and MS and I wasn’t disappointed. Dr Langdon is Professor of Neuropsychology at Royal Holloway University of London. Her talk included an update on what research is being carried out to discover the impact of cognition difficulties for people living with MS as well as some useful insights about how people can improve their cognition by stretching their brains. It gave me a lot of food for thought!

The conference was also a chance for me to meet up with other CEOs from the national charities… David from the MS Trust and Nick from the MS Society. It was great to be able to talk to them about their work and how they are supporting people affected by MS as well as updating them on what MS-UK is doing. I hope that we can work together in the future to reach even more people and let them know we are all here to help in any way we can.

I wanted to say a big thank you to the MS National Therapy Centres for inviting us – see you next year!

Best wishes,

Amy

Amy Woolf, CEO

Guest blog: Skydiving from 13,000 feet!

Posted on: July 04 2019

Image of Maddy landing after skydiveIn this guest blog, Maddy Spurgin tells us all about jumping from 13,000 feet as she took on a skydiving challenge in aid of MS-UK...

So just a bit about me, my name is Maddy, I’m 16 years old and decided to do a 13,000 feet skydive for MS-UK! I completed this on 24 June 2019 and it was one of the most amazing experiences of my life (even if it was very scary). 

The reason I chose to do this was because back in October 2015 my mum was diagnosed with multiple sclerosis (MS) and therefore I have witnessed how cruel the condition can be and wanted to support those living with the same thing. I have also been volunteering for the charity for a while and have seen how caring the MS-UK staff are and after being given the skydive as a birthday present I saw it as a perfect way to give back to MS-UK.

Before, I would have never have dreamed of doing a skydive but I'm so pleased that I did. Not only did the skydive raise £600 for MS-UK, it was also an amazing opportunity to face my fears because life is too short!!

Visit Maddy's online fundraising page

Feeling inspired?

Get in touch with Lucy at MS-UK on 01206 226500 or email Lucy today to find out more about skydiving in aid of MS-UK!

Email Lucy

Guest blog: My marathon packing checklist

Posted on: July 01 2019

Photo of Jenny Brown from Hobby HelpIf you are going to be taking on your first ever marathon in the near future, we have you covered. In this guest blog, Jenny Brown shares her top tips for marathon packing...

After logging thousands of miles over the past decade, I’ve consulted my running journals, reflected on my best and worst races, and compiled the information I wish had been available to me before running my first 26.2.

If you’re a little (or a lot!) apprehensive about running your first marathon, the following information is sure to help you feel prepared and more confident.

You can read my full blog ‘The Ultimate Beginner’s Guide to Running your First Marathon’ on the hobby help website today.

Marathon packing checklist

  • Running shoes
  • Running socks (avoid cotton)
  • Running shorts, cropped pants, or tights
  • Sports bra
  • Moisture-wicking tank or tee
  • For cold temperatures: Jacket and/or arm warmers
  • Throwaway gear (long sleeve shirt, pants, hat, and/or gloves you don’t mind ditching before the race. These items are typically donated to charity)
  • Bag to hold gear
  • Bib (filled out) & safety pins
  • Timing chip
  • Race information (address, directions, start time, etc.)
  • Driver’s license or other identification
  • Cash (bills are best)
  • Cellphone
  • Running belt
  • Water bottles (filled)
  • Headphones
  • GPS watch
  • Lip balm (preferably with sunscreen)
  • Medications, including pain reliever
  • Fuel (gel, chews, candy, etc.)
  • Hair ties/hat/visor
  • Sunglasses
  • Sunscreen
  • Post-race outfit to change into
  • Post-race food and drinks
  • Towel
  • For cold temperatures: A blanket, coat, hat, and gloves
  • Anti-chafing stick or Vaseline
  • Tissues
  • Bandages
  • Shoes and socks to change into
  • Wet wipes
  • Cellphone charger

Feeling inspired to run?

Find out more about running the Virgin Money London Marathon 2020 in aid of MS-UK.

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