Skip to main content

New Pathways issue 108 is out now!

Posted on: April 06 2018

Hi everyone,Front cover of New Pathways

I am pleased to say New Pathways issue 108 is now landing on doormats across the country! As always we have a packed issue, full of all the latest multiple sclerosis (MS) news and research, including drug updates and the latest cannabis study findings. 

As the sunshine begins to make an appearance, we get topical with lots on vitamin D. MSer Ian Cook puts vitamin D tablets and sprays to the test (see page 30) and Kahn Johnson reveals what happened when his vitamin D levels became toxic on page 16. 

Also in this issue, MS Nurse Miranda Olding discusses sexual dsyfunction and what can be done to help (page 14) and we have the big interview with the star of Channel 4 programme 'The Search for a Miracle Cure' Mark Lewis (page 24). 

I hope you enjoy reading this issue, and please do email me your comments and letters to newpathways@ms-uk.org.

Best wishes,

Sarah-Jane

Editor, New Pathways

P.S. Don't forget New Pathways is available to read on the go. Download the My MS-UK app from the App store on your phone or tablet device today!

Guest blog: Running for Mum

Posted on: April 05 2018

In this guest blog, Ryan Hallworth shares why he is taking on the Virgin Money London Marathon this month in aid of MS-UK...

Back in October last year I decided to apply for the running of the Virgin Money London Marathon in aid of raising money for MS-UK. It was less than a week later that I was delighted to receive the phone call that my application had been accepted.Photo of Ryan, MS-UK marathon runner

My Mum, who has had the condition for a number of years is the reason why I am running for MS-UK. 

Everybody who knows my Mum will agree, she is a completely selfless individual, always putting other people ahead of herself and has an admirable ‘just get on with it’ attitude towards her condition. By running the London Marathon for MS-UK, hopefully I am giving something back, however small it may be.

At the point of my Mum’s diagnosis, I wasn’t aware of the symptoms of multiple sclerosis nor had I heard of the condition at all, which, along with raising as much money as possible for MS-UK, is one of the main reasons I am sharing the fundraising as far and wide as possible – to raise awareness and understanding of the condition, which I know is an objective I share with the fantastic work that MS-UK undertake.

Having already raised in excess of £2,000 with over 7 weeks to go until the big day (at the time of writing this), the fundraising so far has been fantastic and has far exceeded the expectations I had. People’s kindness and generosity so far has been a huge source of motivation for those dark, freezing cold training runs which I have no doubt all the other runners for MS-UK are also enduring at the moment. 

Due to the recent weather conditions and a couple of injuries, I can’t say training has been straight forward but nonetheless, remains on-track and now approaches its latter stages with a few more long runs to go, before gradually tapering the distance down as race day approaches.

A massive thank you to everyone who has donated so far, it’s hugely appreciated by my Mum, MS-UK, my family and myself. I am hoping to keep the momentum going by reaching £2,500+ by race day so please read my story and donate if you possibly can by visiting my fundraising page.

Good luck to all the other MS-UK runners with the remainder of your training and fundraising.

Thanks for taking the time to read.

 

MS-UK supports the next generation of occupational therapy students

Posted on: April 05 2018

MS-UK’s Head of Services Diana Crowe and Centre Manager Dean Jeffreys inspire The University of Essex occupational therapy students

MS-UK’s Wellness Centre, Josephs Court works closely with the University of Essex to support occupational therapy students (OTS) by providing role-emerging placements while they train. 

Each year the Josephs Court team is invited to speak at a symposium with the new OT recruits about role-emerging placements at its Wellness Centre in Colchester, Essex and increase their knowledge of multiple sclerosis (MS). 

Diana Crowe, Head of Services, said: ‘We took the opportunity to promote all of our services, but focused on what we deliver at Josephs Court, such as the exercise equipment and the benefits this brings to clients.’

‘There was good interaction and we were asked about the social activities we provide, so we discussed the MS-UK Social Group in Colchester, which has regular coffee mornings and other events such as bingo!’

‘Due to recent headline news regarding HSTC there was an interest in how this treatment could impact on us as a charity and our clients. Just like everyone else we will have to wait and see how the treatment develops, but we will continue to support people with MS for as long as they need us.’

‘We split into groups, which gave us a chance to speak in more detail with some of the students,’ explains Dean Jeffreys, Centre Manager. ‘The students were interested to know about APS Therapy, how we link up with other services and how politics impacts on our strategy.’

Speakers from St Helena’s Hospice spoke about its gardening project for those at the end of life and Craig, from Pots the Soldier, spoke about his post-traumatic stress diagnosis after leaving the army and how he found a love of pottery thanks to the support of OTs – very inspirational!

‘It was great to see the students so interested in the work MS-UK does and we hope to continue to work with Essex University over the coming years. Who knows one day we may have our own MS-UK Occupational Therapist,’ adds Diana.

 

Guest blog: MS goes to the movies

Posted on: April 03 2018

Image saying 'MS goes to the movies'In his latest humorous guest blog Doug Ankerman discusses how movie names would be different if Hollywood was diagnosed with multiple sclerosis (MS)...

Ever wondered what would happen if Hollywood was diagnosed with multiple sclerosis?

Our favourite movies would be quite different.

Roll'em and let's see how...

"Officer And A Gentleman With Leg Spasms"

"Memory Is Gone With The Wind"

"Wizard Of Odd Sensations"

"Blade Walker"

"Band Of Bladders"

"A Shot In The Thigh"

"The Blind Side Of Optic Neuropathy"

"Absence of Myelin"

"Les Miserable"

"The Interferon Hangover"

"Schindler's Limp"

"This Is Spinal Tap"  (No Name Change Needed!)

"Snow White And The Seven Neurologists"

"Full Metal Cooling Jacket"

"A Hard Day's Night Not Sleeping"

"A Fistful of Medicare Dollars"

"Singin In The Pain"

"Close Encounters Of The MRI Kind"

"My Left Foot Drags"

"Silence Of The Limbs"

"Baclofen To The Future"

"The Social Security Network"

"Poltergait"

"When Harry Met Soli (Solumedrol)"

"Avonex-Men"

Do you have any MS films to add to the marquee?

Premiere them to MS-UK in a red-carpet comment.

Till then, we'll see you at the movies!

Doug
Doug Ankerman pokes fun at MS and other stuff at his My Odd Sock humour blog.

Pages