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New year, new you?

Posted on: January 05 2018

blog-graphic-050118.jpgHi everyone, 

It’s that time of year again when the resolutions begin piling up and before you know it you have given up chocolate! Well, we don’t want to ask you to do something as drastic as that, but we would love it if you’d support MS-UK as we celebrate our 25th anniversary!

If health and fitness is your thing, why not join one of our fantastic events happening in 2018…

Colchester Half Marathon

MS-UK is based in Colchester, Essex so this one is right on our doorstep, and there’s still time to join the race! 2018 is a very special year for us too, as MS-UK will be charity partners for the Colchester Half Marathon on Sunday 25 March.

Apply today on the Colchester Half Marathon website.

British 10k

Join 25,000 pairs of feet as they pound the streets of one of the world’s most iconic capital cities on Sunday 15 July.

Apply today on our website.

Prudential RideLondon-Surrey 100
On Sunday 29 July the Prudential RideLondon-Surrey 100 will start in Queen Elizabeth Olympic Park before finishing on The Mall in central London.

Apply today on our website.

I would love to welcome you to #TeamPurple, so do check out our website for lots more fundraising ideas. Whatever you do in 2018, we all wish you lots of luck!

Best wishes,

Jenny

Events Fundraiser, MS-UK

Guest blog: New Year ponderings

Posted on: January 04 2018

In her latest guest blog Joanne ponders on Christmas, multiple sclerosis (MS) and ‘me time’...

jo-blog-jan-500.jpgLike many of us, a #christmas #break was on my list but didn’t happen.

For the simple reason, there has been too much going on. The family has been battling bugs (which has made my #MS rubbish), many festivities with late nights, #travelling, #family politics and eating indulgent food. It has all had a toll. All adding up to putting my #writing on the back burner.

Many recent events can be put down to MS. My rubbish #walking (I’ve realised Prosecco doesn’t help, despite it tasting nice), #speech sounds like I’m drunk (I’m not but everyone assumes I’ve had a few!) #spilling drinks (more noticeable at this time of year when transporting from the kitchen to guests) breaking wine glasses which need clearing up (another sign that things aren’t right) and #forgetting important things like turning my Dad’s home upside down as I convinced myself that I’d lost my wedding rings (they were back at home). I’m also contending with lots of pain.

You can say I’m just a clumsy, forgetful cow and despite resting, I’ve probably pushed myself too much, resulting in the MonSter coming out.

Christmas has made me realise how real MS is. OK, so I knew MS was real. There has been lots of tears. Tears because I know this is my reality as I’m so frustrated. Like a well known sports brand “just do it” is what I want to be like, what I was previously to #multiplesclerosis but I can’t “just do it” because of this stupid disease. My body has given up. As that advert says, we are in that Christmas limbo period, when we’re probably having a break before new year. I’m sat in my pjs (it’s 4pm, hopefully no one is coming around), watching Christmas television on catch up and doing very little because I’m exhausted. I’m getting my break now.

So with a #newyear on the horizon, reflection in the air, what do I want differently for #2018:

Do the best you can

MS is a daily battle but remember you only have one shot at being you. Tears have come and gone. I will have good and bad days but doing the best I can is the only option.

Recharge

There’s no magic pill to pop for MS (I’ve been told take this or eat that). Nothing cures, it may help, who knows. Fatigue for me, feels like I’m swimming in thick chocolate (there is probably too much of it at this time of year!) Recharging doesn’t cure MS fatigue but helps. I wrote my tips for managing #fatigue as a mummy with MS for the #MSSociety. I said “MS is like having a battery that can’t be fully charged, so know your energy drainers, those things that just zap the life from you”. Christmas is an energy drainer. But I know next Christmas (or any big event) has to be different.

Don’t put pressure on yourself

In my past #writing, I’ve talked about this. I feel guilty for having no energy. I will continue to remind myself to cut some slack, especially as next year comes with more of little man’s milestones. I live with MS, that’s pressure enough.

Acceptance 

This links with the previous point. This year has been full of acceptance. I’ve had grab rails, a walking stick, Blue Badge and a EDSS scale of 6 ( I had to google too!) All physical reminders that I’m no superwoman (I probably wasn’t before MS although I thought I was!) Life might be tough but accept all help and adjustment. Anything for a better life.

More ‘me time’

This year, #stleonardsyork have been great giving me more “me time”. I’ve tried #arttherapy, #laughteryoga and various treatments like #reflexogy. With my weekly stint of #pilates, I will plan in more “me time” for next year. Everyone deserves it. This year, I’ve used writing as my therapy. I will continue to. Thank you to everyone who believes in me. All there is to say, is have a fab 2018. Let’s hope it’s full of love, health and happiness. And sod resolutions!

Jo

Happy new year!

Posted on: January 02 2018

happy-new-year-1.jpgHello everyone,

Happy new year!

The MS-UK Helpline is now open again, so do get in touch if you would like any support or information about multiple sclerosis.

You can find out more about all of our MS services on our website, and of course if you are looking for a challenge in 2018 do check out our fundraising opportunities too!

We hope you had a fantastic new year, and if you missed it you can watch our Christmas jingle video on our YouTube channel.

Hello everyone,

Happy new year!

The MS-UK Helpline is now open again, so do get in touch if you would like any support or information about multiple sclerosis.

You can find out more about all of our MS services on our website, and of course if you are looking for a challenge in 2018 do check out our fundraising opportunities too!

We hope you had a fantastic new year, and if you missed it you can watch our Christmas jingle video on our YouTube channel.

Welcome back!

Love from MS-UK

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