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Wishing you seasons greetings!

Posted on: December 23 2016

Hi everyone, Whether you are rustling presents under the Christmas tree or lighting the menorah for Hanukkah, we wish you the very best seasons greetings this December!

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Please note, MS-UK will be closed from 1pm on 23 December until Tuesday 03 January 2017. See you next year! Love from the MS-UK Team

Lauren's skydive for MS-UK

Posted on: December 21 2016

lauren_sm.jpgFirstly, I just want to say that I could not have done my tandem jump without Mark, who organised it for me and of course everyone at Josephs Court who sponsored me! I managed to raise £523!!

I had a very early start plus a 5 and half hour drive. I arrived for 8am so I was very tired!! Not long after I arrived I was putting on my harness and getting in the plane ready to jump. I was very lucky to have my family watch me and also to have such lovely instructors, they calmed my nerves quite a lot.

It was such a beautiful sight as we made the 15,000 ft mark, we were about 4,000 ft higher than the clouds and it was very sunny despite being very miserable and raining mostly on the way. As my luck would have it, I was first out of the plane and the free fall took my breath away, literally! It was so much better and exhilarating than I could’ve imagined, when my instructor pulled the parachute we were mid cloud (which tastes like salt, if anyone asks) and we slowly made our decent down to the gorgeous scenery below.

It felt like hours when I had finally landed and such a wonderful experience, I am so glad to have done it. It was a definite bucket list thriller and I would do it all over again but I think I will have to try during the summer when it is a lot hotter!

Lauren x

Watch Lauren’s fantastic skydive on our Youtube channel.

Find out how you can Jump for MS-UK.

Racing for Noel...

Posted on: December 21 2016

Hi everyone,

This week, Rick Shortle got in touch with us to let us know about his mission to support his friend Noel Wilson, who has MS, in his efforts to raise funds at motor sport events.

Noel and Rick have been involved in motorsport for many years and this project will see Rick Shortle, FF1600 legend, back racing to raise awareness and funds for MS.

You can watch their video below to find out more…

You can find out lots more about the project and support this crowdfunding idea online too.

Good luck Rick and Noel!

Laura

Marketing Manager

Social group festive lunch

Posted on: December 19 2016

jclunch.jpgHi everyone, it’s Mike (aka Hunk of the Month), reporting from the Marks Tey Hotel in Colchester with the latest news from MS-UK Josephs Court. It was the social group’s festive lunch on Wednesday 07 December, it was totally amazing with 65 clients arriving in their festive jumpers. The venue was perfect, the staff were brilliant and the food was excellent,.

Everything went according to plan and the atmosphere was brilliant. They had an auction and tombola and guess who went around with the Santa sack full of baubles in it? Yes it was me. It felt strange going from table to table asking clients to pick a bauble from my sack, and the lucky people that picked one with a cross on it won a prize.

The clients came with one thing on their mind – to eat, drink and be happy and most pulled a cracker or two and put on the silly hats, the jokes were silly but it’s the way you tell um! Sadly I left as the singing started!!!

Well that’s all folks, watch this space for another exciting blog from me, Mike (Hunk of the month), or if you can’t wait until then, why not email me at michael@ms-uk.org

P.S check out our new opening times at Josephs Court on our website:
www.ms-uk.org/josephscourt.

Bye for now!

Mike

Why do clients come to Josephs Court?

Posted on: December 15 2016

Hi everyone,

In 2016, we have had some very talented volunteers at MS-UK supporting the work of the marketing team. One of them has been Daniel Joplin.

Dan is a keen photographer and loves to make his own films, so what better way to support MS-UK than by editing some of our video footage?

Here is the film by Daniel – a chance to see why our clients in Essex come along to our centre, Josephs Court. Thank you to Daniel for making this film!

Find out more about Daniel on his website!

The people in this video were filmed as part of our open day earlier in the year, when the Healthwatch Essex team came along with their Chatterbox Cab.

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MS-UK team and clients with the Chatterbox Cab

Thank you to everyone who took part in the day and made this film possible.

Best wishes,

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Laura May

Marketing Manager

2016 bag pack done!!!

Posted on: December 13 2016

photo-1-9.jpgOver the weekend of Saturday 10 – 11 December a group of willing volunteers all made their way to the local Marks and Spencer store to help the customers pack their shopping bags!

We all had a fantastic time and this was our way of taking part in the MS-UK Festive Frolic campaign. Holding a bag pack is so easy to do and I would recommend it to anyone! To find out more do get in touch with Nick today.

We arrived early and were all ready to start packing. Everyone choose their till and made each customer feel welcome.

Unfortunately the till I had chosen kept breaking which meant I was packing the same person’s bag for 15 minutes, but least we got to have a fun conversation. I can honestly say that by the end of the day my bag packing skills had vastly improved.

All the staff at M&S were so welcoming and made our day more enjoyable. Over the whole weekend the very generous customers donated a whooping £1,012.78. This is awesome and we cannot thank the amazing shoppers enough for their generosity!

 

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Nick, Jeanette, Sarah and Hannah helping out at the bag pack!

This weekend couldn’t have happened without the brilliant volunteers we had over both of the days. A massive thank you must go out to M&S who helped organise the weekend with us. We are already looking forward to next years bag packing, it is a great day out and you get to meet loads of interesting people.

From the much improved bag packing king, we look forward to seeing you all at a bag pack again soon!!!

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Mark Drain

Community and Events Fundraiser

Fundraiser of the month: Matt Pegg

Posted on: December 13 2016

Fundraiser of the month, Matt Pegg, tells MS-UK about his experiences riding the ‘London to Brighton’…


 

pegg.jpgMy choice of the MS-UK charity was very close to my heart. My wife Tracie was diagnosed with multiple sclerosis 11 years ago and we have become so aware of how important the support and information that the charity offers is. It is crucial in helping everyone who is involved with someone who has MS.

My two passions in life are my family – wife and five children (Josh 27, Aston 25, Kane 22, Chester 19 and Maddie 15) – and cycling so it made sense to combine the two and complete the charity cycle ride for MS-UK.

It was a beautiful ride through some lovely countryside and the weather was definitely on our side. I completed the ride in 4 hours and 20 minutes arriving at a very busy Brighton seafront at 11.50 and had my picture taken with a very proud daughter!
I would like to thank everyone who sponsored me and who supported me, especially my lovely wife Tracie for the encouragement she showed me throughout my training, it all made everything worthwhile…

I am already planning my next venture!

Best wishes

Matt Pegg

Guest blog: Indoor Skydiving with Sportability 

Posted on: December 12 2016

In this guest blog, Christian and his partner Nancy try indoor skydiving!


Myself and Nancy decided to join the Sportability team again this time to try indoor skydiving (how scary could it be?)

The venue is a massive building in Milton Keynes called Xscape where they do indoor skiing which was impressive to watch.

On arrival we are given the safety briefing including which hand signals meant what, I had forgotten those by the time I had left the room.

We were kitted out with ear plugs, goggles, helmet and a gorgeous blue suit that if was easier to get on it would wear in daily life (honest). There was about 10 of us so we were split into two groups, my girlfriend Nancy went first so I could gauge what was in store...two men stand either side of you and keep you in the skydiving position. This was particularly good for a couple of the wheelchair users with restricted use of their legs. You got about a minute, everyone gets a go before you go back in for a second go.

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During the second go one of the helpers spins you around, the fan whoooooooos a bit harder and he takes you spinning to the top of the tunnel, your heart is racing but it's all over so quickly. I would do it again without a doubt and would highly recommend it to anyone regardless of mobility as they really look after you. You get a certificate at the end and the opportunity to buy photos/video.

Join www.sportability.org.uk and hopefully I'll see you at the next event!

Christian Rolfe

A thank you from the Helpline team

Posted on: December 06 2016

the-ms-uk-helpline-team-kim-ryan-and-laura.jpgThe Helpline team have been working hard at reviewing our list of Choices leaflets. We have been running various surveys over the past few months through our e-newsletter and social media to include the voices of people affected by MS.

This has really helped us to update our leaflets and by including personal quotes, it can really help others. Drawing on other people’s experiences can really help make decisions where needed and to maybe try something new that hadn’t been tried or thought of before.

All of us in the Helpline team would like to thank everyone who has responded to our surveys so far, we couldn’t do it without you. We will continue to ask for your feedback throughout 2017, so don’t be shy, let us know your thoughts!


Why not join the MS-UK Virtual Insight Panel to continue having a say in what MS-UK does in future?

Have your say about NICE guidance and standards

Posted on: December 05 2016

NICE are reviewing the way they involve lay people in developing their guidance and standards. In this context, lay people are people who are not health or social care professionals.

NICE are carrying out a consultation on improving how patients and the public can help develop NICE guidance and standards. NICE want to hear your views on their proposed new principles and ways of working.

How to have your say

The consultation closes at 5pm on 28 February 2017.

Following the consultation, NICE will analyse all the comments and respond to them by theme. NICE will publish their final proposals on their website following the consultation.

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