Today we publish one of our ‘Guest Blog’ articles from Janet. If you would like to write an article for our blog please contact firstname.lastname@example.org.
Hi fellow MS-ers,
You will maybe remember me from fighting the Best Bet Diet corner for 11 years and my initial success with CCSVI treatment back in 2010. Well, I’m back and I have found my last piece of the jigsaw – CANDIDA!
PPMS diagnosed 1995, wheelchair since 1999, practically every symptom known to man.
Never taken DMDs, always eaten a healthy diet (organic, a little small-farm-raised meat, ocean fish, masses of fruit). Swank 1995-6, Best Bet Diet 2003-14. Ann Boroch Protocol (ABP) June 2014 – present.
Treated for CCSVI by Ameds, Poland (Oct 2010) and immediately many symptoms vanished but sadly gradually started to return but to nowhere near the level they had been thanks to the Best Bet Diet and other activities.
Walking still eluded me with zero balance and difficulty breathing so 2 years later I returned to Poland and they found both jugulars working fine with a normal blood flow. So it was all down to me to fix it.
Physiotherapy was my first port of call for 6 months. It got me able to get out of a wheelchair with help and shuffle along in parallel bars for a few minutes but I still had no balance and terrible breathing.
I tried a TMJ dental brace which helped a little (better sleep, slight improvement in balance and in breathing). I used a TENS machine, Slendertone belt, Vibroplate and an Electric Mini Walker, had CST (cranio-sacral therapy) for jaw manipulation, polarity and energy therapy, emotional freedom technique, and my own art therapy.
Result: Slightly better muscle tone, emotionally stable, writing returned to normal, nearly bankrupt. I changed my supplements and diet to concentrate on helping blood flow (cayenne, parsley, grape seed extract, gotu kola, ginkgo biloba, magnesium, co-enzyme Q10), IP-6 and milk thistle to remove iron deposits from the brain.
And that was where I had got to when you last saw me in New Pathways.
I was still not able to stand for more than seconds, even supported, my incontinence had returned to every 20 minutes and with food intolerances turning up by the day I started Googling.
I found every one of my MS symptoms in every site I looked at on Candidiasis. I took multiple candida questionnaires and scored off the charts.
MS is incurable and, with PPMS, I was in for a slow decline. Candidiasis however is curable through diet.
It made sense to start a candida diet and at least remove that part of my problem and then see what was left.
I started a Candida detox programme (Ann Boroch) June 2014 and at last I had my answer.
The new diet removed most fruit which had been my downfall – the candida don’t care where their sugar comes from.
I changed all supplements to those recommended for healing the liver, gall-bladder, adrenals, leaky gut, thyroid and digestion and did yet another heavy metal detox.
The symptoms I had by June 2014 when I started the ABP were food intolerances, anaemia, low body temperature, cold feet, constipation, fruit cravings, cysts, abdominal distension, tinnitus, ear itchiness and ear ache, feeling worse with perfumes, fumes, tobacco smoke or dampness, spots in front of eyes, excessive tearing, itchy eyes, athlete’s foot, itchy arches, swollen feet, toes and ankles, vaginitis, general feeling of unwellness, itchy scalp, sores on scalp, low blood sugar, IBS, mitral valve prolapse, coated and cracked tongue, mouth ulcers, dry mouth, numb feet, tingling legs, muscle strength not as good as it should be, toe nail fungus, oddly-shaped toe nails, needle-like pain, arthritic-type pain, tightness in chest, shortness of breath, irritability when hungry, eczema, liver spots, white spots, sore throat, hoarseness, cough, spots on tongue, difficulty urinating, unable to empty completely, zero balance.
The protocol is severe. I suffered 2 months of solid die off (Herxheimer reactions), my symptoms worsened, old symptoms returned, I lost a vast amount of weight that I didn’t have to lose, felt dreadful but had heard this was all part of the cleanse so I plugged on.
At 2 months to the day my energy returned and the ominous dark cloud lifted and every single day since I have experienced improvement, sometimes only small but improvement nonetheless.
In 3 and a half months of eating the new way all that was left was cold feet, a few cysts not completely gone, still not emptying completely and not much feeling in that area. I could swim in a quarter of the time and had bundles of energy, could walk 90 paces with my husband on one side and nothing on the other. I felt more vibrant than I ever had.
By 18 months I started realising what people were talking about when they had UTIs. I don’t know how many years I had been having them as I could never feel anything. Now I can and I have found some brilliant pessaries. You can find one that works for you, but I use PEGASO-CANDINORM-OVULI.
By 22 months on the protocol I felt fantastic, still had cold feet, one foot that was starting to clear the floor correctly and still had a knee that was still bent inwards, could get out of a chair without using my arms, shower alone and standing, walk with assistance and had no other signs of MS.
Now at 23 months on the protocol my feet will warm up with chocolate (100% cacao) or other ingestible items like chilli, foot drop is almost gone, knee is starting to straighten out and will bend, and I can walk 19 paces with 2 sticks on my own so am rather excited.
I estimate that it will take me 4 years to rid myself of Systemic Candidiasis by which time I predict all “MS” symptoms will be gone.
This video shows me walking at 22 months since the ABP and, bearing in mind that I couldn’t even sit up straight before all this and certainly couldn’t transfer unaided, I am confident I still have more to gain.
I followed the book ‘Candida Cure’ by Ann Boroch.
Hope this helps!
May 25 2016
Ryan from the MS-UK Helpline team has been invited by the Clacton and District Branch of the MS Society to be one of the speakers at their next ‘Information Day’ on Saturday 11 June at Holland Public Hall, Clacton-on-Sea.
The event is open to people with MS, carers, family, partners and friends and anyone with an interest in MS. The event will run from 10:00am – 3:30pm. If you want to come along and be a part of the day booking a place is essential. Please download the booking form and follow the registration instructions.
For people from the Tendring district of Essex this will be a good opportunity to mix with other people with MS, get some up to date information, learn from each other and the professionals involved. Along with Ryan, the programme is filled with interesting and engaging speakers. It’s a real mix of essential information and also a presentation that will be quite fascinating and out of the ordinary.
Fiona Symonds from Uttlesford CAB will be starting the day off. Fiona is a Volunteer Benefits Advisor from the West of Essex and she will be talking about what’s changing in the world of benefits. Fiona is a passionate volunteer and very knowledgeable on welfare rights issues.
There will then be a talk from Chris Wiseman the local MS Nurse. Chris is from Colchester Hospital University Foundation Trust. In addition to her presentation Chris will be allowing plenty of time for questions and answers from attendees.
After the lunch break Ryan will be delivering a presentation on ‘Exercise and Wellness’. Ryan will touch on the proven benefits of exercise for people with MS and also local resources to help remove barriers to activity including MS-UK’s local service Josephs Court. Ryan will be prompting participants to think about how they can look after physical, mental, social and emotional wellbeing.
There will then be a talk from Barry O’Connell from ‘Canine Partners’. Barry will be talking about the benefits and support that a trained canine partner can bring to people’s lives. Although this service is not MS specific, it shows that the local branch is thinking creatively about the kinds of support people want and need.
Ryan and the MS-UK Helpline team are really looking forward to working alongside the MS Society local branch, showing that by working together we can support people with MS to be as informed as they can be.
The Helpline team say ‘watch this space’ for news about more work like this in the future.
I just wanted to let you know about an open letter Jack Osbourne wrote for People, to highlight World MS Day. You can read the letter on the People website.
It’s a letter from Jack, son of legendary rock icon Ozzy (OK, that might just be my taste in music), and his thoughts on living with multiple sclerosis. It explores the impact of diagnosis and his hopes for a cure.
Jack was diagnosed in his twenties, and has since launched a campaign called ‘You Don’t Know Jack about MS‘.
I would love to know what you think about Jack’s letter, and whether seeing a celebrity speak out about MS helps you? Everyone is different, so I know not everyone will want to read about Jack’s experiences – please leave your comments below.
Marketing Manager, MS-UK
P.S. Newly diagnosed? We have a booklet which may be useful. Visit our website to find out more and order a copy.
The deadline to sign up for Prudential RideLondon 2016is this Friday 27 May, and here at MS-UK we still have a couple of places remaining. With the Rio Olympics coming up this is an opportunity for you to be part of London 2012’s legacy, cycling past some of London’s most iconic landmarks and taking on the notorious hills of the scenic Surrey countryside during this 100 mile sportive.
Joining the MS-UK team though is about far more than cycling, it’s about raising money to help us continue to provide our vital services to people affected by multiple sclerosis (MS). In 2015 our helpline team supported 40% more people than we did in 2014, and with the continued dedication of our amazing fundraisers we hope to reach more people than ever this year!
It’s not something for nothing though. As part of the MS-UK fundraising family you’ll get a personalised welcome pack, an MS-UK cycling jersey and of course – we’ll be there to cheer you on!
Sound good? There’s no registration fee! So email email@example.com or call 01206 226500 to join our team today!
Today marks World MS Day 2016 and the Multiple Sclerosis International Federation have chosen the theme ‘Together we’re #strongerthanMS’ to spread awareness of living with MS.
At MS-UK, we will be sharing your positive stories about what you can do living with multiple sclerosis.
To join in, post your message on your own Twitter or Facebook pages with our ‘handles’ as below, that way we’ll see your message too:
MS doesn’t stop me………. #strongerthanMS @MSUK6 for Twitter
MS doesn’t stop me………. #strongerthanMS @MS-UK for Facebook
Let’s show the world that ‘Together we’re #strongerthanMS‘.
Thanks for all your support,
Celebrate what you can do this World MS Day!
Wednesday 25 May is World MS Day, and the Multiple Sclerosis International Federation have chosen the theme ‘Together we’re #strongerthanMS‘ to spread awareness of living with MS.
To join in, post your message on your own Twitter or Facebook pages with our ‘handles’ as below, that way we’ll see your message too:
MS doesn’t stop me…………………………………. #strongerthanMS @MSUK6 For Twitter
MS doesn’t stop me…………………………………. #strongerthanMS @MS-UK For Facebook
Alternatively, send your completed ‘MS doesn’t stop me….’ phrase to John@ms-uk.org and we will add these to Twitter and Facebook for you to show the world that ‘Together we’re #strongerthanMS‘.
Hi My name is Zoe Elliott and I have recently taken part in my first triathlon raising money for MS-UK. The whole thing came about by chance – but it was one of those times in life when the stars align. I had been looking to get fit for a few years as my children get older and I can no longer use ‘babies’ as an excuse. My husband is a marathon runner and most years does the London Marathon and has raised a fair bit of money over the years, so I felt it was about time I joined him in the fitness stakes. I decided to do a triathlon mainly because it is a multi-sport event and a bit different to doing fun runs. It was also a suitable challenge to work towards for an unfit mum of two!
When I entered, I saw that MS-UK were one of the charities on the list that you could fundraise for and it was an obvious charity to raise money for having lost my cousin to MS just five years earlier. I have never raised money before for charity so it was about time I did. Thinking about Robin as I trained was also a huge motivating factor – I literally thought about him every time I went out – particularly when I ran as I really am rubbish at running and don’t enjoy it at all!
In terms of my fundraising I mainly canvassed friends and family on Facebook and colleagues at work through internal emails. It was amazing to get donations from people at work that I have never even met whose lives have been touched by MS in some way.
I think people donate for two reasons – one for the charity in question and two, to show support to a friend. Most of my friends have wondered how the hell I have trained for a triathlon – I work full time, travel all over the country, deal with a four hour round trip commute to London twice a week and juggle looking after my two young boys (7 and 4), two dogs and three horses. I guess it’s the old saying ‘ask a busy person’. And to be honest if I had not decided to make the commitment to MS-UK it would have been easy to give up.
So if you are fundraising and thinking of a challenge, think of one that will impress your friends (!) but also one that is going to be good for your well being too. I am now fitter and stronger than I have been in years, and found space for a bit of me time in my hectic schedule – I might even be able to go for a run with my husband someday soon!
So how did it go you ask? Well I came 4th out of 26th in my category – a super sprint triathlon of 200m swim, 18K bike and 2.5K run. My competitive spirit kicked in and I had a great day with all my family around me in support! I have raised over £1000 and the money is still coming in…. I will keep the page open and do a few more triathlons this year – including my 7 year old who will do his first in June! www.justgiving.com/zoe-elliott7
The sun is finally out, and here at MS-UK we’re hoping it’s here to stay, because on Saturday 21 May we’re hosting our first ever Bear Fair in Colchester Castle Park and we’d love you to join us!
Whether you want to join the Park Run, bake a cake or compete in the fancy dress competition there’s a way for everyone to get involved and there’s prizes for the best dressed bear, and the yummiest cakes!
As if this wasn’t enough our mascot Myles will also be joining us to greet our wonderful supporters and get the word out about all the important work we do.
So whether you want to join us in our mission to support those affected by multiple sclerosis, meet the mighty Myles, or simply enjoy a day in the sun, we’d love to see you there. The day kicks off with Park Run at 8.30am and we’ll be there soaking up the sunshine (and the atmosphere) until 11am!
If you want to know more or find out how you can get involved just call me on 01206 226500 or email firstname.lastname@example.org.
I hope to see you there,
The variety of subjects the Helpline covers is a real reflection of how different MS can be from one person to the next.
This week we have seen an increase in the amount of web chat contacts we have received. We have had 10 contacts, covering a wide range of subjects and attracting people from far and wide, including places such as Bucharest and Pakistan.
That is the wonder of web chat, it makes our Helpline service available to people all over the world (during our office hours), especially in countries whereby support may be minimal or less is known about the condition. We can help to explain symptoms and provide information for people to understand multiple sclerosis better.
We have also had people contact us about specific subjects that can often be stressful, for example employment issues, ironically whilst sat at their desk, not knowing how to manage or deal with a tricky work related situation. Web chat makes it easy to ask questions instantly whilst remaining anonymous if you wish.
Whatever the subject, you can contact the MS-UK Helpline and we will always do our best to help.
MS-UK Helpline Supervisor
Are you sitting in front of your computer considering the many questions you have about the symptoms you are experiencing? What should you research first? Which site should you look at?
Where can you go to voice those deep rooted fears that stop you from even going to your GP? Do you worry that someone will say you are being silly, ‘it’s all in your head’ and not to worry! If you spoke about your concerns to a family member or friend, will you be passing on that worry and they will then continue to question you until you do something about it?
Wouldn’t it be fantastic if there was a place where you could go to, where you could ask as many questions as you want, get all the answers you needed, yet still remain anonymous to the world?
Wouldn’t it also be helpful if you could come away with a more balanced view after taking on board a different perspective of your situation? Maybe with details of other places to go to, to find out more? Would you like to discover from this place that not only does someone else care that you feel alone and afraid of the outcomes, that they have the time to help you find the strength to face those fears so that you can get on with your life?
I know where this place is… it’s the webchat at www.ms-uk.org/livewebchat.Try it, you might be glad you did.
MS-UK MS Advisor.