The fundraising team took the opportunity on a bright sunny day to drive up to the Virgin Money London Marathon Expo and set up our stand for the rest of the week. It’s really got us excited for the build up to this weekend!
The venue is huge and there are charities, running clubs and sports brands galore represented here. Hold on tight to your wallets people because you’re going to want to be spending relentlessly on the endless tech and kit available.
Once you’re registered and you’ve spent enough of the money burning a hole in your pocket come and say hi to us! We are on stand 272…The purple stands out in a sea of red and grey so we should be hard to miss!
Write a message on our runners wall, get to know the team and get a photo to remember the pre-marathon you by!
It’s home time for the fundraising team but we can’t wait to meet our runners and their supporters (and if we’re lucky we might even have time to get some new trainers ourselves).
Want to know what it feels like to finish the Virgin Money London Marathon for MS-UK? Check out the happy faces of our 2015 runners in the video below – we can’t wait to meet this year’s runners too!
I hope by now you know who I am…I’m Myles, the MS-UK mascot! You can find out all about me on my very own web page at www.ms-uk.org/Myles and see what I adventures I get up to!
I just wanted to remind you that MS Awareness Week is coming soon – and I want you to help me celebrate! You can start straight away just by adding my Twibbon to your Facebook and Twitter profile pictures.
I will be posting more blogs as we near the week (which is happening 25 – 29 April) so keep checking back, but in the mean time keep posting those #SmileswithMyles selfies!
And so it’s finally here – all warm and smelling of fresh print…
I talk, of course, of the new issue of New Pathways.
We thought long and hard about what to cover in this, our 96th, issue – but at the end of the day there really was only one topic to cover.
Stem cell treatments.
Since BBC’s Panorama programme lit the fuse and then ran away, we’ve been talking constantly about the subject. And not just in the MS-UK office – our Helpline teamhave been fielding questions as people try to find more information.
Well, that’s what we’ve given you.
With personal tales from three people who have intimate knowledge of the subject – being treated both at home and abroad – we have tried to give you as balanced and informed a view as we can.
We’ve also had to expand our letters pages to shoe-horn in all the comments and responses we had to the article about the BBC programme in the last issue.
It seems people were as happy as I was about the coverage.
With that in mind, I have been chasing the BBC for a comment about the programme and am assured it will be with me any day now.
If not sooner.
It’s a shame it couldn’t get to me before the magazine went to print, but hey – you can’t rush these things.
We’ve also decided to take another look at LDN (low dose naltrexone ).
Once the new treatment on the block, it seems to have been forgotten in recent times so we chat to the people who know what it is and those who have benefited from its use.
Well of course!
Stephanie Millward has been busy training for Rio, Fleur’s got suggestions for convenient veg gardening and Charlie had to break out of hospital just to see his daughter’s band play.
It really is quite the issue.
But hey, don’t take my word for it – why not try it for yourself?
Email Abby@ms-uk.org and ask for a free trial pack and we’ll send you the latest issue. For free.
(Hopefully, you’ll like it enough to subscribe…)
Right, on with the next one.
Editor, New Pathways
Today we publish the first of our ‘Guest Blog’ articles from Liz. If you would like to write an article for our blog please contact firstname.lastname@example.org.
Welcome to all MSers, old-er and young-er… hope we’re all
enjoying our (unique) challenge(s), and if not, why not?
For those of us living alone (I am)..social media a new-ish tool for many possibly, is certainly bringing many communities together, to face, nay overcome, any challenges. For company I’ve already spoken with the talented Wes Thompson, (if you haven’t yet checked out his Twitter broadcasts…inspiring!).
Wes set himself the achievable(!?) challenge of speaking with an MS-er from every city [69!] in the UK and with organisations that continue to make MSers’ lives that little bit easier. Not to be accused of giving in (surely never an MS-ers way?), Wes’ forthright charm and engaging persistence allow us to muse the plans of MSers from as far as Australia (thanks for your positivity Olympic Carol) and gorgeous southern USA (hey ‘belle’ Tiffany, how, ‘r ya doin’?) Fabulous inspiration all!
So what have I myself been doing, to pass my MS filled hours? Well my most positive MS incidents / achievements beside my own career to date, are unsurprisingly thanks to my two delightful, caring, hugely gorgeous, sons. I’ve learned to be kinder and more patient with myself and everyone, I hope…my MS has helped me to do this, I’m sure.
….back to the significant factor of doing what we each do to:
I) enjoy our time;
II) help better our lives; and
III) Work with our medical MS staff to find an ever elusive cure for global MS…BE SURE…IT WILL BE FOUND!
My happy family upbringing (my parents, father head-master and mother once an England captaining tennis player), both heavily supported their 4 daughters. MS benefits from this?
Some time ago, my older sister, skilled in advanced technology and both gregarious and wise, ‘used’ her personal friendliness for the benefit of MSers globally. What did she do? Explained my/our (currently) incurable MS, and she, and me/my friends kindly raised well over £400, to support my sponsored silence, administrated by SHIFT.MSand the fabulous on-line ‘Just Giving’.
I’m thinking, why not take a light hearted/positive look at what you/we can/have achieved. No longer driving, but still able to walk, happily, I shared my activity and plans with/ to a fellow MSer based 000s of miles away on FB. I’d reported getting a bus from the nearest bus stop, using my stick and [disabled] bus-pass free, in Northamptonshire right now, I…
a) Got a bus into town (Large and growing, not yet a city, sorry Wes.);
b) Made it to market;
c) Chose fresh vegetables;
d) Bus as near home as poss..
Anyway Lee’d FB posted how we [MSers]… can see value /achievement in the small[er] simpler things that maybe non MSers miss/take for granted using…. what’s called ‘Mindfulness’. Recently used in schools to help….certainly my course helped me!…we’re all still here, positively going forward together, why not? It might help you too!
Active listening, positive compassion, and patience I hope are gifts that MS has gifted me!
I’m really pleased to announce we’re holding an event right on our doorstep on behalf of Josephs Court, our wellness centre based in Colchester.
From 8.30am on Saturday 21 May we will be holding the Bear Fair at Colchester Castle Park, and we’re inviting local residents to take part in a range of activities to support MS-UK.
So, if you live locally, why not come along?
You can meet our beloved mascot Myles, dress up in your finest fancy dress and taste some of our bear baked cakes at our picnic. You can even fundraise on behalf of Josephs Court and support our vital local service by taking part in the Park Run for MS-UK.
You can download a registration form and find out all about the event online now at www.ms-uk.org/josephscourt, or just give me a call on 01206 226500.
I hope to see you there!
Michael Kinton, Centre Manager
Josephs Court, MS-UK
Disability Rights UK are working with Channel 4 to find participants for their Paralympics marketing campaign.
Channel 4 are looking for a number of people with a variety of skills and a range of impairments to be the face of the Paralympics marketing campaign. This is a great opportunity to showcase your talents and to demonstrate that disabled people are a diverse and interesting bunch!
Who they want: a full swing band; dancers; skateboarders; martial arts fighters; models; business people; children and families!
Send them a short film clip of no longer than 5 minutes, stating your name, where you are from, and your impairment and show off your talent.
Please send to the Producer at Blink Productions who will be doing the casting for the campaign at email@example.com along with your contact email address and phone number. Please only use the file sharing website http://www.wetransfer.comto share your clip and no attachments.
The closing date for applications is midnight on the 07 April and if your application is progressed to the next stage you will be contacted by 15 April 2016.
If you are under 18 and would like to apply then your parent or guardian will need to do this on your behalf.