On Wednesday 08 June, Healthwatch Essex hosted the launch event for the 555 Neurology Project report, in partnership with eight charities from across the county, including MS-UK!
Senior staff from Essex Clinical Commissioning Groups, local neurologists and health professionals came together at the Chelmsford City Racecourse to hear the lived experience of five people who have been diagnosed with a neurological condition in the past three years.
The event launched the findings of the recent research project, which was led by MS-UK and undertaken in partnership with member charities of the Essex Neurology Network.
A series of focus groups took place across the county to capture the lived experience of people who have been diagnosed with a neurological condition within the past three years. They were encouraged to talk about what being diagnosed was like and what would have improved their experience.
Neurological conditions include brain injury, epilepsy, Huntington’s Disease, Motor Neurone Disease, multiple sclerosis, Parkinson’s, Progressive Supranuclear Palsy and stroke, and affect over 35,000 people in Essex.
Patients from the focus groups shared their experiences face-to-face with the neurological professionals who deliver care in Essex. By listening to today’s service users, these professionals have taken the first step to help improve that diagnosis experience for future generations.
Thank you to every single person who took part in this project, we have enjoyed conducting the research and sharing the real voices of people in Essex.
I do hope you enjoy the report!
Marketing Manager, MS-UK