Skip to main content

Guest blog: My MS Life...

Posted on: October 05 2016

In this guest blog, Christian recounts visiting MS Life, the largest event for MSers, organised by the MS Society…


img_1471.jpgSo MS life???? Firstly not my first time at the excel but I’m still in awe of the building, it’s enormous. As a venue I thought it was good and easy for me to get to

I was excited but not sure why, I had heard bits of previous events in Manchester but didn’t really know what to expect and the scale of it all.

The vast array of stalls showcasing the latest mobility aids, activities, talks and MS charities were amazing. I took part in a wheelchair dancing class which erm is not me, I had no rhythm before MS and following progression it didn’t trade me with any silky moves. This is a brilliant way to get you exercising in a fun way, I may of looked silly but who cares?

The talks I sat in on were about research and future treatments particularly for progressive MS, very exciting stuff.

More importantly than all the information though was the overwhelming feeling of community,  people I’d never met, people I knew only from Facebook/Twitter and all the support staff. It was brilliant to spend time and talk to people who just get it. I will be back (that’s not a menacing Arnie I will be back either). Until next time,

Christian Rolfe

Sneak peak...New Pathways magazine!

Posted on: October 04 2016

Hi everyone,i99-front-cover.jpg

So, the latest issue of New Pathways has now landed, and it is an exciting one!

We have stories from Rio Paralympic Gold medallists Stephanie Millward and Kadeena Cox, a bumper section of news and research from ECTRIMS, plus articles all about pain management, an interview with Billy Talent drummer Aaron and sailing challenges in Turkey!

Our digital edition is also packed with videos and interactive content too – for a sneak peak, check out this video of Sardines Dance Collective performing at MS Life!

We have also launched our Festive Frolics campaign in this issue, and you can now buy your MS-UK Winter Draw tickets to support us.

You can read the magazine instantly on your phone or tablet just by downloading the My MS-UK app, or subscribe for the paper or audio version via the MS-UK website.

However you read New Pathways, do send us your feedback and suggestions, and don’t forget to send your letters in too!

Happy reading,

amy-sig.png

Amy Woolf

CEO, MS-UK

What makes you 'appy?

Posted on: September 13 2016

Amy_4.jpg
Photo of Amy Woolf, CEO of MS-UK

Hi everyone,

This Saturday the MS-UK team will be packing up our purple accessories and heading off to MS Life! Running from 12pm – 7pm on Saturday 17 September to 11am – 4pm on Sunday 18 September, this bi-annual event is hosted by the MS Society and is the biggest MS lifestyle event in Europe.

Our Helpline team will be on hand to answer any questions about MS, and Kahn, our Editor, will be checking out all the latest gadgets, news and research so he can bring you a full report in the next issue of New Pathways.

For me, though, MS Life is all about meeting you – real people affected by multiple sclerosis. I am really looking forward to speaking with lots of different people about lots of different things, and I invite you all to visit us on stand 246 and let us know what makes you ‘appy.

As you may know, we recently launched the My MS-UK app – bringing New Pathways magazine into the digital age – and we’ll be celebrating the app all weekend by focusing on the positive.

Happiness (or ‘appiness, in our words) is completely unique to every individual. You may find it from your friends, from family, from your work, in the amazing wonders of the world or from something as simple as having a cuppa.

So, whatever makes you ‘appy, please do come and share it with us. We will be adding messages of ‘appiness to our stand throughout MS Life, and I for one cannot wait to discover all the things that make people ‘appy…

See you at the weekend!

amy-sig.png

Amy Woolf

CEO

MS Life is this month!

Posted on: September 01 2016

Hi everyone,

So, September has arrived, and we are excited to be going along to MS Life 2016 at ExCel London this month!

ms-life-homepage-slider.png

You can now find out the highlights of what will be happening at the event on the MS Society website. You can also download a full timetable of activities.

We will be there for both days at stand 246, so do please come and say hello!

See you there!

The MS-UK Helpline team

MS Life 2016 – 17 & 18 September

Posted on: August 17 2016

the-ms-uk-helpline-team-kim-ryan-and-laura.jpgWould you like the opportunity to meet the MS-UK Helpline team face to face?

Have you ever wanted to find out about all the latest MS research direct from those involved? Would you like to meet the scientists and professors behind the drug therapies?

Do you have questions about any aids and adaptations, accessible holidays and travel? Would you quite like the opportunity to meet others with MS and their families?

MS Life 2016 may well be just what you are looking for!

MS Life is a large exhibition held every other year and is organised by the MS Society. This year it is coming to London Excel and we are really looking forward to being there.

Tickets are free and you can choose to attend a variety of workshops as well as visit the main lecture hall for the keynote speakers. You might even wish to pay a little visit to the MS Life Spa or watch a cookery demo!

This year see’s the return of the demonstration area, where last time we go to see the wonderful Canine Partner dogs in action, showing off their skills, as well as some fantastic wheelchair dancing. We also saw demonstrations from some of the most amazing off road trikes and wheelchairs where you can even have a go yourself.

It’s a great event to find out about things you may not have even thought of, or realised existed. It’s also really nice to meet others and for family members to learn more too.

You can book your ticket now, and don’t forget to come and say hi to us, we will be right opposite the demonstration area, you won’t be able to miss us!

https://www.eventbrite.co.uk/e/ms-life-2016-tickets-24652570502

I look forward to meeting you,

Laura Amiss-Smith

Live Chat Software by Click4Assistance UK