On Wednesday 08 June 2016, Healthwatch Essex and MS-UK hosted the launch event for the 555 Neurology Project report.
Photo, L to R: Jerry, Angela, Emma, Tracy, Jon, our 555 Neurology Project speakers
Senior staff from Essex Clinical Commissioning Groups, local neurologists and health professionals came together at the Chelmsford City Racecourse to hear the lived experience of five people who have been diagnosed with a neurological condition in the past three years.
The event launched the findings of the recent research project, which was led by MS-UK and undertaken in partnership with member charities of the Essex Neurology Network.
Read the 555 Neurology Project report now (PDF Version)
What happened during the 555 Neurology Project?
A series of focus groups took place across Essex, hosted by MS-UK, to capture the lived experience of people who have been diagnosed with a neurological condition within the past three years. They were encouraged to talk about what being diagnosed was like and what would have improved their experience.
Neurological conditions include brain injury, epilepsy, Huntington's Disease, Motor Neurone Disease, multiple sclerosis, Parkinson's, Progressive Supranuclear Palsy and stroke, and affect over 35,000 people in Essex.
By listening to today’s service users, the people who took part in this research have helped improve that diagnosis experience for future generations.
The charities involved are all part of the Essex Neurology Network, and include: Headway Essex; Huntington’s Disease Association; Motor Neurone Disease Association; Multiple Sclerosis Society; MS-UK; Parkinson’s UK; PSP Association and Stroke Association.
Who was involved in this project?
We partnered with Healthwatch Essex and the Essex Neurology Network to deliver this research.
We aimed to shine a light on the experiences of real people, and find out what they feel would have been the most positive way that they could have been given their diagnosis.
We invited anyone affected by a neurological condition to take part in the research, including brain injury, epilepsy, Huntington's Disease, motor neurone disease, multiple sclerosis, Parkinson's, Progressive Supranuclear Palsy or stroke.
What does 555 mean?
At the end of our research, five people from five focus groups had five minutes to tell their story to neurologists. We presented our findings to Essex based neurology professionals at an event on Wednesday 08 June and used the unique 555 approach to make a real difference.